i need help! i ve been in a long sever depression episode nearly 6 month now, of course combined with body pain, but mentally im not in good place as cant enjoy anything! cant access my emotions! feels like cant think or make decisions! bit scared! im on meds: 120 Dulaxtaine, 600 gabpaintine, Quetiapine 50Xl by psychiatrist at night
10m bu trans patch for pain!
but still my mood and energy very low! i ve contacted the NHS psychiatrist service! but i ve spoke to consultant admin Not the the consultant himself! meds by psychiatrist which is Quetiapine does not do much! normly take it at night! didnt have a flow up! does anybody do speak to a psychiatrist here? private psychiatrist very expensive indeed! how i can get nhs psychiatrist as i cant wait any longer!!
Also CTB treatment will have to wait 12 weeks to get it, cant even get to talking therapy! with NHS right now! im stuck!
sorry if this sound negative!
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Mr-T212
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Sorry you are having a delay in getting help. Have you tried supplements with B12 or Vitamin D to see if they help with your energy levels and mood? What about lamps like you can get for seasonal affective disorder?
In the meantime, I find it helps to chat with someone who makes me laugh, even if it's just about my poor health. Maybe find a way to schedule some regular connections with a person or group of people who help take you out of your negative mood for a bit. If nobody is available, comedy acts can be great, like Dry Bar on YouTube or Taskmaster.
Hi love sorry to hear ure not in a good place . I know exactly how ure feeling . I was in ure position about a year and a half ago . I was so low . And felt like my life was over. I tried so hard to get help from docs and mental health team but they didn’t seem interested. Unfortunately I took an over dose and landed up in hospital. At the time I felt like I was a nobody . No one to talk to . No one understood me. All they kept saying is it can’t be that bad . But unless u speak to someone who knows exactly how u feel then nobody knows what it is like . A massive wake up call for my self . Anyway if u need to talk about anything u can message me. I completely understand what ure going through and if I can help in anyway I will. I’m a good listener and just being able to talk and express ure worries or emotions. I had someone talk sense into me and my god I appreciated there support. . I hope this gives u some hope . Be kind to ure self and remember there is always someone that u can reach out to. Sending hugs to u . Take care . Hope u find it helpful and message if u need an ear
thank you very much for ur lovely feedback, only ppl like u can feel what im going through! i really feeling that my life is over! powerless! im desperate for help!
Hey I get u. If u need to talk u are welcome anytime. Even if u want to private chat that’s ok. Please don’t hide away. Talking is the best therapy.especially with someone who’s gone through the exact same thing. So say talking therapy is helpful but I think like they just judge us and they don’t have a clue. Text book talk isn’t what u need. We are all here . Please let me now that ure ok. It does get better ❤️🩹. U just need to believe in ure self. All the best my friend x
I believe All those medications can numb our emotions. A psycho therapist can make a referral to a consultant at hospital once you book your CBT sessions which I believe is only for 6 sessions. Have you tried Mind for counselling? Try NHS Emergency crisis team if it gets bad.
I can definitely sympathise with what you say! I cannot even access my own GP surgery 😥
I do hope you are able to find a therapy place soon. Xx
thank u, i do feel that im getting worse nd worse! from day to day! what is going to happen if contact the emergency crisis team? can i endup to the hospital?
They don’t do anything mate. They just promise help but it’s just bull xxxx. I promise u talking to people who know what u are going through right now will be the best help u can get. X
You are welcome, once you contact them I believe they will come and see you and will make a decision after consultation with you. Your GP should have given you their number as the number is different from area to area.
Wish you a speedy recovery. I honestly what we go through is not easy. Take care my friend
I find that even short meditations (ie 5-10 mins) can be helpful, just to calm yourself. I'm sorry that you are on so many medications. All best wishes.
Hi, sorry you're feeling so low, i'm struggling at the moment too. It could be some of your medications dulling your emotions, i totally understand how that feels. I used to be on Haloperidol and felt absolutely nothing. Once i got off that my psychiatrist put me on Quetiapine like you, but i'm on 225mg a day. 175 in the morning and 50 at night. Since being on that, my mood has improved no end. Plus my emotions have come back. That was a bit overwhelming at first, but once i realised it was normal to feel sad and cry or actually feel happy, i've been much better. You are on a very low dose. I got to see the psychiatrist through my GP. Hope this helps you, even just a little bit. Take care x
Quetiapine makes me sleepy! thought that to get me sleep ! cant take in the morning cuz worry to put me sleep! as i already dont have any mood or energy! but my gp told that i ve to increase it as this low dose, but the problem is feedback from psychiatrist admin is so slow! making things harder! i will contact my gp tomorrow as cant deal with this anymore!
If anything it gave me more energy and definitely improved my mood. If you tell your GP how you're struggling he should get you an emergency appointment with the psychiatrist. Good luck 👍🏻
Me again, i just looked at what other medications you're on. I think the gabepentin may have something to do with you being sleepy. That seems a high dose x
yes, sure, anything for energy and lifting my mood up will help. but Quetiapine help to ease the severe anxiety and sleep issue, so i think i need to switch from Dulaxtaine to something else, also im going to stop gabpaintine soon. many thanks.
