I’m drained and that blinking bus cam... - Fibromyalgia Acti...

Fibromyalgia Action UK

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I’m drained and that blinking bus came back twice 😂

66 Replies

hey guys, I hop you are all coping and in a good place, I’m absolutely exhausted and if that blinking bus had stopped I would be ok 😂.

Well some of you know about my daughter G, I will apologise if this offends anyone, and if admin want to take it down, so be it.

So we traveled to hull/ York in Beverly for two day stay, my g is transitioning to be a man, and was having a mastectomy, I kind of coped with the 1st stay, for 2 days, then hospital said we had to find another accommodation for the 3rd day, that wasn’t on the cards, the only place was a house. So my husband had to drive 3 hours to get me home, there was no way I could do stairs, then another 3 hours straight back, my body is absolutely killing me, as I had to sleep on a sofer, what we put ourselves through for our kids.

Tomorrow I know is going to be completely worse, as each day after activities it gets worse 😳. Wishing you all a blessed pain free night and day.

squidges to the know, hugs to the new.

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66 Replies
Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

sending some gentle hugs. You will be dealing not only with the physical effort of travelling /staying away from home but also the emotional impact of supporting G through his surgery xxx

in reply toHazel_Angelstar

thank you my darling, he is now Jay, I feel so emotional about it all, but excited to I’m going to try for some sleep tonight ❤️

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff in reply to

wishing Jay all the best for his future - and you a good night's sleep 😴😴😴

in reply toHazel_Angelstar

thank you Hun, I slept like a baby.

And thank you for your kind words. Xx

Matrix profile image
Matrix

oh sweetie I know exactly how you feel ,glad G is getting her surgery .All I can do is send my love and hugs because I too am in a world of pain too.I pray we both get some relief .🙏🏻🙏🏻🙏🏻🤗🤗🤗💕💕💕💕

in reply toMatrix

hey my beautiful friend, I’m so proud of him, he is doing amazing with pain, I wish I was. Sending you lots of healing hugs my sweet friend, I’m with you with pain. 🙏🙏❤️🥰🥰🥰

Matrix profile image
Matrix in reply to

I’m pleased he is doing well it must be so painful but he will have his true body and that will complete him .I pray that he sails through it .My darling I’m sorry you are in so much pain .I am praying for you sweet girl .xx💕💕

in reply toMatrix

thank you for 🙏, hun, I will do the same for you. and for your kind words and support over the last year.

He’s going to be restricted for 6 weeks with arms, so it’s going to be a long hard struggle for me, lucky I have my powered chair 😘🤗🤗

Matrix profile image
Matrix in reply to

please be careful you are so unwell yourself please remember to take care of you .Like me the least little extra we do has to be paid for in pain and exhaustion ,you are very limited in movement yourself . Praying that you and G recover well .I’m so worried for you .Love and hugs .💕🤗💕🤗

in reply toMatrix

bless you hun, my neighbour is going to help me, she’s a cater so she knows how to sit him up, one thing I definitely can’t do, there is prepared meals in the freezer, M will help when he is home, but I know the in between bits is going to be hard for me, but I will use my chair, as I can’t afford anymore falls, and try and pace it out.

We will all pull together, my neighbour helps me to, she’s so kind, so I’m 🙏 for me to get through it. Don’t worry, I will be careful, and Jay knows my limits.

Thank you for caring hun. Luv and healing hugs. ❤️🥰🤗🤗

Matrix profile image
Matrix in reply to

we’ll rest assured I will be asking Gods grace on you both and for your wonderful neighbour praise God for herb.I know G knows knows your limitations but us mothers are so caring we want to do everything to our detriment and you can’t afford to do that my darling you can’t ,so let the ones who can do it and you can comfort him .That will help him through as much as any lifting etc .Love you sweetie .How’s M doing is he recovered .🙏🏻💕🙏🏻💕🤗🤗🤗

in reply toMatrix

thank you sweetie, I promise not to do stuff, I know I can’t, I know I want to push it, but even J, is saying I need you to cope, so don’t feel you have to do anything you can’t cope with, so I’m being good, truly I have no choice, and I’m one armed anyway 🤪.

Love ya too sweetie.

M is good now, other than his leg is still dark at the back, but the clinic are not bothered about it, Thank you for asking hun, I hope D and the family are all good . 🥰🙏❤️🤗🤗❤️

Matrix profile image
Matrix in reply to

well that makes me feel better for sure .D is good as are all the family thanks .I’m glad M is ok that black at the back of his leg will probably never go it’s been so long .Praying for you .💕💕

in reply toMatrix

thank you Hun, glad everyone is ok, said a 🙏 for you today, I’m hoping your pain eases, enough to cope.

