vibrations

[lifeofpain]

hi

Does anybody suffer with internal body vibrations ?

have had for 6 years really gets me down no drs can help.

Anyone have any answers ?

Fibro and all its issues are a challenge

karen

[LoobyM]

Hi Karen, yes I get these a lot. In fact they were one of my earliest symptoms pre diagnosis in 2020.Funnily enough i am just sat outside and there us an electric fan on the table, when I put my feet on the table this is exactly how the vibrations feel. Its awful.

Do you get muscle twitches and cramps too?

[lifeofpain in reply to LoobyM]

Hi yes i get cramps and twitches. Pain is so bad i paralyses me. I have tried everything for vibrations nothing helps. Where do u live ?

[lifeofpain in reply to lifeofpain]

How do u cope ?

[LoobyM in reply to lifeofpain]

I live in East Yorkshire. Have you tried magnesium?Like with most fibromyalgia sufferers, I have good days and bad. Days where I just get on with it and days where I don't feel like I can cope. Walking is good for me and my legs, where most if my vibrations are and I also use some small weights for stretches. Are you in the UK?

[lifeofpain in reply to LoobyM]

Hi yes i am in hertfordshire. I take vitamin b complex. Magnesium as well. I walk a bit then get pain. I get good and bad hours in the day. We just have to cope.

[Dinkie]

Yes, it's like sitting on a permanently vibrating phone. It comes and goes, like most of my fibro symptoms. Fibro likes to keep me guessing as to which symptom/symptoms I will get today. No vibrating today just the IBS, muscle twitches and stabbing pains, so quite a quiet day😁

[lifeofpain in reply to Dinkie]

Its all horrible i hate the vibrations. Where are you based ?

[lifeofpain in reply to Dinkie]

How do you cope ?

[Dinkie in reply to lifeofpain]

A sense of humour and a positive mental attitude😁. The members who have been here a while know that when mattoid-mags and myself get together there’s a lot of daft debating and jokes

[E3178]

Yes, strange isn't it

[Patdoyle]

Yes I get the internal vibrations like a mobile phone is vibrating in my pocket but it is inside my body. I get some very strange symptoms

[lifeofpain in reply to Patdoyle]

How do u cope ? What do the drs say ?

[Patdoyle in reply to lifeofpain]

I try my best to ignore the symptoms because I’ve had this for around 12 years and seen neurologists rheumatologist and cardiologists and they don’t seem to give any explanation for the symptoms. I’m waiting to see yet another neurologist but still waiting for an appointment. This is to check out my new symptoms which is shivers down my spine even when hot. My GP couldn’t tell me what it was likely to be either.

[Gembob75]

Yes I get these! Didn’t realize it was so common to us fibros. It’s comforting to hear I’m not alone. It’s so hard to communicate how they make you feel too.

I’m based in herts

Magnesium has helped a little x

[lifeofpain in reply to Gembob75]

Hi where in herts ? I am in herts

[Gembob75 in reply to lifeofpain]

Bushey

[lifeofpain in reply to Gembob75]

Hi i live in bushey where in bushey are u perhaps we could meet up ?

[Gembob75 in reply to lifeofpain]

North Bushey, off of bushey mill lane. You?

[lifeofpain in reply to Gembob75]

Bushey heath. Which hospital u under for fibro ?

[Gembob75 in reply to lifeofpain]

I’m under UCL as I have antiphospholipid syndrome too and was lucky enough to get referred to there. I’m 40 and was diagnosed in 2019 with fibro

[lifeofpain in reply to Gembob75]

I dont know of antiphos ? I have autonomic dysfunctionPots

Fibro

Am under stanmore orthopaedic.

Have been on morphine for years then had to come off.

Its hard you are a lot younger than me.

[lifeofpain in reply to Gembob75]

I just looked it up did they diagnose with a blood test ? How do they treat it ?

[Gembob75 in reply to lifeofpain]

I had a TIA at 30 when I was at work. I’ve had a mini clot on my spine too. Only case of that at UCL ever. I’m on blood thinners for life and a whole host of other nerve pain meds for nerve damage to my left side.

Fibro has become unmanageable and I had to give up my job as a teacher.

I now have lidocaine infusions every 3 months for the pain.

I’m also using the app ‘curable’

[lifeofpain in reply to Gembob75]

Is ur fibro pain bad ?

[lifeofpain in reply to Gembob75]

How old r u ? I am 57 had fibro since 2007

[MaggieSylvie in reply to Gembob75]

lifeofpain, I'm from Bushey! Been away a long time and couldn't afford to live there now.

[Gembob75 in reply to MaggieSylvie]

It has become ridiculous here. Constantly changing too, and always battling building on green spaces

[MaggieSylvie in reply to Gembob75]

The friend I grew up with talks about "much gentrification". She has moved away also.

[lifeofpain in reply to MaggieSylvie]

Where are you now ?

[MaggieSylvie in reply to lifeofpain]

I am in the Colchester area, though close enough to several other sizeable towns. I feel that Bushey is a good place for musicians, though I'm not sure that I would have had the same opportunities that I got when I moved up North. Still, very sad, even now, some sixty years on, to have left my beloved village (not much of a village now!)

[Hidden]

Hi, I do and have for a few years. I mentioned to my GP and he said he'd never heard of it but I was the 2nd Fibro patient to mention that week. If you haven’t already, I'd mention to you Dr.

I also get internal tremors. I have Lupus too, so unsure which this symptom belongs to. I do take B complex and separate B12 (when I remember) and magnesium glycinate supplement before bed.

[Blueoxo]

Yes, I had them for about 2-3 years. Ok now though, I still get it slightly now and again I think it was caused by anxiety but I didn’t realise this at the time

[DJK99]

Hello... I totally empathise. I've had this for decades. I used to think the neighbours had the washing machine on full spin all night...This in three different homes (ie I moved, not a multi-property owner ;). They didn't, which really surprised me. I just googled it now and there is a mention in this page of info of arm and leg vibrations... for me it feels like the whole body... but definitely v uncomfortable in legs and arms.. so.. fits.

hss.edu/condition-list_fibr...

Lots of info on Google on it being anxiety... but I know that it isn't that... I'm just not anxious. And Parkinsons onset and also MS. Maybe have a look round the web and see if you can find anything more useful?

I take codeine if gets very bad... and MUST stay very hydrated and add some fruit juice to it although not sure it helps.. just exhausted by it all in middle of night and my bod craves... makes a big difference, although lots of trips to loo all night.. Hey ho.

Hope this helps, and so sorry you're/we're struggling.

D

[Countrygirl20]

Yes I suffer with this as well. It feels like everything is juddering inside, even get it in my eyes. My GP prescribes Diazepam to help reduce symptoms, because it makes me feel like I'm physically shaking, I hate it. When this happens I just rest up and take the Diazepam. It doesn't stop it, but it does reduce the symptoms and makes me feel a little more comfortable

[Adlon57]

I get it in my body, people notice it, my optician "What's wrong with your hands?" I feel okay, but my hands are annoying especially, don't obey themselves, I don't want to take anything for them afraid of the side effects, I have epilepsy, so I know the side effects of diazepam, only fool yourself with that stuff. Feel like a real bit of exercise 🙄would draw it out of my system, unlikely at my age 66?

[Gaballetto]

Yes, . I get them for a few hours after a long car ride on bumpy back roads, and used to get them after using a ride-on lawn mower on our farm. Not nice