pain and docs.

my fibro has changed because of the weather ,I am not sleeping properly ,I have pain all over ,migraines ,been to doctors to see if they can give me anything for pain and migraine ,they said they cannot give anything strong for my pain they suggested ibuprofen , it does not work it gives me more problems . So I am stuck between a rock and a hard place ,why are the doctors so dismissive of pain, surely there must be some thing out there ,I am at my wits end with my pain,with this and other problems .

[fmlife]

Am so sorry struggling,

migraine wise we are seeing if an hydrangea will help to keep the humidity right in home, if not will have a nice flowering plant for garden, could try migra lenses and other makes, they are green and block the migraine inducing colour, you could also set your screen to night light, which is more cream than pure white. there are also magnets to research.

pain wise its a slow thing to get the right pain killer levels in body with out over dosing. I wear a titanium magnetic bracelet, may wish to research magnets see if may help you

The theory is to get the right sleep which is why take promethazine elixar its an allergy med, 5mg at 5pm, it does not set me to sleep just puts me in the right sleep when do get there.

hope can find the meds that can help you

gentle hugs

[Cat00 in reply to fmlife]

Titanium is not magnetic?

[fmlife in reply to Cat00]

the magnets are inserted into the titanium metal underside

mine delivers 72800 gauss strength

people who have a pacemaker, pregnant, should not wear magnets.

ncbi.nlm.nih.gov/pmc/articl...

[Hazel_Angelstar Administrator FMA UK Staff]

Unfortunately, guidelines for chronic pain management is focusing more on self management rather than medication

Research has shown that strong opiods in general are not recommended for chronic pain and may offer little benefit, and the nice guidelines only recommend anti depressants for fibromyalgia

And while I'm 100% for using self management techniques (use them myself) - at the same time, you need to have something that helps you to get your pain to a level that you can manage using non-medication options

[griffonj in reply to Hazel_Angelstar]

The NICE guidelines are just that, guidelines. I have Fibro for the last 20 plus years. Buprenorphine patches were prescribed and I continue with them to this day. Non medication techniques are wonderful if they work, but if they dont.......what then?

The problem now is that I am Morphine dependent.

[Hazel_Angelstar Administrator FMA UK Staff in reply to griffonj]

Yes, they are only guidelines but we have had several people contact the charity because their gp has stopped medication because of nice guidelines. Also situations where a gp will not consider any alternative medications because they are not recommended.

GPs can choose to prescribe opoids etc if they feel it will benefit the patient - but many are not

[griffonj in reply to Hazel_Angelstar]

I would suggest a different GP if possible. It's a real dilemma for people isn't it.

[Hidden in reply to griffonj]

yes it is and nobody but people like us know the pain and other problems associated with this awful fibro.

[Hazel_Angelstar Administrator FMA UK Staff in reply to griffonj]

Unfortunately, often these decisions are made at surgery level, or even higher at health board level - and not taking into account how the individual benefits. Budgets often come into it as well - so it's not necessarily as simple as seeing another gp (although that can help sometimes)

[griffonj]

There may be a medical reason for their reluctance to prescribe stronger medication. It would be worth asking them to explain things to you. They are under an obligation to explain things.

[Hidden]

thank you to one and all for your advice and help and I will sit down with my gp and see what her reasons are ,maybe there is a good reason as to why they don’t want to prescribe something strong that I am not aware off .

[Chleo11]

If your GP has decided that you have migraines, you will automatically be refused any pain killers stronger than ibuprofen and paracetamol. Only exception will be Triptans for your migraines, limited to 6 a month and don't always work. Any opioid based medication will make your migraines worse. If they decide that your migraines are chronic you will get some medications that may help you but which have a lot of side-effects (usually more or less the same medic as for fibromyalgia). Have a chat with your GP but they usually don't know or understand anything about migraines (they get 4 hours training during their 6 years of studies). I wish you the best.

[Hidden]

I think is a poor situation if that’s the case , so basically we who suffer from pain day day out ,we have to just grin and bear it , and spend our days in misery because some one decides we can’t have proper help and meds .I am so sorry for having this rant just a bad day .Thank you all again for your help and reply’s .

[MsJ1]

Hi there

Not sure if this helps at all but iv'e had fibro a long time and pain the main issue. I fought the GPs for pain relief and was on Amitriptyline, tramadol, pregablin (And Duloxitine which the GP recommended ...I didn't ask for that) 5 yrs later ive been taken off all of them as they've affected my heart (BP and pulse rate/rhythm) the cardiologist told me they also shorten your life spam?

I have to admit (and its suprised me)...that my pain isn't that much worse now that im off them. It took a while for my sleep to get back to a sort of normal though. Im now back looking at self management.

In addition it was hard 'coming off' off them all, it took a few month. That's another danger, as mentioned in another post, we can become addicted to them!

It's very hard living with/managing Fibromyalgia (or it is for me) .. I have to say the most help I get is reading people's posts on this site as I know someone somewhere actually understands!

Take care of yourself however you can X

[Gavin79 in reply to MsJ1]

addiction and dependence are two different things there’s many medication that you can’t just stop taking but nobody says there addicted to them

[Hidden]

I have noticed the tablet don’t make much difference to my pain ,I think I just go through the motions hoping the miraculous cure this fibro of mine .But I realise know they don’t do a thing to help ,like you I am on most what you have mentioned ,but want to come off them ,I will have to speak to my go thanks for your help .

[Gavin79 in reply to Hidden]

daft as this may sound I know I thought I was talking to an idiot. But coming to terms with your Situation can dose make a difference learning to change how you think of the pain your in really helped. I used to lay in bed crying in pain thinking why me. But I realised it’s unlikely things are going to change. Being in a routine helps me and making an effort to try get back some sort of life I was prescribed pregabalin that did a lot for help for me but I know everyone is different but it helped me start being able to sleep which ment I’d wake up feeling better and not in so much pain I wasn’t so stressed either which also made a big difference I also made sure I was properly hydrated and was eating a decent diet and taking vit d and magnesium everyday now I have a bedtime routine I get a hot shower I’d love a bath but don’t have one although I could afford to fill thing nowadays lol I listen to a podcast and light my burner’s with frankincense and myrrh oil and keep my bedroom dark by 11pm I’m fast asleep for years when I was at my worst I stopped having dreams but I dream most nights now I still wake up sometimes feeling like I ran the london marathon in my sleep but once I’ve dragged myself instead of staying in bed I can deal with it better I hope you can’t take something from this we all no how you feel your not alone don’t forget that