so I’ve suffered with fibro since 2017 and I’m finding that NOTHING is helping my pains and it’s only getting worse! This weather is not helping either and I’m feeling so useless and down on myself because I just want to stay in bed and be warm but I know that I can’t not go to work.
Im struggling with my sleep and I don’t think my work understand the issues I’m having and even though I’ve told them I can’t keep working closes because my sleep is so disturbed and I’m in pain constantly, they don’t change my shift patterns for me.
I’ve got a doctors appointment to refer me to local chronic pain clinic but I don’t know what to expect from this.
I feel so bad about feeling so depressed about this and I can’t seem to get myself out of this rut but I also don’t feel like I should complain either to anyone. If that makes sense to anyone.
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Makes perfect sense! Have you ever been offered an Occupational Health review? Could be a beneficial next step for you. The Equality Act does come into play for us, reasonable adjustments from your employer such as modifying your hours to allow you to remain in your role sounds like just what you're needing right now. Might be worth bringing it up with your employer if you haven't already. Sometimes taking back some control can make such a difference to how you're feeling but maybe speak to your GP too about how down you are just now. Take care & let us know how you get on 🤗🤗
I would think probably best to speak to your line manager initially then follow on from there to HR if you're not getting anywhere.
I'm not 100% sure though as my manager came to me over my refusal to cover particular shifts - long story but suffice to say it kinda backfired on her!😊
Are you taking any Fibro meds? If not maybe you might want to consider looking into some. Especially for sleep. I know myself that bad sleep causes everything else. Pain, stiffness, fatigue and low mood. Conversely if I've slept well I'm much better at coping.
Its awfully common with Fibro. I tried Sertraline for help with chronic migraines and had real trouble on it, insomnia and feeling jittery and hyper. I only stuck it out for 5 weeks. Amytriptyline is a tricyclic antidepressant and commonly prescribed for Fibro as its so sedating and good for nerve pain. Maybe you could ask your doctor to switch.
It all makes perfect sense. The advice that cheetiecat has given I would agree with. Unfortunately my work weren't accommodating and at the end they terminated my contract after 29 years service. I just didn't have the strength or mindset to fight it. I was awarded PIP in 2020 so I'm actually better off now financially. Lack of sleep was a major issue for me, most nights I was only sleeping for about 2 hours. My gp prescribed amitryptoline (probably wrong spelling) and that has helped immensely with sleeping. Defo talk to GP about depression, I have chronic depressive disorder and have been on and off meds since I was 15 for it. They do help however a lot of the recovery is things that you must do along with the meds. I hope life gets easier and more manageable for you real soon x
I’ve tried so many different medications for sleep and pain and it’s almost like my body get used to taking them and then they stop working for me, as stupid as that sounds!
I’m on Sertraline for my depression already but I may ask to change because I don’t feel like it’s helping much right now!
I'm really sensitive to medication unfortunately but when I was trying to find something to help I tried pretty much everything. It really is trial and error. I'm going through it again as I was diagnosed with chronic vestibular migraines this year and I'm really struggling to find something that works and that I can tolerate.
My neurologist has just recommended yet another one to try. This will be my 6th one since June. I'd also suggest looking at non pharmaceutical supplements. I use 5HTP at night for sleep. There others like GABA and L. Trytophan as well
I would like to say I’ve been through her pain clinic and they are so helpful (if you get the right team!) they will teach you how to manage your pain levels and also I found seeing the psychiatrist also helped, I know some days you just want the world to just go away and the pain takes over everything else, I would say embrace the pain clinic and maybe
I used to be a manager for a large retail company and I can assure you that providing you have your evidence of illness and you can still perform your daily working tasks (even if at a slower rate) or you need to change hours due to Illness and providing your contract isn’t a zero hours, you mr employer has to look at how to change things ! This I know for sure as I had an employee the same, however when it came to my health I could no longer perform my task so I was let go on health grounds….they even came to my home to do this !!! So be warned, if you really want to keep your job just tell them
Hope this helps good luck and if you can smile once in a day xx
I am so sorry to hear you are having such a hard time. I have just been told i now have carpel tunnel as well and my fibro and my migrains are getting worse. The Red cross gave me some information on how you employer must legaly help you out if you wish i could get you the same info.
Yes I totally understand , yes cold weather is horrid and a lot of us seem too hurt more with pain for sure, differently speak too doctor about your depression , it’s understandable you are suffering as your not felling well and having too hold down a job, like CheetieCat says there is The Equality Act which can be of help when work are not helping you, or even understanding what this condition fells like xx
Oh bless you...I know exactly how you feel. I've tried nearly everything I can think of and nothing has helped. And yes, this cold weather chills to the bone. My GP has suggested morphine but that's not something I'm prepared to take right now. I tried CBD oil and that didn't work but the 'stronger' form does help a bit more. It seems to relax my muscles, which does help but I don't think there is much out there to really help....Good luck...😘😘
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Doctors are useless!!!
Colllapsed and useless
useless b****y doctor
Medication and useless doctors
Locum doc f..kin useless!!:(
