Does anyone else have fibromyalgia and hypermobility syndrome ?

[Mrsfibro2015]

Hi, I'm just wondering if anyone else has Fibro and HMS? If so which painkillers work for you? I am

currently taking tramadol but have been advised to slowly stop and try something else. Can anyone give me some advice? Thanks x

[mattoid-mags]

Hi Mrsfibro, I'm afraid I don't even know what HMS is? I'm sure there will be someone along who can help you out with this. Take Care, Mags x

[Mrsfibro2015 in reply to mattoid-mags]

Hi Mags, HMS is Hypermobility Syndrome, thanks anyway xx

[Fibrofoggiest]

Hello Mrsfibro and welcome to the site 😀

There are several members here who have HMS alongside Fibro, especially one of our highly esteemed administrators, Zeb/sian.

I am sure when she sees this she will pick it up and speak to you 😀 She is very knowledgeable and is fantastic at sharing her knowledge.

you say you are currently taking Tramadol but have been advised to stop, could I possibly ask why, as it is a useful drug for some people with fibro, but of course, we can't advise you directly on any medication and always refer you back to your GP who is the right person to give you advice on this.

I'm sending lots of positive healing vibes your way and much look forward to seeing you around the forum.

Foggy x

[Mrsfibro2015 in reply to Fibrofoggiest]

Hi Foggy

Thanks so much for replying to me! I got diagnosed in Oct 14 and its took me till now to accept the fact its true and its incurable. My rhuemy prescribed Tramadol which I have been taking and then yesterday an endocrinologist has advised me to get off them as they are not good to take. It really winds me up when docs contradict each other. It makes me think none of them know what they are doing! The fact of the matter is, I am in desperate pain, and need something that helps, any advice would be greatly appreciated. Thanks x

[TheAuthor]

I do not have both, but I want to sincerely wish you all the best of luck with finding pain medication that works well for you.

All my hopes and dreams for you

Ken

[Mrsfibro2015 in reply to TheAuthor]

Thanks Ken

[fenbadger]

The wording of your sentence prompts me to ask who advised you to try something else. Surely a doc would have offered a substitute. Beware of well meant but ill informed advice and as Foggy says talk to your doc. that's what they're there for. Hugs

[Mrsfibro2015 in reply to fenbadger]

Hi Fenbadger, thanks so much for your reply. It was an endocrinologist (hormone specialist) I saw yesterday who has advised me to come off Tramadol (but do it slowly), he has given me amatryptaline to take at night before bed but I'm still in pain. I need another painkiller to replace tramadol as i just cant stand being in pain all day and night!

[fenbadger in reply to Mrsfibro2015]

Phew. I was on low dose amitriptyline for a bit. It didn't really help me with the pain but was good for sleep. maybe take the amytrip a bit earlier in the evening. I took mine at 6 ish. Just beware once it kicks in it's unwise to drive or drink alcohol etc

Though the label usually says "alcohol will increase the soporific effect". Um - sounds like an invitation as that is what we want.

[Tinkerbell1969]

Hi yes I do and I have raynourds that was my 1st then hypomobilty then fibro now copd I think I write a post as I also have no idea of what to do

[Mrsfibro2015 in reply to Tinkerbell1969]

Hi tinkerbell1969, Thanks so much for your reply, its really reassuring to be able to talk to someone who is going through the same type of thing (although I don't know what copd means) I am going to read all your posts. What would you recommend for pain relief? I have 2 children and I'm desperate to be able to function as much as possible. If i do too much I just fall asleep, the pain I'm in is making me really depressed. )-:

[RIBBONPINK in reply to Mrsfibro2015]

TRY ARNICA GEL YOU CAN USE IT AS MANY TIMES AS YOU WANT,HOPE THAT HELPS ALL NATURAL

[Mrsfibro2015 in reply to RIBBONPINK]

Thanks so much for the tip, I had never heard of this, I'm going to buy it tomorrow and use it on the top of my back and neck. I wake up every morning and feel like I'm a rusty version of the tin man! Hopefully this will help, thanks for taking the time to tell me about this x

[RIBBONPINK in reply to Mrsfibro2015]

HI THERE IS AWARMING ARNICA AND A COOL TYPE ARNICA GEL IF YOU WANT BEST I BUY FROM A CERTAIN SHOPPING CHANNEL OR EBAY SBCX

