Sjogren syndrome and Fibromalgia

[Gogi1]

Hi does anyone have sjogren and fibromalgia. I have had fibromalgia for years and just been diagnosed with Sjogren. Can anyone advise how to deal with both conditions as I am struggling and in lot of pain.

[Faes]

I to have Sjogren's and fibromyalgia, I've only just been diagnosed fibromyalgia. The only thing I find at the moment that helps me ,is getting into bed and keeping warm. As I get very cold when I'm in pain. Sorry I can't be more help .

[Gogi1 in reply to Faes]

I have had fibromalgia for years. Now been diagnosed with Sjogren also Rynards, chronic sinusitis and tinnitus. I can't take any more. While holding a job. X

[WhyCee27]

I have Sjogren's, fibromyalgia and also Raynaud's. I get the dry eyes and mouth with Sjogren's so I use eye drops and a moisturising mouth spray. I see an Opthalmologist and Rheumatologist every year. I don't take any meds for my condition because I've had various side affects. Occasionally I'll take the odd painkiller but I cope by resting, pacing myself and using some mindfulness and meditation techniques. I hope this helps.

[Gogi1 in reply to WhyCee27]

I also have vert dry eyes and mouth. On morphine patches for fibromalgia pain. X

[bookish]

Hi, I've had fibro for many years and now have been diagnosed with Small Fibre Neuropathy which is often caused by Sjogren's, although can be caused by other things. They haven't yet decided with me! An anti-inflammatory, auto-immune type diet helped me, especially quitting gluten (although also can't tolerate gluten-free, so I just don't eat anything flour or grain based at the moment). Testing your vitamin levels and making sure you are at a good level and absorbing nutrients properly should help. I find magnesium very useful, especially before bed. The Smart Patients Sjogren's site may be helpful smartpatients.com/partners/... and Sjogren's Advocate is fabulous sjogrensadvocate.com/. Both US. Best wishes

[Gogi1 in reply to bookish]

Thanks for you advice 👍 will definitely have look on the website. X

[Alb2]

I have both. I would add to the suggestions already posted here that good mouth care is also a must as gums are susceptible. I do gentle yoga stretching daily too, otherwise I seize up. Yoga Nidra in particular is incredibly beneficial for me. Meditation also😊