Why life why???

[Maddie21]

Sorry guys all I seem to do on here is complain.

Been for my blood test to b then told that my referral to Rhuematologist was rejected due to the fact that pain killers can't solve Fibro, and a suggestion of CBT (which I have already been through). I have informed the receptionist of this who is going to pass onto GP.

To add to this my colleague is doing my head it, no fully her fault tbh, she keeps picking on everything I do but tbh here she existence is annoying me today.

To add to this my fatigue is getting worse and all I want to do is stay in bed.

My anxiety and depression is also getting worse which again makes me just want to hide in a hole.

I'm only going to work because I have to but the mask is not working as well today and just feel really low.

Chosen to vent on here because at least you all get it without saying "oh well were ALL tired sometimes" or "I'm like that because I've not slept" or "we all get down sometimes".

[YASMINTINA FMA UK Volunteer]

Hello there, yes feel free to vent , I take my hat off too people working that have to wear masks for hours, I think people with conditions and now living threw this Covid have every right to feel down at times. I can honestly say I’m glad to be at home where we can switch off to it all, I would differently chase up your doc for a booked call back in a couple of days feeling depressed/anxious needs some empathy/understanding , so stick to your guns and seek that help. ( I have had both of these in my time and it’s horrid, ) holding down a job must be very difficult and I think when we are feeling unwell our tolerance levels of other people are not as good as when we have better days, we don’t mean it but I truly get it, my Hubble can tell when I’m not right as a lot more snappy and frustrated when Fibro rules, (i do say sorry as that’s not really me, sending hugs xxxx

[Blackwitch]

I’ve just been complaining too! I’m so sorry you’re having a bad time & I remember trying to work through it too. Yes, Rheumatologists do see people with fibro & they can prescribe meds that can help you. Please keep on at the GP or write in & complain to them. Yes, I already had RA so was seeing a rheumatologist already but he’s been a great help with my fibro too. Don’t give up. My GP surgery is useless too. Take care & stay safe. Nic xx

[JayCeon]

My rheums ideas didn't help any, neither did rheum. clinic, but you'd need to prescribe various forms of PT etc., I'd suggest - osteopathy and stuff. Also CBT with another therapist could be a whole new and better story... I did it much more than once. For anxiety books and mailing lists/forums helped me, too, a bit.

[Catrob12]

So sorry to hear you have a lot going on atm. I also have had bloods taken and was referred back to rhuematoligist only to be declined, it's so frustrating. Xx

[fabpup01]

Hi Maddie, so sorry to hear that you are struggling at the moment, I think that everything that is happening in the world at the moment isn't helping. I had an appointment with a rheumatologist earlier this week and he was extremely understanding. He has suggested two different pain killers to take alongside my amitriptyline, took bloods and is going to write to my GP to get it sorted. I hope you manage to get sorted soon.

[Canbedone]

Maddie,

Anxiety and depression can have chemical causes - it is not just in the head. Deprive any fit person of sleep and they will become irritable, tense and fail to function well.

The hormone that sends you to sleep is called Melatonin. It is not licensed in the UK for retail sales but you can buy -5-HTP Amino Acid from Oxford Vitality (search online). This a precursor chemical that becomes Melatonin and you can buy 5-HTP over the counter. 100mg tablets are potent and I found half is fine. They act in about 40 minutes and you get lasting peaceful sleep. The effect resets you body clock like it has cured jet-lag. It just helped me to get a decent night's sleep when I had lost my sleep rhythm. Then I was less grumpy and could think better. I also found it helped to relax muscle pain indirectly because tiredness made me tense physically.

Take you first one before a non-working day because you may find it hard to arouse after your first one.

Maybe this could work for you - it is not a drug but a natural product that just prompts your body to sleep.

From a web-site "5-HTP is not in food. Your body makes 5-HTP from tryptophan, another amino acid. While tryptophan is in many foods, eating more of these foods doesn't seem to have much effect on 5-HTP levels".

It works on you Seratonin cycle which affects you sleep pattern and your sense of well-being. Some find it beneficial to see off depression.

In my case something was disturbing my sleep cycle and I was constantly tired, irritable and over-sensitive to any negatives that broke my concentration. Just half a tab sorted me out for three days and over a few months I didn't need them anymore.

Good luck and best wishes