New Kid on the Block: Hello All, I am... - Fibromyalgia Acti...

Fibromyalgia Action UK

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New Kid on the Block

Paperhatc profile image
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Hello All, I am new to this sight but have just read the latest research. Have you seen it. They now think FMS is an autoimmune disease. That opens the door to so much more treatment which is really positive. Let's hope they complete this research in an short a time as possible.

I have had FMS for 8 years now and basically, I can't remember what it was like, not to be in pain. During flair ups, I tend to feel sorry for myself but, otherwise, I try to stay as positive as I can. If I can help any of you in any way please speak up.

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Paperhatc
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desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee

as per here and as per my comment in the Guardian article no it is not now an AI condition, not on just this study. The preponderance of evidence still supports the CNS theory.

healthunlocked.com/fibromya...

Midori profile image
Midori

I hope it turns out to be, but I will wait until there is more evidence.

LisaSnow profile image
LisaSnowFMA UK Volunteer

I absolutely agree that more research is needed to understand the pathogenesis of fibromyalgia. Unfortunately I do not see the "suggestion" of autoimmune origin from this study to be convincing based on their study design (study roden behavior as proof of replicating fibromyalgia symptoms in human) and results. That being said, even if it WAS related to some aspect of autoimmune etiology, I am afraid the treatments for a majority of autoimmune diseases have not been helpful at all for fibromyalgia symptoms. How did I infer this conclusion? Based on the fact that up to 40% of autoimmune patients developed fibromyalgia (!) and they are all taking medications for their autoimmune disorders, but they STILL suffer fibromyalgia symptoms. If drugs that decrease autoimmunity could help fibromyalgia, why do we continue to see such high % of coexisting fibromyalgia diagnosis and a lack of evidence on symptom relief in treated patients?Hate to be sharing a pessimistic view but it just doesn't not seem to be a simple link there, and much, much more funding needs to be invested in fibromyalgia research.

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