Happy to find people like me....... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Happy to find people like me.......

PaulaPortela profile image
11 Replies

I´m new here i have foud this yesterday and i join in, I´m Portuguese so my Inglish wasn´t so good. I´ve been spend aroud 7 years of my life try to find what´s wrong with me and one day My Dr says Dear lady you have Fibromialgy and give some kind of a small book were i can find a part of the symptoms that Fibromialgy can cause. Since that day more 13 years heve been passed and i still carry on some a little up and almost the days very donw, I think that all trough the years I lerned how to work with, but some times it`s very dificult and to much more dificult it is when no one try´s to understend you and suport you when you feel so donw. Today I had a really bad day a big pain on my neck and my hands and some time i need to stand and think what i´m doing, but tommorow will be another day, and i hope i better one. Thank you for your time all the best

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PaulaPortela profile image
PaulaPortela
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11 Replies
dawny profile image
dawny

so pleased to meet u Paula, hope u have a better day tomorrow. Since i found this forum i have found comfort through sharing with others, i hope that u will feel the same, take care x

tofty profile image
tofty

hi paula so pleased u found this site its been a life saver to me ,its so good to know u r not on your own with FM .xx

Butterfly54 profile image
Butterfly54

Hi paula I have only been on here a few weeks and have found it a life savour.your english is better than some of us on a bad day,which can be really funny.You will find all the help and friendship you need on here I know I have.Gentle hugs and welcome xxxxx

Kestrelflyer profile image
Kestrelflyer

Hi Paula. You have nothing to worry about with your English by-the-way! Welcome to the group. I only joined a short time ago myself but I've found it to be a great place to communicate with other people who totally understand what you're going through.

I think most of us have good and bad days, forget what we were doing, or can't find the word we want to use etc. I thought I was alone with this, but was relieved to find that other people with Fibro experience the same problems and refer to it as Fibro Fog!

I hope you have more good days than bad. Take care. x

penny41 profile image
penny41

Hi Paula I also joined yesterday, isn't it great :-)

circuitrunner profile image
circuitrunner

Hi Paula, strange I moved to Portugal lived their 7 years Silves to help the fibro. Warmer weather. Through necessity returned to UK climate here is not good for Fibro. Hope family are understanding - keep strong.

PaulaPortela profile image
PaulaPortela in reply to circuitrunner

Hi circuitrunner, yes i really missed the warm weather and blue sky if you lived there you know what i mean, but 8 years a go my husband come to work in uk i stayed in Portugal with my son, and i start to fell worse i supposed it was the emotional instability, after 3 years my husband suffered a heart attack and i decide come to uk, if we are a family we need to stay together and support each other and here i am.

nice to meet you here all the best.

circuitrunner profile image
circuitrunner in reply to PaulaPortela

I just loved my Portuguese neighbours - wish you lived nearer

PaulaPortela profile image
PaulaPortela

Hi every one I´d like to thank you the warm welcome, it´s really good see that people who doesn´t know me, receive me so well. Now i don´t feel so alone i can share my pains and all the other crazy symptoms without no fear of faces look at me like if i was some kind of alien, so my friends don´t give up on hope keep strong and be happy, and once more thank you very much.

circuitrunner profile image
circuitrunner

Well girls I will be seeing Specialist - Anaesthetist - chronic pain Tomorrow. Of course I know there is not a cure! for Fibro but their is help out their if we can get it when your quality of life comes you can not walk far which takes independents away and housework - shopping is a nightmare. A question I will ask is why do I have to go through all the prescriptions again for nearly two years when it is obvious they do not help me.Then come to the point have to insist on getting the proper pain relief avaialable - which I have had previously over the years. No it does not give you a lifetime relief for each one of us the treatment last differently on each individual but at least gives respite for a while. Will let you all know the outcome. Lets all stick together girls it will keep us strong x

circuitrunner profile image
circuitrunner

I have seen the specialist first visit as he had no papers on me it was a case of explaining. He said really I needed A FULL MRI done so he could then diagnose properly - fine no problem. Then... said He did not know whether my doctor would be willing. For sure I knew already as my doc had already said I could not have an MRI done at drop of a hate - at the time had not even mentioned or asked for one. Through desperation and help from family having one done private. For me I just want to be diagnosed properly whether it is the fibro causing more lacking of independence or the spine. If they confirm it is more deterioration of spine hopefully they can do something - naturally will get family doctor to deal with it from thereon as specialist will tell him what has to be done. To be honest I am hoping it is not the fibro that is causing it - at least then I know something can be done - If it is the fibro well as we all know case of carry on regardless - somehow.

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