pain: can anyone tell me if they get... - Fibromyalgia Acti...

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pain

s2319
s2319

can anyone tell me if they get pain in lower back and hips, i know we all get other pains but lately pain in lower back hips and shoulder really getting me down.

Sorry for ranting on i am a 70 year old man diagnosed with fibromyalgia following trumatic brain injury and small stroke 2015

26 Replies
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Is it bilateral. ( equally painful both sides. ) Does it alter with movement

Is there surface numbness.

Are you taking anti inflammatorys. ?

s2319
s2319 in reply to Daldbae

hi Daldbaeyes its bilateral, cannot take antinflammetries because of warfarin, i am on gaberpentin also co- codamol

Daldbae
Daldbae in reply to s2319

Does it alter with movement. Is the skin numbness

s2319
s2319 in reply to Daldbae

yes there is numbness but it moves from side to side and hips

Daldbae
Daldbae in reply to s2319

It’s moving around as you move. You have some physical damage. Rest. gentle stretching. Hot bath. Cold compress. Your on meds that numb the area. So remember. Just because the pain is dulled. The damage may be increasing. Gentle. Yoga.

Get referred to pain clinic. 😉

s2319
s2319 in reply to Daldbae

Thank you very much for your reply, stay safe

Hidden
Hidden

Evening S2319

I get the most horrendous pain in both my hips and lower back nothing takes away the pain am on pregabalin, duxloxetine, co-codamol and various others, sometimes its so hard to walk because its so painful evening sitting can be painful to, so i totally understand your pain.

Have you tried heat pads on your hips and back, i find that it can help a bit with the pain but i have been told its probably down to osteoporosis, perhaps get it checked out may be an x ray just to make sure.

Panda

🐼

s2319
s2319 in reply to Hidden

sorry you are in so much pain ,and thank you for replying i will speak to my doctor which is hard due to corona virus take care

s2319
s2319 in reply to Hidden

than you for your advice, i will try heat pads to see if that helpsStay safe

Hidden
Hidden in reply to s2319

Hope it helps, stay safe too 😊

It could be fibro but in my case I suffer from sciatica, spinal problem and shallow disc. The best option is to do a scan etc. Thinking all is to do with fibro is dangerousTake care

s2319
s2319 in reply to Painny

Thank you i will speak to doctor, hope you keep well

Hello, sorry to hear that the pain is getting you down. That could barely be described as a rant and anyway this is the place to vent when you need to! It is likely that you have neuroinflammation from your brain injury and that may well be the cause (or at least contributory) to your fibro diagnosis. Do you have a good neurologist? I'll add a link to Micki Rose's page on brains - there is a link at the bottom and more information on neuroinflammation, as well as a link to Datis Kharrazian's piece. (His brain book is on my Christmas list!). purehealthclinic.co.uk/2020...

Best wishes

s2319
s2319 in reply to bookish

Hi bookish thank you for your reply, stay safe

I have pain in my lower back and hips due to Degenerative Disc Disease, unfortunately there are so many different reasons for this type of pain only a doctor could help. I hope you get some answers xx

s2319
s2319 in reply to Willow51

hello willow51 thank you for replying to me

Yup shoulder i made worse trying to do press ups. Not sure now if it's my rotator cuff again or a trapped nerve as some times i can move it and others it is agony and have been holding it still. Lower back i have put out several times this year and ended up on diazapam laid up on the floor for a few days each time. Hips i have had problems for 3 or more months and was worse waking up in the morning i ended up putting my matress on the floor and recently the pain has gone.

You need to try work out if anything helps/makes it worse. Pain diary maybe helpful as would checking in with your GP as it can get us down.

GL

👍

s2319
s2319 in reply to tw25

Thank you for replying i have a appointment with gp and will keep diary to show him the days i am in pain, family do not understand what the pain is like ,being a man they think i can bare itTake care

I have a heated massage cushion which has two adapters, one for the car and one for the home. You can choose the zones and the rhythm and speed and it's great when you have the heat on. If it's hard for you to get mobile, I recommend you try one. I never drive without it and if I'm lain up, I use it. It helps me.

thank you for replying i will certainly try thatstay safe

I suffer from pain in my hips too, and numbness on my skin on my bum. I get the restless legs feeling around my lower back and hips every night, it is so uncomfortable and it makes me desperate to get into bed. When I finally finish sorting my hubby out and getting him settled, I fall into bed and I wish I could go to sleep, but the feeling in my hips prevents me from falling asleep even though I'm exhausted. Then it starts all over again at 5am when hubby wakes up. I know the lack of sleep is making everything so much worse and it's the tiredness that causes the awful feeling in my hips. It's a viscous circle, like a roundabout that I can't get off.

s2319
s2319 in reply to madmel43

thank for taking the time to reply, I can understand the pain you have i also have more or less the same cannot sleep at the moment manage a couple of hours during the day, sorry you are also suffering at 40 years of age i am 70 and expect a few aches and pain but you are younghope you get some relief soon

take and stay safe

Yes get hip pain and twinges in my back I have to stop and straighten up until they pass and shoulder and arm pain particularly in my right arm my left isnt as bad. I have been taking omega capsules for about a month or a little over they dont cure it but ease to the extent where I can function mive my limbs and manage pain without pain killers which has quite amazed me. Heat also helps I find when my shoulder pain is bad I have like a neck cushion I pop in the microwave and put on my neck it helps relief the pain and I find it comforting. I hope this helps and sorry to hear of your illness it is tough one and I imagine it's hard to slow down if you had been independent beforehand. I only turned 40 and struggle to slow down it's been a hard 2 years for me.

s2319
s2319 in reply to Elizahl

thank you for replying sounds like you are having a torrid time ,hope you get some relief soon i am 70 and expect some aches and pains besides fibro but you are only 40 , i also find it hard to slow down always be active, untill brain injury and minor stroke.take care and stay safe

I'm a 52 year old male and I get pain in my left hip, lower back and my left groin as well. I hope you keep as well as you can.

Hi I would say that those areas are my worst areas for pain. Both my buttocks and sides of top of legs and hunch bones are in constant pain. It's a numby, tingling pain. Either sitting, standing or lying, it's there constantly xx

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