Just back from Tribunral and I am drained and highly emotional


I just found this site and had an appeal meeting today after a 3rd ajournment they old me this was the last, The reason no one can find 7 years worth of GP notes. I ant handle how they make you feel like a second class citizen and just being there is degrading you feel like a liar even though your not.

I had a panel of 3 women who did adjourn again until this highly irregular loss of patients notes is sort whih I was told would not happen. I know where they are my old GP is witholding them so I wont get the award, long story the practice manager was stalking me trying to catch me out on fcebook and stuff on her own time at home.

Main thing I came away with today was it happened for a reason but I have one question I candrive very limitedly short distances and when i do I aggravate the knees and end up in bed for days but the rep said if you can drive you cant get high rate mibility yet as soon as youdo they let you get car with the money??? How can this be justified? I qulify under secction 12a postexecersion malaise and delayed pain that how I can drive with is still very limited....this is my fourth appeal visit and I can exhausted I broke down saying will I give up put in a new claim I can remember yesrerday leta lone a year ago, and if I am asked at the next one I will tell thenthat this is part of my condition, I left really pset because my children were brought into it and that hen I ask sor supprt fro SS disability for direct payment to help me look after myself for my kids I was refered to child protection and just finished a years battle for custody of my children because I was disabled. I won the order was withdrawn but between that and the apeal there is nothingleft for me to give everything seems a contridiction you not allow to say you can drive then they haand you money for a new car?

How can I remove myself fromt his situation and think obectively and relitively abot this situation without disruption of of my emotional amd mental wellbeing I feel like Ihave been hit by a bus my whole body id throbing and my legs are secerely swollen tonight after all the upset. Are there any parents that have been awarded?

Thanks for listening


16 Replies

  • Hi angeldebs

    I'm so sorry to hear of your distressing day. It is so unfair when people who are supposed to look after your health and wellbeing treat you this way. Although I can't give you any advice on your situation I'm sure there will be someone on the forum who can. I will pray for a positive outcome for you and offer you someone to offload to, anytime.


  • I also wish I could help you but I live in states. Here we can get a representative to help us or a lawyer. They will usually help but they take a portion of your back settlement for their fee. I don't have a clue about there. Hopefully someone can help you. Hugs

  • Hi Debbie, this is shocking, I feel for you deeply. I hope you get all the help you need to fight on, win and get on with the rest of your life. Life is hard enough without the added stress of uncalled for benefit tribunals x

  • I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful, informative and loads of fun!

    I am so genuinely sorry to read of how you have been made to feel by all of this, and I sincerely hope that you can find some resolution and these issues. You raise a very interesting point about driving, as the mobility component of the benefit can be used to lease a new car.

    I have pasted you a link to the benefits and work website cache on a report on Tribunal services. So I hope that you find this useful:

    Benefits & Work Website - Tribunals Services:


    I have also pasted you a link to our parent site, Fibromyalgia Action UK which hosts loads of useful Fibro information:

    Fibromyalgia Action UK:


    I want to genuinely and sincerely wish you all the best of luck.

    All my hopes and dreams for you


  • Thank you Ken

    I have been through hell and back from social services trying to take my children I just won my case in court they refused to see me as disabled and o had to pretend I was well which was excruciating painful just ti win I have had to hide my disability because I don't have DLA status they said no was disabled so I was blamed on neglect because I could get out of bed to help my son to school some mornings the health tut dine nothing to support me to do this. It was all so wrong and that tribunal was another pressure I didn't need.....in fact moat people are in their 40s/50s with it and dont have that pressure do you know I couldn't find one reliable source of support for disabled people with children in Mother Ireland not one.

    Tha k yoh again


  • I want to genuinely wish you all the best of luck and I sincerely hope that your problems come to an end soon for you. Please take care of yourself.

    All my hopes and dreams for you


  • I could never have agotten through my application for disability here (in US) without legal help. It's just too complex for my concentration and the attorneys don't let doctors get away with losing records.

    Like mags said, this is shocking. What a shameful, discriminatory, unjust way for your GP to act, and it is amazing the tribunal itself won't do something!

    I am truly sorry. Saying that you can drive makes you ineligible is horrible. I hope that things will turn around for you, and you won't have another adjournment, but a positive outcome. My prayers for you.

  • I am so sorry.yes I know what you mean had a mobility car but at assessment said I drove there (only 5 minutes from home!) .now car gone back been house locked .going to tribunal .

    As ken says go to benefits & work also contact a local charity to give you practical support with your tribunal .

    I have signed over my responsibility to my adviser .