I think you are right about his leg, he’s old and tatty now 😂😂. 🥰

Matrix profile image
Matrix in reply to

well we are all going the same way 😂🤣 I’m struggling badly with dizziness at the moment ,it’s quite scary at times .💕💕

in reply toMatrix

😂😂. Be careful with the dizziness, have you been checked for CFS. Hun I’ve got haematoma on my forehead fractured cheek and jaw, fractured and shattered elbow, with a plate, so please, please get checked out for CFS.

The CFS causes bad dizziness and falls, your brain just doesn’t cope, then comes the muscle waste yuck, it’s no fun 🥰❤️

Matrix profile image
Matrix in reply to

Darling I have been diagnosed with it since I was twenty ,you Are you talking about Chronic fatigue syndrome .I fell recently my face was a mess hurt hand knee .We are a mess I’m thinking 🤣 I think you are in a worse position than i because I’m able to walk but I have got scared about falling .🥰🥰

in reply toMatrix

yes chronic fatigue syndrome, bless, I didn’t have it that early 😳. We are a mess, so sorry you had a fall, and hurt your face ,knee and hard, it does get scary. I recently had a pain psychologist help me to try and trick my brain, it’s a bit like CBT, but basically you keep telling yourself I’m not dizzy, my eyes are focused and I can deal with light, you have to do it over and over, once you get the knack, it takes the edge off it, and the moment you feel it returning, you do the same again. I think I’m worse off as I don’t have carpet, ceramic tiles everywhere, and it always seems to be the hallway, that I kiss the floor 😂.. 🥰🥰

Matrix profile image
Matrix in reply to

oh bless you that must. be scary for you . I have had quite a few falls in recent years , or as you say kiss the floor like that saying . I’m going to try and craft this morning if I can . Will try and make something . . Hope you have a good day sweetie . Love and hugs ❤️🤗❤️🤗

in reply toMatrix

enjoy hun. Take care.

Luv ‘n’ healing hugs ❤️🤗❤️🤗

Matrix profile image
Matrix in reply to

Hey sweetie managed to prepare some pages for my journal .So that’s a plus . Beautiful day outside . Blessings sweet friend xx

in reply toMatrix

well done hun, it’s a glorious day here to.

Blessings to my sweet friend xx🤗🤗

Matrix profile image
Matrix in reply to

Ah thanks my sweet friend .It’s feeling a bit colder though .I’m feeling like I need a hot water bottle to cuddle D where are you can put kettle on please 😂🤣

in reply toMatrix

you nut 😂😂

Matrix profile image
Matrix in reply to

oh yes that’s me ,but it’s only because my arms so bad I can’t lift the kettle etc so he never minds .😂🤣💕💕

in reply toMatrix

he’s a good egg. Those one cup kettles are great, I wouldn’t be without mine. 🥰❤️

Matrix profile image
Matrix in reply to

he really is but so is M too we have always said we are blessed with them .🥰💕

in reply toMatrix

yep, we certainly are. ❤️🥰

Matrix profile image
Matrix in reply to

I need one of those kettles that tips or a press button on .🤣😂

in reply toMatrix

lol 😂, you can buy the tip things from Amazon, just select the one that suits your kettle. Xx

Matrix profile image
Matrix in reply to

well I didn’t know that oh thanks for that chick .💕💕

in reply toMatrix

no problem 😉😘🥰

Matrix profile image
Matrix in reply to

bless you .💕💕

in reply toMatrix

🥰🥰

Dinkie profile image
Dinkie

Please take time to look after yourself too. G has amazing supportive parents. I wish the best for all of you. Gentle hugs

Dinks

in reply toDinkie

hey hun, I wouldn’t have any more pain for my kid, he’s got our support 💯 percent and I wouldn’t have it anyway. Thank you

Dinkie profile image
Dinkie in reply to

Wish there were more parents like you then I wouldn't have to have fostered so many for so long. Bless you all. The three "L"s live, laugh and love vital for survival in this mad world.

in reply toDinkie

bless, I tithe world needs to open their minds, I’m looking after 4 more online, that their parents won’t help, but it’s not their fault.

Cotswolds25121 profile image
Cotswolds25121 in reply to

Hi Blue, hopefully you are soundo 😴 you sound an amazing person it’s a shame there aren’t more parents like you. Wishing you both a speedy recovery ❤️‍🩹

in reply toCotswolds25121

morning, yes I was soundo, I was Knackered.

Thank you, all I want is for my Son to be happy and live his life how he wants to.and many more to. ❤️

Cotswolds25121 profile image
Cotswolds25121 in reply to

exactly how a parent should be with their children adult or otherwise 👍it makes me so sad when they turn their backs on the very ones they should be supporting and love ❤️ They have a hard enough time feeling they aren’t themselves and other worries that people don’t have to deal with. You are a refreshing change 😁and I wish you all the very best. Happiness and contentment for the future 🤗❤️X

in reply toCotswolds25121

I totally agree, the stress and mental illness they go through is bad enough, I picked up on it from an early age, but I had to let him find his self being, and he did, and we support him all the way.

