Any suggestions for extreme itching? - Fibromyalgia Acti...

Fibromyalgia Action UK

59,703 members66,770 posts

Any suggestions for extreme itching?

FibroJo79 profile image
34 Replies

I get itchy spots and will scratch until they bleed because they won't stop. Lately, it has been my foot. I've tried moisturizer lotion and even calamine lotion, but nothing works. I drink lots of water as well. Anyone else have this issue? Suggestions on how to stop being so itchy?? Thanks.

Written by
FibroJo79 profile image
FibroJo79
To view profiles and participate in discussions please or .
Read more about...
34 Replies

Have you tried, Centraben or e45, also alo Vera.I suffer with eczema and psoriasis, and get red itchy spots, they can drive you up the wall.

Also you can try antihistamine for the itching.

FibroJo79 profile image
FibroJo79 in reply to

I'll give the aloe a shot. Thanks! I haven't tried the others, but now have some backup options to consider.

LoneEra profile image
LoneEra

Do the itchy spots look different? Red and/or raised? Also, you’re not taking Tramadol are you...this can cause itching? x

FibroJo79 profile image
FibroJo79 in reply to LoneEra

No, I am not taking tramadol. And no, there are no red nor raised patches. Doctors in the past have said dry skin, but even with lotions and drinking more water, it doesn't help.

Dinkie profile image
Dinkie

I'm a firm believer in aloe vera gel, definitely worth a try and completely natural. Always seems to help my itchy skin and brilliant for sunburn too.

BS-ZIG profile image
BS-ZIG

Try a anti-itch spray.

mrdarcy1 profile image
mrdarcy1

Ask your doctor for a chilli cream called capsaicin 0.025% cream. I had such severe itching and my god it was so painful, however after a few applications of this. No more itching.

It was like a slight warmth spreading over the itch. I have had this problem of itching for years and it's amazing how much this helps. I've tried all types of remedy's. Hopeit helps!

FibroJo79 profile image
FibroJo79 in reply to mrdarcy1

Thank you. I'll see if that's an option for me!

lynne2496 profile image
lynne2496 in reply to mrdarcy1

where do you buy the capcapsaicin 0.025% cream in the uk please

mrdarcy1 profile image
mrdarcy1 in reply to lynne2496

Hi lynne2496

Sorry, you can't buy this one, it's on prescription. Just ask your doctor for it. It's amazing stuff.

lynne2496 profile image
lynne2496 in reply to mrdarcy1

thanks

mrdarcy1 profile image
mrdarcy1 in reply to lynne2496

No problem, honestly I was amazed when it stopped the intense itch. However it doesn't cure the itch just stops it. As long as you keep putting it on. I think it overloads the nerves with the heat. Hope it works for you!

Joxer profile image
Joxer

I take antihistamines daily now, beat advice anyone has ever given me, those spots itch like crazy otherwise!

FibroJo79 profile image
FibroJo79 in reply to Joxer

I've taken that before, but just picked up more today from the pharmacy. Fingers crossed!

AriadneJones profile image
AriadneJones in reply to FibroJo79

I really feel for as I can just scratch my skin off. I’ve started taking an antihistamine too called Fexofenadine and that has really helped.

Hollybellaskye profile image
Hollybellaskye

I have an area on the ball of one foot and on one hand which itches. Nothing to see and skin looks normal. Always in the same place. It’s usually when my skin gets warm such as when I take a bath. Sometimes just randomly. It’s a deep itch which I cannot satisfy no matter how much I scratch it. I rub my foot in the carpet until it takes the skin off. It feels like the itch is deep inside on the bone. The gp said it’s a nerve problem which can be due by radiating pain. Nothing they can do and I can’t find anything to ease it. I also get burning pain on the soles of my feet usually at night when I’m in bed. As if the fibro pain and restless leg isn’t enough to disturb sleep! Hope you can find some relief that works for you

FibroJo79 profile image
FibroJo79 in reply to Hollybellaskye

So sorry to hear this. And yes, I'm right there with you. I scratch and scratch and even when it becomes bloody and hurts, I keep scratching. So far, nothing is working. I picked up a steroid itch cream today, but so far, no benefits. :(

E3178 profile image
E3178

Try eurax cream. Over the counter. Vagisil, it contains lidocaine. Fennel essential oil stops gnat bites itching.Magicoolplus spray, not cheap but works.(online). Agueous calamine cream, over the counter. I use all of these including an acupuncture pen which also helps with localised pain. If none of these help, just scream!

Jegreen profile image
Jegreen

I would recommend you show it to the GP or a pharmacist, to make sure you get the right creme. Itchiness can be caused by different reasons, hope it gets better soon ❤

Tedy profile image
Tedy

Could it be Cholestatus? Liver disease! I have Pbc , and it causes itching. Just a thought.

FibroJo79 profile image
FibroJo79 in reply to Tedy

I just had blood work recently and no issues. Would it show up there?

Tedy profile image
Tedy in reply to FibroJo79

Maybe?! A liver function test is best I think. Mine was found a long time ago, whilst being investigated. Good luck.

harmony2 profile image
harmony2 in reply to FibroJo79

You have to check liver functions wwere specifically tested. Recommend that you speak to nurse re what was tested and what are the results.

