Joined up to this forum due to restless legs syndrome. But looking at all the things going wrong with my body lately I would think that I've got Fibromyalgia. I've had an neck/ headache for longer than I can remember and Irritable bowel syndrome is killing my sleep more than the RLS. But I put it down to the really bad myoclonic jerks inflicting real injury as I'm not just flying my legs about, been giving my head a good shaking too. I've also get a lot of pins and needles in my arms and hands that I put down to the jerks.
The jerking happens day and night every time I try to really relax. It's like I'm allergic to relaxation, you should see me when I try to meditate, I look like a madman. I can only do walking mindfulness meditation and that can bring peace but cant make up for sleep loss like proper meditation.
Got the extreme tiredness down to a tee also plus I never have any sleep quality at all. I always feel like I'm coming down with something so flu-like illness really says how I feeling most days. I also have strong markers for ADHD (only had the one apportionment for this) but that could be the fibro-fog. I have to go over every thing I write again and again and some times it makes no sense and is really frustrating. I've been working on this post as of this line for about 30mins.
Depression and anxiety is quite bad. My self worth is well messed up. Been getting a lot of blackouts or close as you can get with out passing out. It's bad enough tho that I tend to not know where i am and who is about for several seconds after. Had the odd time when my body seems to be trying to pump the blood to my head when it happens. Hard for me to explain that one but it's different to the jerking it really seems like the body is pumping the blood.
Now to my question lol well kind of
I think my response to pain is within normal range other than stubbing ones toes dose seems to go on more than it should but ant that normal? I thought it was till I read the symptoms now I cant tell.
So can I have Fibromyalgia and not have the extreme sensitivity to pain?
It seems a better fit than just RLS. The brain/movement specialist I'm seeing has stopped my GP from testing any more of the medications the neurological/RLS specialist has gave him. I have been quite angry about this and thought the brain guy is just wasting NHS money by doing more testing but I can see now there might be more to me than RLS.
Been so long as the original neurological/RLS person I started with quit her job without any notice. So I'm at braking point now for sure as I thought it was good as the new one gave a big list of drugs to test unlike the first one did. Had a brain scan that was all clear but been several months and still not even received an appointment for the brain guy.
Anyway I think that should do for now. I've impressed my self to get this much out in one sitting. It really has taken me a long time and I hope it is readable