How do you manage it?
I’m really struggling at the minute and need new ways to help me manage my symptoms.
I have a almost 5 year old too and feel like I’m letting him down because I’m too exhausted to do anything.
It’s really getting me down. I’ve taken today off work because I was so bad.
Advice words of wisdom greatly appreciated
Hi
I'm so sorry you are feeling so rotten. Have you got anyone who can help with your little one. It's not your fault!! I had to take ill health retirement in June 2018 cos of this and many more conditions. My boss was and still is great m u have a great support network of family and friends and all of you on here. I do hope you have help. We are all here for you. Love and hugs Lynne xxxx
Thank you Lynne
Unfortunately family and friends are 30miles away so it’s not easy to just drop in or anything.
I have my partner that helps when he can but he works long hours and I hate putting on him but he’s great he kinda knows when I’m needing extra help.
That's good that your partner helps but you must also tell him how you are feeling, he will know you aren't moaning and can see that you are in terrible pain. Love and hugs Lynne xxxx
Is your little one in school yet? If so it might be good to get out of the house a little; go for a coffee or something. Do you have a Library? If so they usually have lists of groups which meet weekly; you might find some inspiration there.
Where I am there is a crochet group, museums which are always looking for volunteers, and all kinds of odd little groups which may spark your interest. I find staying within four walls is depressing, and do my utmost to get out of the house, even if its only for an hour.
I've been same have 2 children ones 4 and other 6 and my work I am struggling I just keep struggling ive cut my hours I split 12 hours in half shifts to and I am still struggling just keep think positive I do cry some days after some shifts cos I've struggled that bad but i want my boys to have the best they my world x
Hi
This must be so hard for you.
I had to take ill health retirement in June 2018. My boss had tried everything, she was and still is brilliant. I do have many conditions which doesn't help!! I'm lucky my family are grown up and I have a great support network of family and friends and all of you on here. Do you have anyone you can call on? love and hugs Lynne xxxx
I too have a 5yr old i feel the exact same guilt that i can't do the things i should be able to do with him worried sick about what kind of life he will have having a parent like me i got ill just after i gave birth to him and have had no support from family,friends or a partner if fact i have no friends anymore and my relationship with his dad ended because of the fibromyalgia it's ruined my life and honestly have no idea how i get through each day there's no way i could work a normal day for me is to take my boy to school come home go to sleep till it's time to collect him from school it's depressing but it's the only way i can do the things that need to be done after school like making tea bath time reading etc. i have recently been referred to PARS by my GP so I'm hoping to get some good advice with light exercise i can try at home and finding the right diet although i know it will take a good while I've learnt slowly is the best way to go otherwise i crash and burn and that achieves nothing good luck i hope u find some peace soon 😁
Slowly but surely - wise words from Milton. Unfortunately with this condition you cannot be rushing, pushing yourself and feeling guilty is the worst as it will effect your mental health without you realising it. This will give you flare up and so on.
I had to resign from my job because I just couldn't do it. My job was very physically and mentally demanding. When my memory gave in I said to myself : that's it enough is enough.
It was very hard on the beginning financially as I have two children but I have a husband. Still I was earning good money and suddenly all that was gone and my world crashed.
But now I can spend much more time with my children. I can be a mum, proper Mum , not half dead mum.
That's worth more than all the money on this world. Also because I slow down , I had time to learn about fibro, attend pain management - look after myself.
You can find your support network , it's out there. You have to ask, look for it , fight for you and for your family !
Sorry for being so blunt but that's the reality. Especially if you don't have no one close by.
You can do it , you are more strong than you think !
Good luck 😊👍
xx
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