Perrin Treatment?

[Murpy]

Happy new year everybody 🥰 fingers crossed for us it's a good one. I have been reading about Jonathan Ross's daughter who has fibromyalgia and CFS. She has been doing the Perrins treatment and she seams to have improved. Any one done this? What do we all think? X

[Blue-52]

happy new year.

For those that can afford it, it would be great , but it’s quite expensive.

The technique sounds great.

[Murpy in reply to Blue-52]

Its a shame it always comes down to money!

[Blue-52 in reply to Murpy]

sadly, it is.

[Marzipan3468]

I read this too, and did an internet deep dive straight after. It seems not many practitioners do this treatment at the moment. From what I could see it was mainly based in and around large cities in England. And yes expensive.

[Cat00]

It seems to just be about lymph draining massage which you don't a specialist for and you don't need if you are physically active enough. Well at least that's what I read about it.

[Tilly1957]

I have found the Bowen Technique helps me a lot, and there are plenty of practitioners of Bowen all over the place. I am trained in this (retired now) and have experience of the benefits x

[desquinn Partner Volunteer FMAUK Trustee]

Betty has multiple conditions so not sure if her improvement is in fibro or one of her other conditions.

Perrin treatment is costly and has not had any real scientific rigour applied. From memory one study financed by the originator and not replicated.

People try treatments and get an initial "bounce" but fall back to ground so checking how people are 6 months later when they can see if the £££s are still worth spending for the results.

Great to see her father speaking about it and hopefully Betty is doing better but one person is not significant and unfortunately we will have "adverts" and stories about this for months to come but ultimately it is another person selling treatments without what would be I think considered by most clinicians to be enough research to be clinically valid.

It like other techniques, treatments, systems, and programmes with clinicians or therapists names have been around for ages and tend to be franchised and sold with similar sales programmes. Caveat emptor.

[Murpy in reply to desquinn]

Thanks Desquinn, I was hoping you would reply, your very clued up about things. Maybe one day there will be a treatment (free) that works. ☺️

[desquinn Partner Volunteer FMAUK Trustee]

thank you. Ultimately any treatment that is viable and helpful for large amounts of people will become something that is offered widely. Fibro costs the NHS / government / society money. So when something starts fixing that burden even in the private sector then it will move to being used elsewhere.

[Marigold8]

hi. I just posted the same thing without searching first (will delete my post). It certainly looks very interesting. The clinic that does it close to me recommends that a partner or relative comes to the appointment to learn how to help at home, I think that’s really good (to be honest all the osteopaths I’ve seen want to make it as cost effective as possible - treating at home, referring to someone else who might be better suited etc etc.)

I’d be really interested to see if it helped. Shame that more “natural” options aren’t available on the nhs or researched, but (I might be cynical) big Pharma might have issues with that!

[desquinn Partner Volunteer FMAUK Trustee]

"Shame that more “natural” options aren’t available on the nhs or researched, but (I might be cynical) big Pharma might have issues with that!"

Another way to look at it is that pharma needs to conduct multiple trials over 15 years and spend millions of dollars with hundreds to thousands of patients taking part and screeds of data created and checked and verified. And this is before it is prescribed.

Alternatively some guy can put his name on a treatment based on anecdotes and franchisee it with others and charge significant amounts of money. And that's preparing he is not just making stuff up. And call it natural.

The above is my devil's advocate and cynical take on it 😉

[Marigold8 in reply to desquinn]

you quote what I wrote but clearly didn’t read my comment very well… I state “or reasearched”. I completely agree that, especially in the age of arm chair experts, anyone can claim anything and someone, somewhere will believe.

If the same level of research was funded for non-medication related treatment it could be very helpful, especially to the people that aren’t wanting to take medication for various reasons (low efficacy, possibility of addiction, unwanted side effects etc.).

Thank you for taking the time to respond, especially with the condescending wink at the end, and reminding me why I quit here in the first place 😘

[desquinn Partner Volunteer FMAUK Trustee in reply to Marigold8]

I had read your post and was responding clearly (to me at least) in a cynical way and attempting humour. The "condescending wink" as you put it was my attempt to clearly show it was an attempt at humour. Reading and interpretation are two different things but I tend to try and give the benefit of the doubt first.

But seriously on the research side of things, pharma is self funding and has a very high attrition rate in terms of compounds and companies. But it is possible for anyone to self fund treatments. However, I am hopeful that experience from covid and from a general appreciation deficiencies in our current clinical trials model will allow what were normally more difficult to research topics to be progressed.