Had enough! Way to many negative moan... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Had enough! Way to many negative moaners on this site!

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Delete this if you wish but, if you do then there’s no saving any of these people.

People have openly confused and disrespected my option to fight back against my disease. I’m a positive thinker with practical ways of fighting back against this disease and do not accept the condition as life ending like most here clearly do!

This site serves no purpose than to appease the moaners and just say sorry your going through this condition. Sympathy never works other than to appease. I’ve been to the lowest of low and am constantly in the worst of pains. But, I will never accept it until death comes. Death by surrender is not the actions of either brave or tough people.

Acceptance of the inevitable is one way to look at it but trying to flung the dung back in a persons face for being a positive thinker clearly shows the minds of the person being negative and the people who show a liking for it too! I really pity you as you accept this condition and the fact that you have to insult a positive thinking position!

Personally no wonder people get this and end up in bed for years (like I did) and the end comes for them.

Last words... Fight back!

15 Replies

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Dazakella20105 years ago

I think it sounds like you have given up!!! I don’t feel that people are as you put it “moaners” on here!!!

Let you tell me a little bit about myself!!!

I’m 40..... was diagnosed with fibro when I was 33!!! In the last 18 months I have been diagnosed with blood cancer which I’m on chemotherapy for..... had to have my gallbladder removed where they accidentally found a tumour on my liver, been diagnosed with intercranial hypertension and now in the last 6 months have an arthritis setting in almost every joint in my body which is currently under investigation as I’m struggling to walk with the pains in my legs...... now I haven’t given up and I’m certainly not!!!!!! So if I’m not with all these conditions and believe me the pain I’m in daily is chronic then I believe others can fight too!!!!

Rabs550• in reply toDazakella20105 years ago

Well done to you it shows there are strong people on here and I'm sorry water that ladies is saying half of it I dnt understand I was diagnosed with fibromalgiya after over a year wen I diagnosed way before myself then arthritis suffering from anorexia and bulima disorder for 16 years now hypermobilty knock knees depression since 13 flat feet jaw pain lost 3 teeth due to my eating and fibro this site is to give surport to each other not crtisise we are here to help no body knows others pain every pain is different some can handle it and some cant that don't mean you leave horrible messages well done to you and great respect just 9 months ago I was 5stones 5 pound Ive been through help and back still here I it's been over a year I've atually been out lost my close friends and so on every feel dnw there are days wen u feel its to much that dnt mean ur gna die we are here to support each other to make us strong I hsve 3 children single parent my husband was abusive and my oldest daughter stared working and doing a business management course while I was half dead on bed and she's done well then looks after me wen she comes home also my 16 and 15 year old helps me my mum just be strong its hard every night day I cry with pain unbearable tomorrow ringing gp but we still have to keep on going xx well done to you you should be proud of yourself and I wish in anyway you had some relive wat kind of medication you take does it help xx ❤️❤️

mattoid-mags5 years ago

Please delete!

Dinkie5 years ago

Far from being moaners many on here tried their best to understand and suggest things to help you. Many of us see the positives in life regardless of our conditions without anger, bitterness and insults.

I wish you well in your quest.

mattoid-mags• in reply toDinkie5 years ago

Falling on deaf ears Dinks.

Dinkie• in reply tomattoid-mags5 years ago

Pardon😂🤣😂🤣 havent got my aids in😂🤣

mattoid-mags• in reply toDinkie5 years ago

🤣😂🤣😂🤣😂

5 years ago

Moaners? Quite the opposite! This place ha been a lifeline for me and many others at times!

Santori5 years ago

Does being positive include being judgemental? Because that's what labelling everyone on this site ''moaners'' sounds like.

If you want to battle with your condition, that's great. But people battle in different ways, starting from different places. Just because I don't climb a mountain it doesn't mean my progress is less worthwhile. Perhaps I just managed to vacuum and mop today, well that's an achievement for me, which I rejoice in.

I've met a couple of people in my life who called me a ''moaner'', once as a child, and it wrangled me for a long time. I was charged by this accusation at an innocent comment I made. On hindsight I realise she was reciting what she'd heard others, probably her parents say, as it was totally inappropriate in the context. I now think what an emotionally immature person she was. At the time she was widely recognise as the class pest and generally disliked by all. I talked to her because I'd felt sorry for her. Her remark made me realise how naive I was to have done so.

The other occasion was in the gym, when a casual acquaintance suggested I was moaning, or something like that. He then hogged the conversation to tell me his woes, at length. He had piggy backed on my openness, by putting me down and high jacking the conversation to be about him. Selfish, and unkind describe his behaviour. This middle aged man worked as a painter of cars. Not a job not requiring highly developped people skills.

By contrast I've met people, in very powerful positions who validated my concern. Their attitude was refreshing, it helped ameliorate my suffering and made me respect them more.

So when you invalidate other people's experience it says more about you than it does them.

Cat005 years ago

Plus we know that fibro can activity target the part of the brain determines mood so even if people "moan" it maybe out of their control so really you're just not acknowledging part of their disability.

GillyGangGong5 years ago

I think people with fibromyalgia and other long term health issues are really sensitive loving caring people. Obviously not all. if this site isn’t for you go away quietly. Of course people are going to discuss symptoms, loss of friends comments ect there’s no need to make a deal out of it. If you’ve nowt nice to say leave, start a new group if your own.

SSekouB5 years ago

I’m sincerely sorry that you are in so much emotional pain.

Lashing out to hurt others and make them feel as miserable as you’re feeling inside never has the “empowering” affect you think it will.

I’m sorry you don’t feel seen, or supported, or validated.

How appropriately sad that you are “Hidden”.

desquinnPartnerVolunteerFMAUK Trustee• in reply toSSekouB5 years ago

Hidden is the display name given to accounts that have left the site.

penny5 years ago

“Wouldn’t life be dull, wouldn’t life be flat, with nothing whatever to grumble at?”

desquinnPartnerVolunteerFMAUK Trustee5 years ago

I had thought about deleting this post but I think the response overnight has said more than I could have. