First covid jab .and Fibro

[Taylor68]

Hi .I had my first covid jab on Saturday I was a little nervous but happy to have it done .It stung abit when she was putting it in .that the hypo sensitivity we have .From 9pm that night I started with a flare up the worst I've ever had .I was up and down all night .pain everywhere. The arm I had the jab in was fine and for the first time I didn't have headache. My body was having a battle with the injection or something. I was no better yesterday I slept on and off all day .This morning my arm hurts now and a slight headache but feel hot .I'm over the flare up just no energy .Has anyone else experience this with injections

[Ski2020]

That is exactly what happened to me I had mine 3 weeks ago. It took me about a week to pull myself round but I was fine in the end. Although some friends I have who had it still suffer with fatigue 3 weeks down the line and they don’t have fibromyalgia. Guess where all unique. Hope you feel better soon xx

[Dizzytwo]

Hi there, that is the normal side effects for most people whether they have fibro or not.

I had mine last Tuesday and was of it for a couple of days. The sore arm effects most of the population I would think. They are injecting in to muscle so its bound to feel sore for a few days.

I hear people talking about having flare ups or worrying about flare ups due to the vaccine. I'm not sure why. In my opinion people with fibro should be no more susceptible than those who dont have it.

I suffer from severe anxiety and I personally feel anxiety will effect what or how we feel when we have the vaccine or anything else. Again this is just a personal opinion.

I hope your feeling more yourself now. If you still feel off it longerthan a few days why not give your GP a call for reassurance

Momo

[moo196]

Totally normal irrespective of fibro. Usually 2-3 days.

[Hidden]

Hi Taylor68. Had it too and even when I saw on the brochure that it mimics some fibromyalgia symptoms I did not pay attention.

I had in the morning but had no problem whatsoever. But at 9pm, I flared. It was rapid and I was in so much pain I cried. Luckily, I managed to sleep and by morning the severe pain had gone but I was so week and there was muscle pain in parts. By the second day everything was gone. That is not the way my flareups act. They come slow, they are a cluster of symptoms and they last months.

I was reluctant to write about it on the forum in case I put people off. Here is the thing, even though I had that experience, I would still do it again. It was no where near the real thing.

Have a lovely day, fighters.

[Taylor68 in reply to Hidden]

Hi thanks for that .hope you have a nice day .I'm doing ok now .It has to be done

[Cat00]

I seem to be the only person who hasn't got a vaccine sob..

[Taylor68 in reply to Cat00]

Ring your doctor and ask where you are on the list .I did .then the next day I got a txt from the NHS.

[Cat00 in reply to Taylor68]

There's a very stroppy message on the doctours answering service telling us not to call them about the vaccine unfortunately.....

[desquinn Partner Volunteer FMAUK Trustee in reply to Cat00]

the vast majority of people with fibro are awaiting their Jab based on age. I do not expect to get mine for a while yet. But thankful that with the way they are doing it that more people are getting done quicker.

[Cat00 in reply to desquinn]

Yes and I am only 43 except my brother who is 38 and my friend and her husband both 41 have had it, my husband who is 38 has had it none of whom have any underlying conditions and all of whom go the same surgery, so you do start to wonder....

[desquinn Partner Volunteer FMAUK Trustee in reply to Cat00]

some areas are doing things a bit quicker. Medications can make a difference as well as conditions like diabetes. Also paid and unpaid carers. There are a number of variables that can have people "skipping" the line.

This is why age based approach makes sense.

a) what age are you?

or

a) what age are you?

b) do you have condition X

c) do you take medication Y

d) do you do job Z

more questions equals more time. And when groups are completed there are catch-ups to include people that have been potentially missed.

[Cat00 in reply to desquinn]

To be honest I wasn't too bothered until the said they were shutting the list down for a month. Also I know these people aren't on any meds unlike me, although my husband did have cancer but that was 13 years ago but I assume that's why has had it. I just don't have tremendous faith in doctors and doubt starts to creep in.

[desquinn Partner Volunteer FMAUK Trustee in reply to Cat00]

once they get to group 10 we will have more info I am sure. I am just of the opinion that I am not due it yet and when they get to group 10 then I will then look at it.

gov.uk/government/publicati...

[Cat00 in reply to desquinn]

I need patience! It's a hard skill to muster.....

[Cat00 in reply to Cat00]

Soooo I had my vaccine today. It turns out I probably could of had it in January when my husband got his. But they don't tell you that if you live with a person who is shielding that you qualify aswell!

[Taylor68 in reply to Cat00]

Hi my husband is shielding. I wish I would of known that .Does that go for kids all so .I have my son with us .Glad you had it now .

[Cat00 in reply to Taylor68]

Go on the website - nhs.uk/conditions/coronavir...

I got a jab for the next day. I don't think children would qualify but to be honest it didn't even occur to me to ask, but then my kids are 6 and 3. I would do it asap before they close all appointments for April. They really should've told us, after all we could have been exposing them all this time. I know carers qualified but he is my carer, he doesn't need any care so it never occurred to me?

[Taylor68 in reply to Cat00]

Thanks for that .my son is 19 so its something I might enquire about x

[Cat00 in reply to Taylor68]

Might as well!

[HawthorneBerry]

I had an awful day after my first jab. Pain everywhere and such a bad headache. My arm around the injection site was so painful and stayed that way for at least a week. As I said, the pain was everywhere but especially bad in the areas where my fibromyalgia affects me the worst. Hope you’re feeling better now. It is extremely unpleasant if you’re unfortunate enough to get bad side effects but definitely worth it xxx💜🧡💛

[Mackembabe]

I had my vaccine 3 weeks ago and suffered like everyone else then 11 days when I was just starting to pick up my arm went all red and hot in 2 places but not where the actual needle went in, took 3 days before it went back to normal, so if you get this do not worry it does go , stay safe Love & Hugs Xx🤗🤗