"Its probably your fibromialgia" - Fibromyalgia Acti...

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"Its probably your fibromialgia"

Oldhouse profile image
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A recent pain in my leg I contributed to normal pain I get daily or it was due to Morton Neurona in my feet, after contacting doctor he diagnosed an infection( over the phone) after being medicated for a week the pain in my calf increased , knowing my symptoms and having kept a diary of symptoms and type of pain I experienced and how frequent I realised this was unlike any I had experienced before and how I had been feeling over a period of 4 weeks were different, I persuaded my GP to send me to the hospital even though he insisted it was propably my fibromialgia, after blood tests and a scan hospital diagnosed a blood clot in my leg only milimeters away from my main artery now on blood thinning meds. ( I did not have the typicial signs of a blood clot

Word of caution to those who put things down to fibromialgia, it it doesnt feel right then seek help, do what you can to understand how this illness effects you as an individual and dont be afraid to consider other reasons. Even the consultant told me to never take things for granted if you dont think something is not right then get checked out.

I would like to pass on my thanks to all that use this site and share information, advice, personal experiences and support I wish I had found this earlier.

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Oldhouse
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rosewine profile image
rosewine

Excellent advice. When I had deep vein thrombosis I didn't have the typical symptoms either. My doctor kept on saying the aching calves was due to an infection. I collapsed and was rushed to hospital and was about to be discharged when a junior doctor queried why I had so many blankets on as it was a hot day in June and insisted a nurse took the nail varnish off one of my fingers. When she did he could see it was back and he insisted I had ablood test which showed how thick my blood was. Scans showed a thrombosis in both calves and I ended up in hospital for 2 weeks. As you say listen to your own body. Hooe you make a complete recovery. X

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

Hope you are now keeping better.

You are a typical examples of why we always say to people that new symptoms should always be checked out and not automatically assumed to be part of your fibro.

Even when I think something might be fibro related, I will still mention it to my gp - because they might pick up on something I'm not xxx

Carlt profile image
Carlt

I ignored an unbearably painful shoulder for nearly two years, dismissing it as "just my fibromyalgia" . I finally mentioned it to my GP who examined me and immediately sent me for a scan revealing a torn rotator cuff. Three weeks of physio and the pain was gone.

It's a shame I didn't mention the chest pains at the same time because then I might not be on the nonexistent waiting list for major heart surgery.

It's not always GPs who dismiss symptoms. In my case my situation is entirely down to my own stupidity.

JayCeon profile image
JayCeon

I've mentioned my 3-4 examples elsewhere. Especially my jaw ache for 3 years turning out to be 2 root inflammations shows that it's not just new symptoms to be wary of. Also I hardly what syndrome a symptom is associated with, because there are seldom connections which help (even knowing I have sicca doesn't really up to now). I want to find out what helps me. And I almost always do, using pain, sleep & gut diaries, my blog, very much my acupressurist (a fibro-Mrs.) who always thinks outside the box; and very, very occasionally one my 40+ docs didn't harm, but had a helpful idea - my alternative health practitioner a bit more tho, & never harmed.

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