[Mrsfibro2015 in reply to RIBBONPINK]

Thanks i will give these a try x

[Tinkerbell1969]

I'm the same I have children so need to be alert which is so hard with the meds I have vitamin d injections and tramadol which I only take when I can't take pain no more I seemed to have side affects from most of the medication and now find swallowing a big problem i used to get this cream that was good for the muscles pain it was called pernaton but my dr took it off my repeat prescription as its expensive I also take diazpane when my musles spasm get to much I tried a lot of medication but they seemed to react differant with me like people say that tramadol makes them tired I can't sleep with them I go wide awake it's weird I know what you mean about the doing things wipes you out I go like that like doing normal every day things just drains you and the kids I find that I cant do much with them I used to be so active always on the go always decorating I loved it but making all these changes and pacing your self is hard try the cream it's good if your dr will give it to you it helps and no side effects and eases the pain a bit and I don't know about other people but with me I'm not depressed but the pain and no energy makes me depressed I hope this helps a bit

[Mrsfibro2015 in reply to Tinkerbell1969]

I will be off to the doctors next week, on my list will be pernaton cream and diazpane. Thanks so much for the tip, anything is worth a try.

[Hidden]

Hi Mrsfibro2015

Yes, I do unfortunately and managing it is quite exhausting as well as painful

It can take a while to find the right combination of medications, treatments and therapies which suit you.

I currently take a variety of medications for a variety of reasons and differing illnesses so it would be difficult for me to advise you on exactly what medications to take.

I think a chat with your local Pharmacist or your GP about what kind of medications, treatments or therapies would be best for you to take/use/try out, it could be useful for you.

I take Tramadol S/R and Tramadol M/R alongside Pregablin, Sertraline, Voltarol Pain Gel and many other lotions, potions and creams

There are many things that we can try whilst finding the right combination of medications, treatments and therapies such as physiotherapy, hydrotherapy or even Alternative Therapies such as massages, for instance. I do advise that you discuss these options with your GP before trying though just in case something clashes with the current medications/treatments you are taking/using

I'd like to give you a link to one of our FAQ's which may be useful to you as it contains links to our 'About Fibro' Facts Sheets that are downloadable and printable and can be found on our Mothersite fibroaction.org so you could take them to your appointments if you so wished to help explain what you'd like.

FAQ - My current medication doesn't seem to be working, what treatments are recommended for Fibro? This explains a variety of types of medications, treatments and therapies and where to get more information.

healthunlocked.com/fibroact...

I hope this helps, wishing you wellness and send Fibro busting fluffie hugs your way

xxx sian

[Mrsfibro2015 in reply to Hidden]

Sian, this is just what I need, thanks for all the info, and taking the time to give me all the links etc. xx

[Phinou]

Hi Mrsfibro2015,

I also have both. I take Amitriptyline which help me to sleep and also help with my muscle pain. Before taking it I was hurting all over my body. My feet hips, shoulders, neck and back are still hurting, but the fact that my muscles stop hurting is a great relief. I can now go to the gym, and my other symptoms have now also improved thanks to the improvement of my fitness (although I need to be careful not to over-extend my knees).

Good luck!

[Mrsfibro2015 in reply to Phinou]

Thanks so much for your reply Phinou, this is my second night on Amitripyline, (I'm starting on half a tablet) its making me sleep for ages! Hopefully by next week I will feel some of the changes and benefits. Do you take any other painkiller?

[Phinou in reply to Mrsfibro2015]

Hi Mrsfibro2015,

I normally don't take pain killers as they usually don't work. But sometimes I take from time to time paracetamol, when I injure myself. It makes a really small difference.

[joed]

i have bothfibro and hypo dont know if the y go hand in hand i have for daughters 3 have hypo and 1 has fibro and hypo so i know they can be herreditary

[joed in reply to joed]

sorry forgot to say i take zapain for the pain

[Mrsfibro2015 in reply to joed]

Thanks joed, I will look up zapain x

[Hidden]

I have both, too. Currently not on any prescribed pain killers. Am about to start gabapentin, but not there yet. Awaiting referrals to pain management and sleep clinics.

Sorry I can't be of much or any help, but wanted to put it out there that you're in like company.

[Mrsfibro2015 in reply to Hidden]

Thanks ukwahine, I am also waiting for a referral to pain management, so it looks like we are in the same boat. I wish you the best of luck and I will look out for you on the forum. x