Nonononoooooo: I have no clue what my... - Fibromyalgia Acti...

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Nonononoooooo

Debsdelight72 profile image
2 Replies

I have no clue what my body thinks it doing.

Just when I thought I may be getting a break,???

It seems I have been in a constant fibro hell for the last three years,

Although I have had fibro for 13years , I felt like I had a little fairy sprinkling of dust.

I swung my legs around, massive stretch , I decided to take my husband a cup of tea for a change.

Stair lift down, still feeling good (as good can be) Doing really well, stood up and fell

flat on my backside , hot drink all over me,wall,and carpet.So hubby says I will have to using my

power chair indoors! My respond "but I was on the stair lift?? GGGRRRRRRRR

But on Friday had a telephone PIP Review,( Hubby deals with that too ) At the end of the call , She

told him , I wont be having another acessment for at least 5years. WooooHooo .I really thought they would take something off.

Daily-standard still and Mobility full,To say we almost cried what a relief, I just wish I didnt have to relay on power chairs and mobility scooters, This has made me incredibly tired just typing,

Hope everyone is sort of wellish

Take care

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Debsdelight72
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2 Replies
Bacaloca profile image
Bacaloca

Well done on your PIP result. I know what you mean about your body, mine has a mind of its own, if I want to go one way my legs want to go another. If I want to stand My body wants toast or even lay down. If I want to carry something my hands twitch and everything goes up in the air. My partner often wears a cup of coffee instead of drinking it, at least he see's the funny side of it and has banned me from the kitchen, so no cooking no washing up hey there are some up sides.😀

Debsdelight72 profile image
Debsdelight72 in reply toBacaloca

Its just crazy, Im still trying to figure how to do things (normally) after all this time,

My husband is a legend I cant remember the last time I did anything at all,

Only thing is Hubby is not very well either. But he keeps insisting, We'll both end up in a double room at the local hospital

Plod on as we do

Thanks for replying take care

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