Don't give in to fibromyalgia

Hi I'm 62 just found this site at 3am in the night as can not sleep l have had fibromyalgia for just over 3 years l was diagnosed after l had a heart operation for a hole in the heart before this was found l was working around 50 hours a week as a care worker l also suffer diverticulitis. I am taking gabapentin cocodamol and morphine .l have good and bad days l am unable to work now due to the fibromyalgia. I miss working and l am so frustrated on how little l can do in a day now compared to what l used to do l have to take my time to avoid having what feels like knifes stabbing me between the shoulders that reduces me to crying with the pain but just take your time as some days l can manage to do more than others l would rather try than just give in to this condition ..but l do think once you are digagnosed l was sent away to just get on with it and no support l should l need to go to my doctor with any other condition it always comes back as being down to my fibromyalgia

to other's suffering from this condition please you are not on your alone and avoid stress as l find it makes me worse hope something l have put helps sorry it's a bit long l will be trying to get a bit of sleep now thanks

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  • Hi

    I've had fibro for about the same length of time, it's very frustrating not being able to work or carry out things you previously thought nothing of. Pacing yourself is one of those things we seem to learn gradually and reducing stress is certainly another trigger.

    GPs do seem to put things down to fibro if it's aches and pains but please not everything is fibro related. If it's a new symptom it's always worth getting it checked out. Fibro doesn't seem to come on it's own we all seem to have other health problems along with it which vary greatly from person to person just the same as fibro we all suffer differently.

    This illness makes us yearn for the life we had and the existence we hav, others don't and can't understand what it's like for us and many still think it's put on or an excuse to be lazy. I wish people could spend a few days in our shoes to see what fibro reduces you to.

    Take care xx

  • Thanks for your reply it's good to know we are not alone with this condition what helps me get through when I am feeling down is that there are a lot of people out there that would probably swop what I have for something life taking they are going through l have still got the opportunity to see my family and grandchildren grow up even though I cannot play with them as l once did hope you all have a good day x

  • Hi hope you are keeping well the weather is a little better hear today in the West Midlands hoping its OK where you live. I am not feeling to good today it feels like my body is in tight knots just taken the meds and trying not to cry l feel such a idiot that my body is doing this to itself do you or any one else feel the same l think 🤔 it helps to share my family are good but don't want to worry them any way let's all look forward to the summer and hopefully feeling better luv all

  • The weather in Aberdeen was really nice yesterday, it felt as if spring had arrived. I've been helping my partner with his mum and dad moving into sheltered housing. It's been so tiring and my body is in agony, unfortunately there is no other family who can help, so it's just the two of us.

    We all have days and times when we feel so useless, our bodies feel like it's our enemy. We just have to keep going, cry if you need to it's a release for the stress and pain. Try to take things very easy do what you can when you can and do let your family know you are in pain. They worry about you anyway and probably wouldn't be happy if you kept your pain and emotions from them.

    Take care of yourself.

    Linda xx

  • Thanks for your advice hope all went well with the move and you will be able to recuperate after it as soon as possible and do something nice for yourself all the best luv Carol.

  • hello Birds, sorry to hear you have fibro too. i totally understand what you say about working as i have had to greatly reduce my hours of work. i too get frustrated at how limited i have become in doing what healthy people and pre-poorly me was able to do.

    i do have other conditions alongside fibro which all join the party of pain within my body. pacing yourself and listening to your body is key i found.

    you are never alone here, this site is wonderful,the members are friendly and have a great sense of humor. i have learnt so much from them and have come to think of them as my fibro family :) look forward to bumping into you on here.

    hugs x

  • Hello Birds and welcome, sorry you have fibro. It's good you found our wonderful site, you need never feel alone just pop on here, always someone around. If you need advice, to rant or just talk you have come to the right place. Oh and we do have fibro chuckles too not all doom and gloom.

    So hope to see you around.

    Take care 🤗🤗 x

  • Hiya Birds welcome to the gang. Sorry you have fibro on top of your other problems. Fibro can be a very lonely and isolated illness but you are not alone. This site has got me through some rough times and I hope we can help you through too. Come and have a chat whenever you can. Take care xx

  • Hi Birds

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

    fmauk.org/

    I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Stress would have to be the 100% worst trigger in my experience aside from really over doing it 💜

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