KMatrix profile image
KMatrix

Try ice packs too, a bag to frozen peas feels amazing

harmony2 profile image
harmony2

Mometasone (topical steroid) cream. Lifesaver for me or I’d rip holes with scratching the itchy skin. Betamethasone (?) for scalp. Both from GP, bless them!

Is it mostly your feet doing this? I only ask because I suffered from something similar for years. It was particularly bad at night and in the winter, though I could also get it in high summer. It used to start with a tingling sensation and then the itching would start. I would try to resist it for as long as I could, knowing that scratching would only make it worse, but in the end I just had to (or stick my feet in either cold water or hot water to calm it down). Eventually I got to the stage where I would sleep at night with a bucket of water by the side of the bed so that if the itching started during the night I could just dunk my foot in it. I have to say the GPs never got to the bottom of what was going on.

Eventually I did get an answer, and it came from someone I knew at a friends get together. She was being investigated for Raynauds syndrome and her description of what she was going through sounded very familiar. We’ve never really found out whether what I was suffering from was Raynauds but the advice she gave “try to keep your feet at a constant temperature” really, really helped. These days I rarely get that warning “tingling feeling” and if I do feel it I know what to do about it.

No more disturbed nights from itchy feet - thank goodness!!!

FibroJo79 profile image
FibroJo79 in reply to

Wow, I have Raynaud's and had NO idea about that! I live in Malaysia, so I'm always hot. The only temp changes are if I'm in A/C, which I am off and on throughout the day and night. I never wear socks unless I have runners on and that is rare. I'll try to pay attention to my temp when my itching is the worst and go from there. It is hard though b/c with Raynaud's and fibro, my darn body doesn't regulate normally!

in reply to FibroJo79

As I said, we don’t know whether I do have Raynauds, but I was diagnosed with Joint Hypermobility Syndrome a few years ago so it’s not impossible. If it’s not that it may be something like it. But there’s no doubt about it, keeping my feet at a reasonably even temperature does seem to help - even if it means wearing two pairs of thick socks and fluffy boot slippers in winter and having bare feet and the same slippers on in the summer (I have them on now).

Interestingly my elder brother had the same problem with itchy feet. He died before I got the diagnosis of Hypermobility Syndrome, but he’d had issues with knees slipping out and being vulnerable ever since he was in his teens. I’d wondered whether my itchy feet were something to do with circulation but as I’m known to have allergy problems I think the GPs just assumed it was connected to that.

FibroJo79 profile image
FibroJo79 in reply to

Interesting about your brother's knees. My one knee does that all of the time! Both have, but one is often. The doctor did x-rays and said it's because my ligaments are not formed well, my knee socket is not the normal 'v' it should be, etc.

in reply to FibroJo79

Hypermobility syndrome is a genetic mutation which results in increased elasticity in collagen. I think it’s now recognised as part of the Ehlers Danlos group. The most obvious manifestation is unstable joints, but there are often signs of more generalised problems: POTS, proprioception issues, soft tissue problems (my bowel is unusually long and floppy and my bladder has twice the normal capacity) etc. It’s an extremely variable condition; some have it more mildly than others, and some have some elements but not others. It’s also genetic (autosomal dominant) and there is plenty of evidence of it in other members of my family. My knees aren’t too bad (though they have slipped out) but my ankles are dreadful and I have orthotic devices and exercises to help with with that.

Canbedone profile image
Canbedone

Jo, Same here but it seems to be since I have my vaccine. Forearms, upper back and neck for me. Skin also sun-sensitive. I had the same with COVID to so it seems to be the vaccine might cause the same. I recognised the spots from your description. Having had shingles it is not that. small episode on the first jab moreso on the second. After 4 weeks I am wondering when it will calm down.

FibroJo79 profile image
FibroJo79 in reply to Canbedone

Sorry you are dealing with this and had covid! I haven't been able to get vaccinated yet in Malaysia, so not sure what reactions it may cause me.

bora62 profile image
bora62

Hi just seen your post, I have 2 patches on body that itch ,I on feet and the wrist is under bust about 2 inches down, had it for years, itches badly and have to scratch it , have broken veins in area, skin is now tough and different colour ? tried capsaicin cream from docs and just burnt me. tried chilling creams and everything known to man..Been on tel Telfast for years, still didn't stop it. Nobody seems concerned and offer no explanation !! no help at skin clinic, no help anywhere !! we on our own lol. Hope you get some relief.

Animallove profile image
Animallove

Hi there, Yes a lot of the time, it drives me crazy. Sometimes it feels like I have been bitten or stung. Sometimes like creepy crawlers are on me. I use arnica gel which relieves for a while.

Not what you're looking for?

You may also like...

any suggestion for the eczema I have on my hands.

Hi, That's because I had to use too many different lotion for the eczema on my hands, which was...

Any suggestions please?

Good evening,Iam not sure if there is anyone up still but I need some advice.My 5 year old son keeps

ANY SUGGESTIONS?

gastroenterology in January. I have started getting very small spots on my face more like a rash...

Has anyone any suggestions for hip pain?

them, I've rubbed deep heat in and I'm currently sat here with heat pads on both sides but nothings...

Problem - any ideas/suggestions much appreciated

twittering again. Re. left buttock. Greatful for any suggestions. Tulip xx