    Do you have PRAMA care who might give extra support to you?

    Is 7 years relative as panel want to know how you are affected now so will your present GP / consultant give you written evidence ?

    Hang in there Hugs

  • They have all the consultant and doctor s letters they want to see the doctors notes which have magically disappeared after a dispute with old doctor it's their 2 years they want however there are 7 consecutive year missing in get no support I asked for direct payment git turned down. Point blank I have a tribunal rep. But you don't know if the notes aren't there until you get there.

    I said that I drive 5-10 mins max 3 times a week only if it is absolutely necessary I live in my bedroom because of the commute around home I have gained 3 Stine in 2 year due to lack of mobility I'm only 35 and I am I'm in trouble with social services if I ask for help with disability and suffer ifni don't because of my kids they see their mum in bed 80% of the time. So unfair.

  • What's prama care I am in NI

  • It seems you can't win with the driving- I'm not allowed to drive as I was in a car crash six years ago which left me with psychological damage so bad I regularly have severe panic attacks in a car which can cause me to have seizures. Due to this I have a concessionary bus pass.

    However I was quizzed on why I had never learned to drive before the accident! It just seems that you can't win either way!

  • Hiya PRAMA is a charity which helps with whatever your needs are at the time. Even if you want to go out with children to a park...

    That would be great healing seeing them play in the open air.

    Look up local support groups

    All helpers to be screened before coming into your home eg criminal/,children / adults check

    Where is NI

  • sorry northern ireland

  • What a remarkable lady you are to be able to say, after the hell you have been through, "How can I remove myself from this situation and think obectively and relitively about this situation without disruption of of my emotional amd mental wellbeing".

    When faced with chaos I get a big blank piece of paper and write down the key issues in separate bubbles so I can see them clearly. I look for links between the issues in order to try to work out where to start because you can't do everything at once...you're only human and there's only one of you. What is the most important/critical issue to start the ball rolling with?

    Maybe it's help with the kids? List your options? Start with the obvious...partner, family, friends then move unto charitiies etc. Maybe think about how you plan ahead to deal with shopping, meal planning, laundry....think basics....If you can get some structure in place that facilitates keeping the basics jogging along that would be one strain lifted (hopefully) and then no one could accuse you of neglect. Forget the extras for now, just ensure the essentials are covered for now.

    Then the issue of your medical notes....sounds like you need to know exactly what your rights are in relation to obtaining your medical notes in NI. Ask CAB? Your GP may be in breach of the law etc. Certainly in England every adult has the right to their own medical notes for a fee. Keep a log of every phone call you make, date, to whom, what said etc, copy of any letters you send etc.

    I hope I don't come across as lecturing you......not my intention....you are clearly a capable person to have coped with so much already....but I find if I can feel I have some control in any given situation it helps my mental and emotional well being. ..hence my suggestions. Be kind to yourself and show your kids you love them with hugs and kisses and warmth and shared fun....even if that is from your bed (control central!)...none of which needs money......toys get broken and discarded but parental love lives forever. And encourage compassionate behaviour in your kids towards your heallth problems. Ask them to help and shower them with praise for every little bit of help they give. Wishing you courage and positive breakthroughs in your situation. You deserve it.

  • Hi just want to say good luck. With every thing ,I had my 2 nd tribunal 3 weeks ago and had letter explaining why I had not won again because of inconsistency because I forgot they wanted to no what I could not do 18 months ago when I applied ,and lack of support from advocate I applied in March 2014 and was assed November 2014 and didn't go to tribrunal till July 2015 and they wonder why I can't remember and am treated like I am dishonest. To say I am unhappy is an understatement .

    I know how distressing all this is for me so the fact you have been fighting to keep your children as well it must be hourendusfor you ,I wish you all the luck in the world ,

    Yes and I get what you say about driving it's so uncomfortable and I drive a manual car because I can't afford to buy a automatic it hurts but it means I get to where I want to go . What else am I suppose to do it painful in shoulders and arms and legs but when there's no one else to get you about what else do you do . I can't work out how u get a car on diability grounds if you live alone it impossible ,

    Can you not by law get your Dr notes they must be on a data base on the NHS data base as if you go to hospital they can access them just a thought .

    I hope you get the help you need ,

    Be kind and gentle with yourself

    Take care

    Chris 😘

  • Hi guys don't know if this will bump up but I was finally awarded last year with low low and got nearly 2 years back pay.

    But my renewal went to pip and I was finally awarded enhanced rate on both and I just wanted to share that things had turned around on that front.

    Thank you all for your amazing support across the world andnhere in uk xx

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