Anyone have a burning feeling - Fibromyalgia Acti...

Fibromyalgia Action UK

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Anyone have a burning feeling

Tiny09 profile image

Does anyone else feel lyk there body is burning frm the inside out ,I've had it for a week now.

16 Replies

HiI’ve had it for 6 months like my blood is boiling from inside out and now I get creepy crawling feeling from neck to left side shoulder, every 10 minutes it’s the weirdest feeling so far.

Tiny09 profile image
Tiny09 in reply to Tspoon67

Does anything help with it, am proper frustrated with it.its a horrible feeling am struggling to cope with it

Tspoon67 profile image
Tspoon67 in reply to Tiny09

I had Crps, now fibromyalgia too and the amount of pills I have to take, nothing gets rid of it, trying to explain to drs is difficult. I’ve been given something to help sleep so it doesn’t wake me up but the dose I got isn’t strong enough yet. Contact your dr see if they can help.

Tiny09 profile image
Tiny09 in reply to Tspoon67

I did yesterday n all he said was I will give u Valium for a few days n if no better go to a&e wot can they do tht my GP carnt do

Tspoon67 profile image
Tspoon67 in reply to Tiny09

A & E that’s not right surely, I feel it’s something I’ve got to live with now 😳

GenevieveP profile image
GenevieveP in reply to Tspoon67

I get the creepy crawly thing on the right side where my neck meets my shoulder. It's horrid! I've found that using that arm a lot increases it but only after I've stopped. Putting pressure on it seems to make it go away for a while.

Tspoon67 profile image
Tspoon67 in reply to GenevieveP

Certain angles of your neck movements brings mine on, it’s not uncomfortable but the strangest thing.

Hi Tiny. All the time, I feel like a kettle that just switches itself on whenever it feels like it. My feet in particular are really hot especially in the evening. The only thing I can suggest is cold water. Either spray it or sit in it!! If you have a bath though, cool is better than cold as cold will only make you hotter when you get out. It seems that my feet seem to regulate the rest of me....if they're hot, then I'm hot all over. Perhaps I should put my socks in the freezer! 😂

Tiny09 profile image
Tiny09 in reply to Sally444

Thank you Hun am fed up of it it's frustrating.its mainly my arms tht feel lyk there on fire frm the inside

Its a horrible feeling and so hard to explain to others. I feel like my blood is getting hotter and hotter and it actually hurts! People touch to see how hot I feel and their touch actually hurts as well. It feels like heating up a burn. I even get it in the winter and suffer with terrible night sweats, I'm not old enough to feel this old!!! Lol.

Tiny09 profile image
Tiny09 in reply to Sally444

Am only 35 so I defo shouldn't feel lyk this

Sally444 profile image
Sally444 in reply to Tiny09

I'm 45 but have had it for years now....since I was about 28 things all started going wrong. In fairness, thinking back...after I had my first daughter at 20, I said to the doctor that I may as well set up tent in the surgery. I had all sorts of weird infections....I guess that might be what started it all. Who knows!!!

Yes I have that in my arms for over a week now I was told to use ice bags

Tiny09 profile image
Tiny09 in reply to Rayjc

Thank you

I to get this burning up from the inside , for a few years . doctor says its the meds , not quite believe this . what help do you people get for it .

Tiny09 profile image
Tiny09 in reply to freespirit7

It carnt be meds as am nt on any at all as nothing works for pain with me, think they say tht as a way out of finding out why it happens

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