It would be lovely if every parent could be the same, but they run from the unknown, and they are scared or disgusted, I think I’ve got to know every gender name 😂, over the years with his friends. .

You sound very open minded to, and I find that very refreshing to, it’s lovely to hear this, and caring.

Thank you Hun. ❤️🤗 xx

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff in reply to

cannot understand parents like that - you should love your child unconditionally no matter what xxx

in reply toHazel_Angelstar

I know hun, but some are scared, there’s all sorts of reasons, but for the ones like us, we can help and encourage and nurture them, into what they want to be.. it’s such a shame this world isn’t more empathetic, - sympathetic to the needs and understanding of how people just need to exist.

It breaks my heart, for the ones I’m helping. Xx

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff in reply to

yes, people just need to accept people as people, not sexuality /gender etc

A friend has a wee one, who since he was a toddler has loved to dress up as Disney princesses, he's 5 now and loves to wear dresses.... and it's lovely to see him being allowed to express himself so freely by both parents and his big brother xxxx

in reply toHazel_Angelstar

I agree.

Aww bless him, it’s beautiful that he can express himself, so freely. I think that’s so sweet xxx

Matrix profile image
Matrix in reply to

I don’t know how they can’t accept them as you say they can’t help it after all ,it would make me love them more .💕

in reply toMatrix

exactly hun. ❤️

Matrix profile image
Matrix in reply to

❤️❤️

in reply toMatrix

🤗🤗❤️

Matrix profile image
Matrix in reply to

you wouldn’t think in 2022 that this would still be happening ,these children know themselves from a very young age that they are in the wrong bodies,so let’s be kind to them as it’s so stressful for them .🙏🏻🙏🏻🙏🏻🥰💕

in reply toMatrix

exactly hun, shame the government don’t get onboard, so many avenues they have blocked or trying to block. 🙏🥰

in reply toDinkie

hun, I meant to mention about you fostering, sorry I was so tired, without peeps like you, some of the kids don’t stand a chance, but amazing people like you, give them the gift of life to make something of themselves, so bless you for your kindness and ability to help these blessed children.

I hope you are coping, how are things now, silly question, but I hope you have been able to grieve and get some relief.

Dinkie profile image
Dinkie in reply to

Bless you Blue. Fostering was great, the children were wonderful the parents on the whole very grateful but goodness some of the social workers were hard work. I know they are stressed and overworked but sometimes they were far removed from the real world. I was relieved to retire from it all.

It's been 16 months and I'm sort of into a routine now. I still miss him every day but the garden and the dogs keep me busy on the days I don't work. Life is different but I'm not the first and I won't be the last to lose a partner of a lifetime. Today would have been our wedding anniversary. Thank you for asking.

in reply toDinkie

well at the end of the day you brought some special kids into this world, bless you for that, hard graff.

D you are so strong, I don’t know how you manage to keep your chin up,

HAPPY ANNIVERSARY sweetie ❤️Keep on doing what you are doing, you are a brave worrier. X

Dinkie profile image
Dinkie in reply to

Onwards and upwards is the only way along with a little bit of humour, kindness and tolerance and the amazing supportive folk on here. Life could be much worse.

in reply toDinkie

go girl.

Matrix profile image
Matrix in reply toDinkie

oh Sweetie I’m so sorry you lost your partner ,it’s so awful I would imagine .Happy Anniversary is this the first time without him .Don’t keep it in if you need to cry let it out sweetie .You are so positive if you ever need to offload because some days are so awful you need a listening ear just send pm and I will chat with you.Sending cyber hugs and blessing to you .🙏🏻🙏🏻🙏🏻🤗🤗🤗🥰

Dinkie profile image
Dinkie in reply toMatrix

bless you. I lost my husband 16 months ago - sometimes it seems a lifetime ago but other times like yesterday. I’m thankful we shared our lives for 40 years😁

Matrix profile image
Matrix in reply toDinkie

I know it’s ups and downs and I really feel for you ,it’s the one thing I dread too .When you have been together as long as you have it’s such a wrench .Just taking one day at a time is all you can do right now .Take care sweetie sending hugs and love🥰🤗🥰🤗

Kitten-whiskers profile image
Kitten-whiskers

Bless you Blue, I hope you can rest up soon, thats a lot all in one go. I hope all goes well with the surgery. Sending virtual hugs xx

in reply toKitten-whiskers

morning sweetie, I slept all the way through, miracles do happen lol.

Thank you, he is doing well. Xx

Kitten-whiskers profile image
Kitten-whiskers in reply to

Thats absolutely brillant 😊 xx

in reply toKitten-whiskers

thank you Hun. Xx

Arymretep profile image
Arymretep

Thinking of you Blue, Take care of yourself, love to M & J 😘 xx

in reply toArymretep

hey hun, thank you.

Love to you and P. Xx

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