heat sensitivity

[Emmasuperfloof]

hey guys,

does anyone else find that this hot weather has made you feel worse than you normally do?it's really knocked me out and I've basically slept , it's made me feel like I have no energy to do anything, I don't like it

[Arymretep]

Hi, yes it knocked me out too, I had no energy to do anything, thankfully it’s much cooler here today, and raining , I never thought I’d look forward to rain lol☔️

[Ellie1991]

Totally i have been having ice baths like mad and the cold has helped alot

[Malwimmy27]

Hey Emmasuperfloof, I seem to be better in the hot weather depending on how much I do. I try to get into the sea regularly, as this seems to help. Local clean rivers are nest as they're colder.However, the heat can knock me out and I sleep for 3 or so hours in the afternoon/evening.

I'm sorry the weather's making you feel so whacked out. Staying cool would sometimes work for me, not really an option at the moment.

Hopefully, it'll be cooler in the coming weeks.

[Coll82]

Hi Emma, Yes I’ve been so ill during the hot weather it’s been unbearable, I hope you feel better now it’s a little bit cooler xxx

[Diolch1]

Only saying yesterday how my joints have been worse during this heatwave.

[Fra22-57]

I don’t sleep well anyway but have supper struggled to sleep in this heat.So don’t know whether it’s lack of sleep or what but certainly feel ill .Love it when it’s great weather.They say we Brits always moan about the weather don’t they😂 But it certainly makes me feel like I’ve caught something when actually it’s just the heat making me feel grotty

[Aussielady2]

I feel your pain. I live in Australia and dread Summer every year. It really knocks me around and air conditioning is essential. I guess you don't have aur conditioning? Sadly our bodies don't know how to regulate our temperatures like other people.

Christmas here is a challenge as I am totally sapped of energy on the day. My family dont understand how the extra work on top of the scorching heat puts me into a flare.

I hope you get some cooler weather soon.

[MusicalKitty]

yes, definitely, I think because when you have Fibromyalgia your body cannot regulate it's temperature properly. We are sensitive to both hot and cold temperatures.

[GrumpyTired]

Definatley, it really aggravates that burning/tingling skin sensation I get with Fibro + the disturbed sleep turns everything up a notch too

[Welshcatlady]

Yes the hot weather has been affecting me too. I don't sleep well, lucky if I get a couple of hours and then wake with the pain in my lower back and lower legs. So then I have to get up and take some Co-codomol and then sit for an hour or so waiting to get some relief from the tablets, then it's back to bed for another couple of hours sleep if I'm lucky. Then I feel totally drained the next day. I have been in constant pain for what feels like weeks now, and struggle to do any chore at home. However cold weather doesn't help me either. Fibromyalgia really sucks!

[Faes]

Hi yes it has been awful, I thought it was only me , and felt quite guilty as I was unable to do anything and just sleeping all the time. And the pain was unbelievable. It so nice at the moment as its been raining.

[Kala83]

Hi, yes I’ve been exactly the same, I’m glad it’s abit cooler now but I still can’t seem to shift this sweating. Hope you feel better soon too Xxx

[Mac333]

Yes this hot weather has knocked me for six. I can't do anything it is the worst thing ever. Everything hurts and the fog is so extreme all I can do is try to sleep and stay in the dark.

[PenelopeClearwater]

Yes - I can relate. The heat has made my hysterectomy scar tissue puff up, so that pain is excruciating… plus it has caused my worst fibro flare yet!

Cooler days are coming and we will get through this 💙

[Emmasuperfloof]

It's absolutely tiring, it's made me feel totally incapacitated, I was diagnosed with fibromyalgia in the winter, I didn't even expect the Hest to affect me this much, I'm so glad that I'm not the only one and that all you guys have similar experiences to me x