Anything that helps!

[Dianne51]

Does anyone have Oromorph prescribed for their Fibromyalgia. My doctor has discussed it with me.

[Cat00]

I was prescribed it when I was pregnant bc they'd obviously taken me off all my other meds. It had no effect on me so I gave it back to them.

[Jaykaydylanmack]

Hi ya dianne51,

So Yeh I have been on and taken oromorph, so it's liquid morphine, i had an 8 day stay in hospital then another 16 day stay just before my diagnosis as they thought it was M.S. So I was on alot of drugs during the hospital stay to try and stabilise the pain, 2 of those drugs were oromorph and MST which again is morphine but it's a slow release 12 hour tablet, so 1 taken in the morning and one again at night.

As the other reply correctly says about being the wrong drugs for this type of pain and condition, that's totally correct.

Now I'm a good 30 minths down the line and I'm in the hands of a superb haematology, neurology, and also chronic pain management team, well the consultant at the chronic pain management clinic told me those type of family of drugs I.e. Morphine, are not the drugs to be on and in fact don't help the condition at all, not too mention the addiction to them too, I've now just finished on the MST slow release morphine tablets only last week, came off them completely and I have been off oromorph since January.

I would never advise another fellow chronic pain sufferer on what to take and what not to take because I know when the pain is unbearable then I know the thought is there to take anything that will help. I've thought that myself so many times, but all I can do is pass on what's happened in my situation and hope that it helps you, its hard to come off them and lower your dosage when you don't have anything else to compensate to help with the pain so if you can avoid it then please do, and ask your GP to refer you to the chronic pain management clinic as they are specialist in this and know exactly what meds to put you in and what's best for you both short and long term.

Hope this helps, if I can help with anything else then please just shout and I will look out and reply.

Oh and the meds I'm in are:

Duloxotine 60mgs per day.

Pregablin 400 mgs per day.

Cocodamol 500/30 8 per day.

Naproxen 500mgs x 2 per day.

Carazette x 1 per day

Omeprazole 20 mgs per day and on a good note and away of prescription meds,

I'm on alot of vitamins to help me.

Hope this helps.

All my love LC xxxx

[Hyacinth64]

Hi Diane51, I alternate Tramadol and Oromorph depending on my level of pain and what I have to get done that day. It knocked me off my feet to start with but I find it helpful now I'm used to it. I do have other conditions along with fibromyalgia and it helps them too. Make sure you're well hydrated and eat enough fibre as it can seriously constipate you. I really only take it when I have to.

[Gaye1963]

as another respondent said hard to advise someone with chronic pain on what to take but I'd be wary about morphine because of the constipation it causes -- that creates a whole other world of difficulties.

I'm on a baby dose of duloxetine (20mg) which has changed my pain hugely. For me the only other thing that really helps is exercise, but I have to be careful not to over do it

[2pods]

I came off Dihydrocodeine, and Naproxen (I think I may have an allergy to Naproxen. The tablets would burn my mouth and throat) and my doctor replaced them with 20mg slow release Morphine twice a day, along with 28 Sevredol 10mg Morphine tablets to be taken 4 x daily when needed. My rheumatologist also gave Etoricoxib as I have possible Anklyosis Spondilosys.

This is working out quite well, whether Morphine suits Fibro or not.

I've been through different Codeine doses, Amitrypyilene, Gabapentin, and a few ywars of Pregablin.

Unfortunately, due to the NHS backlog etc, the MRI I was supposed to have before I saw Rheumatology again has given the consultant pause for thought.

He's now saying he thinks it's all Fibro unless an MRI appointment turns up with AK markers, and has written to my GP regarding my pain relief, so that could be the end of morphine in my treatment, as he wasn't keen on me having it anyway.

Sorry to ramble, but the salient point is that, at the moment, it's helping me. My pain is down to "bearable" and I'm getting better sleep.

HTH

[Masil]

Hi I do have it and I am also on mst slow release morphine 60mg twice aday but do have other illnesses that cause widespread pain aswell as the fibro so it all depends on what you and the doctor decide it is very addictive and I very rarely use the oramorph at all as it has horrible side effects as well as the constipation it's terrible stuff really but its really your decision at the end of the day .Have you tried the other th8ngs such as tramadol amytriptyline duloxotine pregabapentin and the others ? Just think very carefully as once you start this you have a long road to get off it again , sorry not much help but stay strong remember we are all here to help and support you any way we can and please let us know what you decide to do and how things go for you take care

[Butterflybeauty]

I have it for severe pain. It doesn't remove the pain but it dulls my brain so I can get my pain score under 7 and then can cope with it. Otherwise I am screaming or crying in uncontrollable pain. I have it combined with diazepam to relax the muscle spasm. I don't take it regularly but I can't tolerate any of the Fibro drugs as I have had major reaction to gabapentin and prcegablin. None of the other pain killers touch me. Mostly I control pain with an electric heat pad. For me it's that choice or my partner calls an ambulance as I am screaming. I lose the ability to walk so it becomes a real problem. I don't like taking meds and I hate not being able to think clearly so I use this as a very last resort but when I am bedbound it becomes my only option that works. I have been through several years with pain clinic. I would say you have to find out what works for you. For me the worst pain is from constant muscle spasm. I have physio and just started on baclofen too