Pain relief: At the start, this is not... - Fibromyalgia Acti...

Fibromyalgia Action UK

60,302 members•67,513 posts

Pain relief

At the start, this is not meant tobe preachy or judgemental. I apologise in avance, if this offends any 1.

Im 6 months in to fibro discovery, and see so many new people every day. This is predominately for newbies.

I have seen how many long existing sufferers are on strong meds for pain relief. It terrifies me how many doctors want to throw analgesic meds at us instead of using other alternatives.

Stress reduction, some sleep, relaxation. Reduced sulphites. Listening to my body and putting myself 1st. Treating low seratonin levels. Have all helped. I take 2 paracetamol at night. Takes the edge off, i get some sleep. And feel pretty good in the morning. If i have pain in the day then i take paracetamol.

So please please find out about alternatives before accepting serious pain meds.

I read peoples posts about pregablin and gabapentin like theyre aspirin. Thryre not theyre an addicts go to when they cant get their drug of choice.

Im sorry to sound preachy, but being the mum of a recovering addict, 2/8 ,of cocaine daily, morphine tabs, gabapentin, tramadol. Pregablin. Anything except crack and heroin he took. A bottle of vodka a night to then try to sleep, before getting up and driving hgvs.

He is nearly 3 years clean and is an addiction counsellor himself. Im going to his wedding in 3 weeks.

Trust me this really pushed (what i now know to be )my fibro over the edge. My breakdown left my body decimated. But i fortunately have a gross intolerance to opiods. The alcohol i used instead was in fact giving me more issues, because of the sulphites.

I have seen multiple people stuck on serious pain meds and cant get off them. Not all addicts are junkies in a box outside poundland.

So before u nod to pain killees to get out of the doctors way. Please ask or research alternatives.

Like i said, this is genuinely meant to help new sufferers. Not to offend or judge long existing sufferers. If it makes just 1 person say stop hang on then my job is done.

Ive seen the other side of the fence. That grass sure aint green. After a few yards it slopes down and u cant cant see the decaying scorched manky hill behind it.

Bruton.

Written by

Bruton

To view profiles and participate in discussions please or .

Read more about...

14 Replies

•

desquinnPartnerVolunteerFMAUK Trustee4 years ago

appreciate your point of view and you admitting your bias in the approach you are presenting. But, there are people that are not addicts or likely to become one that cannot exist /function without them.

We would not make the case for removing insulin with its therapeutic effect from type 1s but too much can kill them or a non diabetic. Managing the risks against benefits is the route to take.

Not taking meds of any kind would be ideal but a large paint brush to tar the treatments or the patients is not reasonable in IMO. My bias is that I am a non addicted tramadol user that could not function without it.

Bruton• in reply todesquinn4 years ago

Like i said aimed at newbies. Cant function with out it ..mmmmm

Bruton• in reply toBruton4 years ago

I also said explore alternatives 1st. Not expecting every 1 2 not gave analgesia. We all cope the best we can. Also said not to be preachy or offend. Yes i am biased. Ive been living with pain for 50 years, and using alcohol to numb it for over 40

desquinnPartnerVolunteerFMAUK Trustee• in reply toBruton4 years ago

Existing guidance prior to new NICE guidance already suggested this and the new NICE guidance on CPP enshrines this as the way forward. but scaring people off of something that may help them is not the right course of action. Also drs are making patients aware of the risks of some of these meds as well but this risk does not apply to all either.

Dizzytwo• in reply toBruton4 years ago

Hi there, may I just ask out of curiosity are you still using alchol to numb your pain or has that now stopped?

Bruton• in reply toDizzytwo4 years ago

Nit since 2019

Dizzytwo• in reply toBruton4 years ago

That great, good for you. It can be very difficult to give up what we think may be helping us to cope. Like cigarettes for example. I stopped smoking years ago. But sometimes even now I feel like I could eat one lol

desquinnPartnerVolunteerFMAUK Trustee• in reply toBruton4 years ago

It is much harder to obtain pharma treatments now as activity and other options are to be considered first.

If you search on here about positive benefit from these treatments you will find the evidence of peoples lives changing with the use of them and the horror stories of losing job or quality of life as a result.

"Cant function with out it ..mmmmm" - comes across as a bit judgy and I would never hear that levelled at chemotherapy or insulin..........

Bruton• in reply todesquinn4 years ago

Definition of annaddict .cant do withbiut. Again sugesting at alternatives as long as podsible. Btw u are talking to a qualified nurse ex cop with diabetes. Judgey. Clearly we wont agree so i sugesy webleave it

desquinnPartnerVolunteerFMAUK Trustee• in reply toBruton4 years ago

so those taking insulin are addicts..... statins, heart meds, blood pressure and the list goes on. Food and water!!! Addict and dependence are different as I am sure you know.

You may be a nurse so I would expect you appreciate the distinctions between dependence for therapeutic effective as opposed to addictive behaviour and using meds beyond how they are prescribed. It is a complicated subject I know but as I say the systems in place right now already direct people in the way that you suggest and have warnings so scaring people further is not helpful.

desquinnPartnerVolunteerFMAUK Trustee• in reply todesquinn4 years ago

and again "Definition of annaddict .cant do withbiut" this is judgy and not nice either with the inference. I am trying to keep to the issue rather than making it personal.

Dizzytwo4 years ago

Hi there, I am sorry but you have put up a post with quite a hot topic attached to it. Its only to be expect you would receive replies that you may not like or agree with.

To then ask someone to just leave it and in the tone it was written is not very polite.

Please remember every one has the right to an opinion. And if you put up a post it goes without saying you are not always going to get the replies you would like to hear I'm afraid. So please may I ask you politely to moderate your tone thank you.

Bruton• in reply toDizzytwo4 years ago

I was trying to end a converdation so it would not get heated i findb. Both your replies offensive. We all wats of dealung with this shutty illness. Like ive said meant to help nit cause argumenys

desquinnPartnerVolunteerFMAUK Trustee• in reply toBruton4 years ago

I think I will lock this discussion as you do not appear to find people disagreeing with you to be helpful and characterise it as offensive.

I disagreed with what you said and even the inference of being an addict did not bother me and was happy to continue the discussion politely. If you feel the need to continue this further then you can reply to my pm to you.