No sleep

[Trixie18]

Well it’s 3am I’ve been in bed for 4 1/2 hours can’t get comfortable pain all over legs feel like I’m attached to a blooming electric point no sleep for me hope your all ok xx

[LisaSnow FMA UK Volunteer]

Do you have an electric blanket? The heated blanket really helps me at bed time.

[Trixie18 in reply to LisaSnow]

Yes love I do but right now I’m hot and my feet are burning thank you tho for taking time to read and reply hope your well

[Hazel_Angelstar Administrator FMA UK Staff]

Hate when i have nights like that. I sometimes end up getting out of bed and dozing on hubby's recliner chair downstairs xxx

[Trixie18 in reply to Hazel_Angelstar]

I’m hoping for a better night I’m shattered stay safe and thank you for taking time to read and reply much appreciated xxx

[Hazel_Angelstar Administrator FMA UK Staff in reply to Trixie18]

hope tonight is a better one. I sometimes use an aromatherapy muscle rub or massage oil on my legs when they are sore ... typically i've ran out the muscle rub, and gave my daughter's friend the last of my massage oil after she had a fall. I definitly need to order more

[Trixie18 in reply to Hazel_Angelstar]

Ahh hi thank you for your reply this is a lovely group so glad my gp told me about it hope you are doing ok x

[Trixie18 in reply to Trixie18]

I have just taken my pain medication so here’s hoping hope we all have a good nights sleep xx

[Judithdalston]

I have nights when I’m still awake at 4.30 am and later, tossing and turning ... restless legs. I have hypothyroidism as well as fibromyalgia and recently found research suggesting restless legs in hypothyroids could be caused by low ferritin( under 75)...might be worth getting your iron/ferritin tested to see if that might be a (contributing) cause.

[2pods]

I know how how you feel.I'm on my third week of "Electric" arms and legs. It feels a bit like RL but much more "buzzy" IYSWIM.

I've had Fibro for decades, but have never had anything like this before. The electric shock jump yes, but not this. Started with a really sore neck (still here), then really bad itches, and now this lot on top of it.

I'm now on my second lot of antihistamines (night time one with built in sedative), my prescription hasn't changed in over 3 years (Lansoprazole, Dihydrocodeine, Duloxetine), Doctor says bloods are fine. I have to wait until I'm really tired (about 1.30) to get to sleep, then wake up constantly. By 7.00 I have to admit defeat and get up. My legs are also sore to touch.

If I'm lucky (considering the virus etc) I may get a phone appointment in a couple of weeks, but I don't know what I'll do until then.

Sorry for the thread hijack. Just trying to show solidarity

👍

[bel29 in reply to 2pods]

I could have wrote your post lol that is exactly what I am going through at the moment, please let us know how you get on and if they give you something to help.Keep safe.

[BaffledKaffy in reply to 2pods]

Just one of the longer term side effects of Duloxetine I’ve had is Restless Legs Syndrome, which started after being on Duloxetine for several years. I am tapering off (halfway down from 30mg), but that issue still affects me on occasion. The one really weird thing that helps me is pickle (gherkin) juice. I drink just a small bit ~ 1/2 cup or so ~ and my legs settle down. Perhaps the vinegar or salt has the relaxing effect.

[gemmahughes1987]

Try a hot water bottle x

[2pods in reply to gemmahughes1987]

I have one, but she keeps moving 🤣😉

[fredsmummy]

Hello trixie

I get this lots. I have FND and fibromyalgia but I think they are both nervous system disorders.

I use magnesium spray on my legs at night , I find it helps with the buzzing but also really helps with restless legs which drives me to insanity! The spray helps me so much

[2pods in reply to fredsmummy]

Do you use the spray before you go to bed, or when the buzzing and RLs kick in ?(no pun intended)

[fredsmummy in reply to 2pods]

Well mine tends to be at night in bed anyway so mainly I use it at night. It’s apparently best absorbed after a bath too.

When I first put it on it was quite tingly for a few minutes, they say the more you feel this, the more deficient you are.

I also take vitamin d prescribed in high doses, I think most fibromyalgia sufferers are vit d deficient

[Trixie18]

Thank you all for your advice I’ve never heard of magnesium spray so that’s one to look for hope you are all well and keeping safe shame I cannot say I am as I have the dreaded Covid take care all xxxx

[Trixie18]

I have today had an appointment via telephone will my neurologist and going forward I will be having 2 injections in my head whhooo not looking forward to that xx

[fredsmummy in reply to Trixie18]

You poor thing , hope it all goes ok.