Fibromyalgia Action UK

Burning Mouth Syndrome

Does anyone else have burning tongue, gums, pallette & jaw line...even throat on worst days? Miserable & on Gabapentin same drug used to help...so NO help! Ear Nose & Throat Specialist says allergy but doesn't seem understand nerve issues. I say it's nerves acting up in new spot...over 6 months PAIN in the mouth!

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No, I don't but hope you feel better soon!! Take care . Peck.🐤

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Hi BeezyB

I was diagnosed with Burning Mouth Syndrome by my dentist about 6 weeks ago.

She told me that it was classic symptoms of B12 deficiency.

She also advised me to get some Vitamins and some Daktarin cream (which is actually a gel) from the chemist.

It may be worth asking your GP if you can be tested for a B12 deficiency.

I told my dentist that my mouth was incredibly sore and when I cleaned my teeth it burned like mad. She said "that's why it's called Burning Mouth Syndrome" !

Lu xx

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My vitamin B tested normal plus due to Hemachromatosis my liver doesn't process vitamins. Thanks for input however! I'm in US so not sure cream available here but I can check. More than anything I'd like to know if condition is relative to any specific conditions...ie: Lupus or Fibro - etc

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I do have similar, sore tongue cracking in places and storing food and other oral debris! upper gums get sore and loose soft tissue, I have been having checks at the Dental hospital for years to see if its Sjorgrens.. I do have B12 injections twice yearly from G.P

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There was an interesting article in the Daily Mail the other day about this problem I cut it out but Im not sure how to put it on here, basically there is such a thing as burning mouth syndrome, it says it could be deficiencies such as B12 or iron as already said also oral thrush , side effects of acid reflux , or of certain meds . Apparantly pain control would be nerve blocking painkillers such as gabapentin which you have tried or amtriptyline , you can also get specific mouthwashes and sprays which help , hope this helps a bit

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Can you take a picture of article? Appreciated : )

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Yes I'll have a go, don't know how it will come out, if you can't read it perhaps I could send it by e mail which would be bigger

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Ok

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I've put a new post up, sorry it's so small 😟

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Ok

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I have same symtoms, its all drugs I'm using, I'm going to try and cut down and just. use paretemol, finding mental health symptoms getting almost worst than pain x

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Doc thought that 2 but went off meds & same issues just more miserable..hope you find help..I keep asking is it worth losing my brain to avoid pain!?!?

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I have pain in my mouth and am under our local dental hospital- I was referred because of a dry mouth and was investigated for sjorgens syndrome which I don't have. Along with the dry mouth I get a couple of different types of pain , one is pain when I eat thing s for example even mildly spicy food. I also get a pain which feels almost like an allergy when I eat toast ( at the back of my mouth in the roof) but not always. Then I get pain in my gums - usually near the back, they swell and the pain goes up to sensitivity and soreness on my cheek and in my eye. I'm seeing the rheumatologist later so am seeing if these things are fibro related. The dental hospital diagnosed 'burnt mouth syndrome' xx

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Misery hu!? Be interested in what Rheumatologist says...Take care

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It is miserable I agree. The rheumatologist would say if the pain in my mouth is anything to do with fibro as he isn't a dentist! But he did say that it could well be as the soreness on my cheek and in my eye are probably due to the sensitivity of the nerve endings. He also said that the majority of fibro symptoms would reduce in intensity if fibro and even go if people with fibro had much more sleep and a better quality nights sleep. He is a big advocate of sleep problems being a big part of the sensitivity of nerves . I don't go to bed that early as I can't sleep if I do but I think I am going to give having more sleep a bit of a try and see what impact it has. I'll try to let you know about the dental hospital when I go at the end of October . Take care , hugs

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Very true on lack of sleep 4 ALL conditions...I've had it on outer lips plus cheek & nose burning too. Funny my dentist wouldn't Dx as BMS wanted me see EN&T specialist. All different! ! Figure it'll just move on like other nerve pain to new spot of misery.

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Yes I agree , the different specialists seem to have different ideas on who should see you. I haven't had the pain in my lips but they are incredibly sensitive to touch these days and even my make up brushes feel painful on my face sometimes - such a miserable condition . Take care

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My lips similar not burning pain like mouth more like a constant sunburn feel & tender to apply chapstick or lipsticks. Don't have that issue with makeup brushes on cheeks luckily. Hang in there!

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Thank you

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I am so genuinely sorry to read that you are suffering in this way and I sincerely hope that you can find the answers that you are looking for. It is not something that I personally have but I want to sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

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Greatly appreciated

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:)

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