The more blogs i read the more angry i get that people who are managing to work and hold own jobs have to call in so often as they are in a flare up and the people who are at collegeas and uni s doing courses they have to have so much time off missing lectures etc it is awful that employers and such really have NO IDEA what fibromyalgia is even if we dont work in our daily lives if we use a stick at times or a wheelchair and people see you and think oh she must have sprained her ankle or something and you tell people no no it is fibromyalgia and they do one of two things say oh get better soon bless them or what is that then o r they think it is some sort of contagious disease that i caughtfronm being in the middle of nowhere
I try noyt to get annoyed with people though as bless them i had never heard of it before i had it nor had any of my family or friends
I think it needs to be alot more recognised like M/E amd M/S or Diabtets etc we all know what they are straight away we have all grown up with these words but not FIBROMYALGIA so why hasnt it ???????
we had same thing with my grandson he got STREP B meniengitis at 6 days old nearlymdied but we had never heard of that and thats another disease that is put in the shadows WHY ???
So WHAT can we do to get people to recognise it ????
love to you all diddle x