Just been diagnosed with fibromyalgia after 2 painful years and thinking I was a hypochondriac at 44 .
After having surgery for tennis elbow that’s when it all went downhill from there really .constant pain in parts of my body I couldn’t explain how or why , really bad fatigue even after 8 hours sleep a night , headaches I can literally smash my head against the wall , muscle cramping (unbearable) at times . Now my newest pain is my hips , in my job I’m very active and I walk daily to fulfill my duties at work (site warden ) but my god my hips are killing tops of my thighs and bum .
If anyone has any useful tips I’d really appreciate it
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Jellytots2004
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So sorry to hear this, but glad you have a diagnosis as this can be super helpful and eye opening. I am also recently diagnosed and have found it incredibly beneficial to meditate and do some mindfulness. I was very skeptical but it has helped my migraines immensely. Also I know there is great emphasis on finding the right exercise for you. I have not found this yet but know a lot of people love swimming and some kind of yoga x
Have you been prescribed any meds? Been offered physio? Or referred to the pain clinic? All of these routes could be worth pursuing.
I normally use my TENS for hip pain, and take lots of Epsom salts baths. Movement of some kind of also critical, maybe some stretches would be good for you - since you do a lot of walking already by the sounds of it.
You may need to find ways to 'pace' yourself, maybe by doing a bit, resting a bit and then having another go. Break up the jobs into smaller bits if you can, or go a little slower.
What are you a site warden for? if its an indoor job such as going into people's homes to help, you may need to not rush. If it is an outdoor job such as a park or building site, where speed can be essential, you may need to cut your hours, before you harm yourself.
Fibro limits most of us in one way or another, for me, its hips, knees and spine mainly, and I also have a small but significant amount of hyperextension, which doesn't help.
I hope your GP is supportive, because you will need his help with your ongoing treatment.
I’m a site warden for the elder and disabled with local authority. I do pace myself at my own speed there no time frame in my work apart from visits must be completed within that day . Generally I’m an active person more before my surgery but sadly that went wrong and I ended up with limited use of my arm . Then this unexplained pain , cramps , puns and needles , headaches etc got worse .
I’m speaking with the doctor on Wednesday about various treatments medication .
Just new to all this and a friend of mine who also has fibromyalgia said join a group etc for support and suggestions of alternatives.
Hi,I had similar issues before I was diagnosed with fm. It seemed over a course of two years that I was getting pain in every joint in my body ( except 9 toes!). My worst pain was in elbows, shoulders, neck, back and the headaches. Feeling just as tired when I woke up was a biggie too. It got to the point my fatigue was so bad I couldn’t concentrate or string a sentence together.
About 6 months after diagnosis a lot of the arm pain settled down and the elbow pain and pins and needles in hand disappeared. I think some of it was having an answer to what it was rather than worrying about it. Plus my job was less stressful.
The other issue was I have been diagnosed with moderate sleep apnoea and this was the main reason for waking up just as tired after a nights sleep. I now use a cpap machine overnight and it’s made a huge difference to my alertness during the day, I feel totally different when I wake up now.
This hasn’t cured the fibromyalgia fatigue completely, I still have times when I have done too much and fatigue gets bad.
Like you at the moment I am having hip pain when I walk and have gradually increased the amount I walk so I stop just after the hip pain starts and then the next day I can go further.
I also found the headaches seem to be a tension thing caused by my neck and shoulders being tensed up. I find using a hot pack on there helps me release the tension and improves the headache.
Hope you can get the right therapies for you sorted soon.
My pain settles in my hips as well, especially at the end of the day. Heat helps - I have several microwave pads I use, plus I've got a heating pad at my office to use when I can. A TENS unit helps too. And if you position the pads well you can use it while walking. Good luck!
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