Sounds like Quetiapine certainly isn't the best drug for your depression. Could you call the prescribing physician to ask for a reevaluation? It can take several tries to get at the most effective antidepressant combo for most people. Be patient. I hope you feel better soon.
Psychiatrist appt every 3-6months, when meds would be adjusted/combined/changed. No support between appts. Sound familiar? This is where I was for 10 years until I reached crisis point. How loud does someone have to screem, before they are heard. It doesn't have to be this way! You should be getting ongoing support from the Mental Health Team proper. As well as your psychiatrist appts. Look up (Google, local phone book) the contact info for the MH team for your health authority. Tell them you are an outpatient of Dr (your psychiatrist), that you need the support of the team. Or, ask your GP to refer you urgently to the team. I'm presuming you are in the UK, if so, you are entitled to much more support than you are getting. Often it is not volunteered to patients that this is so (resources) but you should not have to suffer to the point of crisis before you are heard. I genuinely feel for you. Make your voice heard. It took me far too long, with unnecessary distress to myself and those around me, before I got the help that I should have been getting for years. I suspect there are many more like us, who fall through the cracks. Some never getting the help they need and are entitled to. I sincerely wish you the very best. Shout. Scream if you have to. Make your voice (and your pain) heard.
yes! this system is killing me slowly! im suffering! should not to be to the crisis point! this what makes me angry! i want to get better, i just need some help with ppl who listen and psychiatrist who can adjust, review the meds based on the progress! chronic pain and depression is too much to handle! ppl with Fibromaylagia needs regular support mentally, emotionally and physically ! clinic pain after one phone call said to me we will contact u after 3 month!🥺 Insight for CBT treatment or talking therapy after waiting 6 weeks on the list they contact me and saying we will offer you a CBT program but you have to wait another 12 weeks l! this is ridiculous 😡
Can you manage your mental health care separately from fibromyalgia care? They are not cared for by the same teams and shouldn't be. Please follow Cath's advice to get your antidepressant evaluated asap so you can begin to feel well enough. This way you will also be more capable of communiticating with your GP about fibromyalgia associated pain.
Two separate doctors. Manage two issues separately.
I’m really sorry you’re having such a hard time. I have depression too and it’s such an awful struggle. Try to hang in there. I know it feels like "well, they can’t do anything" but have you considered contacting a helpline just to get it all off your chest, such as Samaritans or shout, if you’d rather text? Samaritans do an email helpline too, though it takes about 24 hours for them to get back to you and you don’t end up with the same person every time. But they’re excellent if you’d rather write things down.
I agree, the waiting times are too much, but anything you can do to keep yourself going in the meantime is worth doing. Some things that help me are writing down one thing every day that actually made me smile. Or something I just like. Like the first cup of tea in the morning. A nice breakfast. A good song I heard. A nice bath. Something little like that and then after a few days you can look back and put things together like "ok, tomorrow I’ll have a nice bath with a cup of tea, listen to some music." And it won’t take it away, or fix everything, but it’ll be a moment you can kind of craft for yourself and those sorts of moments keep me ticking over.
Another thing I love is just brain dumping. Just tip everything out of my head onto paper, all the frustration and the hurt and the upset and if you don’t want to risk anyone seeing it you can write it and rip it up, or shred it or recycle it (I love that because it feels like doing something that could turn my pain into something nice like a good book!) or write over the top of it over and over. If you’re in too much pain to write maybe type it up and delete it? I hope you find some relief some way very soon. I’m so sorry you’re in such pain.
Hi Mr t212 sounds like a lot of meds to me. l would think they would zonk you out. You could research the meds you are on, and interactions, l do this, and if i did not think i would be in worse state and i am bad . l went to a rehab last week, and one of the staff said they had detoxed her from gabapentine. Hope you find help
Yes i agree i ve too much going to my system! my gabpaintine dose was 900 now im on 600! next is bu trans patches, and Dulaxtaine! i did think about rehab for detox! is interesting to know about that option?
Hi Mr T i looked up that quentbin stuff you are taking it is an antipsycotics and for bipolar (are You) years ago doctor gave me antipsycotic meds ended up in Hospital. (mental health) and gabapentin is same in lots of ways as opoids. sleeping meds made me confused. good luck
Quitiepine is also now used for disassociative disorders and anxiety which I have both. Also as a mood stabiliser. I've got major depressive disorder and have gone thru 15 months of hell. Had to go into a crisis house at one point. I'm also now on 60 mg of duloxetine since going on the quitesipine it helped me feel normal and anxiety free first rime in years
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Well,saw my g.p about severe headaches,depression and increased fm symptoms...
Not depressed - VERY fit- but in pain?
Job advise for someone severely struggling with fibro life
Depressed
