Thinking

[Lakehouse5830]

So what do you do when you have been told by a doctor that you have anxiety issues about your health and you just need counselling for it to all go away.

Not that I go to the doctor much in the years sometimes a year or two has passed before I have said right today I am going to get to the bottom of the problem and even then I feel I should no moan or the way I feel I am lying and have to prove that I am not is harder than the pain and discomfort for a day or two I never see the same person twice they seem to move around and you never know what doctor will be free.

Legs arms shoulders it’s a way of life sometimes things work sometimes they don’t but the biggest thing that doesn’t seem to work is being told you have issues with your health so to show you don’t you say nothing even when you have a cold or a headache you just keep getting on with it I have been made to feel a burden if I have anything wrong.

I should be made of steel and never tarnish shine bright every day.

Sounds like a moan but it’s not it a thinking let out for me

as the pen is my sword or in this cases the keyboard 😉

[PenelopeClearwater]

Hello Lakehouse

I can relate to feeling like a burden, but I did find therapy helped me with that.

I’m nowhere near having accepted my new “way of life”, but I’m slowly getting there.

I hope you’re able to find some help 💙

[Lakehouse5830 in reply to PenelopeClearwater]

Thank you for your thought’s x

[Yassytina FMA UK Volunteer]

Yes it’s good to let your feelings out , we all need to open up sometimes, Counselling can be helpful so if your doc can refer you, with NHS backlogs it could be awhile from what I hear. Privately is quick but means funding it yourself, I had about 6 privately, but the thing that actually worked for me was being put on the right tablet and it stopped completely, I had been on Citlopram for years for depression but it was not that but was my anxiety so years of struggling with a doctor who didn’t really do much to move me forward. When people have health conditions they need time and empathy to go forward not a quick prescription and shown the door after waiting an hour to see doctor and he sees you for 2 minutes. `xx

[Lakehouse5830 in reply to Yassytina]

That’s what I meant I know I have these things and have excepted it and move on my own way every day I feel that sometimes doctors are to fast at moving you out the door years ago you went to a surgery walked in they would take you name find your notes send you over to the board of plastic tags for your number sit down and waited and the was because the person in with the doctor was given time and you knew that it would be the same doctor the family doctor the one that knew you and your whole family a doctor that would take time in remembering who you are and the real person you not just a few notes on a computer I have been to a doctor about ten years ago for back pain and come away with ear drops I have gone to a surgery to make an appointment and told I have to ring to make one so have had to go outside and use my phone to do this sometimes it’s like a mindless uphill battle to get in the door let alone talk to someone and you know as soon as you get in there that it’s like well hurry up my mother in law was even told to hurry up and she only had ten minutes When I finally got somewhere with it it was with physiotherapy and I explain over the phone of the pains and I was told I could only pick one my shoulder or neck or hips but as it’s all connected I said my body the reply to this you are being awkward I was no I am not this is what is wrong but in the end I had to pick one then at the appointment my legs were pulled left right and centre I was in pain for a number of days after even though I told him it was painful at the time and was told he found nothing wrong so hayho I will carry on in my own way I guess 🤪🤪🤪

[Yassytina FMA UK Volunteer in reply to Lakehouse5830]

Since Covid our surgery has gone on this system where you can post what the problem is online and they get back too you, when I’ve gone into surgery it’s moving much faster as they don’t want a room full of people waiting and spreading, it has also stopped people that made appointments then didn’t turn up so that’s really good. I’ve actually got a practioner nurse who s giving antiboctics over the phone with my throat so no waiting in the surgery , looks at my medical records and re occurring problem so handy especially like last week I was feeling too poorly too actually get out of bed. Agree it’s really hard to get too see a regular doctor like years ago, and one that gets too know you as a patient. My doctor is very good so everybody wants him so I then went onto this lovely practioner nurse roughly same age group ,so she relates to a lot ,we get on well. Have you a practioner nurse at your surgery ? they can deal with most things , write prescriptions, I think mine has done referrals as well xx

[Lakehouse5830 in reply to Yassytina]

Are local surgery was in a shambles it had report’s on it with the medical board and with out notice was closed and as patient’s were transferred to a different surgery without notice and it is in the next town and I don’t drive we only have one other in this town and it’s at the moment hard to get on the list to many wanting to switch I have used the nurse practitioner but as it was done all over the phone for a lump on my shoulder and was not looked at for a number of weeks even though I tried to get it looked at it was a chemist that insisted they looked at it got in on a Friday late afternoon ended up in surgery the Saturday morning having it removed with them saying I was lucky it had not gone septic so for some the system works but not for all I have a big scar now because it was not looked at sooner if it had I would not have gone through all the pain. Hopefully I will get on the other practice and things will change

[Yassytina FMA UK Volunteer in reply to Lakehouse5830]

Reading this I do hope so x

[does-the-NHS-work in reply to Yassytina]

Hi, I had a similar journey, citalopram SNRI antidepressant, yet suffered with anxiety! sad to say none of them worked either or the side effects were too much. I was interested in reading you choose private therapy, I agree, I have something booked. Can I ask what the therapy was? also what drug is working for you.

[Yassytina FMA UK Volunteer in reply to does-the-NHS-work]

I had CBT Cognitive behaviour treatment , the tablet I was eventually put on was duloxtene, currently I take one tablet in the evening 60mg , I can double my dose if need be , I’ve been on this over 4 years , I didn’t know where to turn as each time the anxiety came it was awful then by chance I got so bad I got an appointment with out of hours and this lady doctor said your on the wrong medication, that was my turning point. `xx

[does-the-NHS-work in reply to Yassytina]

Hi, Thanks for the details, much appreciated. So pleased to hear you have some relief. I tried CBT it was helpful too. The duloxetine did not help my pain, I switched to venlafaxine a very good drug for anxiety, I took the slow release venlafaxine, a good efficacy uptake, but this did nothing for my pain, now weening myself off meds all together, side effects out way benefits for me.

[does-the-NHS-work]

It's great to let it all out! pent-up in your own head with no where to turn, more food to fuel more pain, problem is they (medical profession) do not know what to do with us!

Don't stop, shout from the top of the roof, somebody may here us and throw some money at getting this ridiculous condition under control! Mind you the pharmaceuticals are making a tidy some, suppose there is no need for trials , here is a fact 2015, 61 million antidepressants were prescribed!

That said, if you have not been referred to pain management, give it a try, also a psychanalyst appointment may help, their is strong evidence that fibro is linked to childhood trauma.

We all must moan more, demand more, say more. I think you are right on the money, we all need to drive our GP's mad, see them more not less, push the statistic up for fibro let them know we need treatment to this condition. I have said before just look at the miracle in finding a COVID vaccine over night, "When they spend the money you get answers". fibro medical trials are non existent. Don't give up warrior.😡

[NavyWave]

Dear Lakehouse5830. My advice……… find another Doctor!