Burning 🔥 Tongue Syndrome

[Persianprincess69]

I am in despair with burning 🔥 tongue Syndrome. I have had if for the last 3 years & can’t eat spicy food, minty things, wine.....& the list goes on.

I was diagnosed with fibro 9 years ago after many many years of suffering.

Does anyone else suffer from this & does anyone have any advice to help it?

My tongue is constantly sore and doesn’t look very ‘pretty’

I would love if someone could help me. 🙏🏽

Hugs to you all,

Leeza 💐

[desquinn Partner Volunteer FMAUK Trustee]

Was anything in your previous post healthunlocked.com/fibromya... of help. I was going to suggest sjogrends but that was covered in the last post. What does your GP say?

[Pte82]

Have you tried P-5-P?

[candyfloss66]

I have same issue, was prescribed Difflum mouthwash from the Ear Nose and Throat hospital, does not get rid of it but does calm down the symptoms. Hope this helps.

[2pods in reply to candyfloss66]

Difflam today is not the Difflam of old though. The old version could actually numb your mouth, tongue, and gums. Just like a visit to the dentist.

Unfortunately the current stuff is not as strong, so doesn't do much for my burning mouth, tongue, and throat.

[MariLiz]

Have you had a blood test to check your B12 levels? Low B12 is often a cause of a sore, burning and scalloped tongue. By scalloped, I mean the edges are rough. It can also be a bit swollen and easy to catch with your teeth.

[LoneEra in reply to MariLiz]

Interesting. Mine goes scalloped on and off - totally whimsical. And only happens for an hour or two at a time. I’ve never gotten to the bottom of it. But I do have an inflammatory form of arthritis so I’ve always assumed it’s just another dodgy body part 😂

[Mum007]

I get exactly the same thing but I have burning mouth syndrome. Tongue, gums, teeth and roof of mouth. I was told it was probably hormonal and could last weeks or years and be constant or come and go but offered no medication. After months of searching I came across alpha lipoic acid several times. ncbi.nlm.nih.gov/pmc/articl... I got doctors best ala 600mg from the internet and within a couple of days it was gone. wow relief. It came back the next day so I continued to take the tablets and that kept it away. Did this for a couple of weeks and then stopped and I have been fine for a couple of years until recently it started again. I dug out the old pills nearly 3 years out of date. I remembered they gave me a headache so I opened the capsule and discarded a little and closed up the capsule and swallowed it. After a couple of hours I had relief again. So now I take at the first sign of trouble. Give it a try. By the way don’t be tempted to empty the contents of the capsule on food or directly into your mouth. It will burn your oesophagus.

[Makie-Uppie]

Itchy gob, I too can not touch anything nice. Spicy a d strong flavours are out, often quicker than they go in. But I get itchy mouth and it feels like it is inside the bones and teeth and I can not get at it. I use a strong mouthwash. It is very burny for a while but I get some relief from the itching. Ice-cream works too but it takes about a kilo to work, not good for my figure. Funny how most people can recount something similar.

[Dawndanks]

Hi,

If it helps at all my entire mouth feels like it's burnt after I take sumatriptan. This happens every time I take one, said perhaps it could be a medication that you're taking?

Hope you feel better soon 💕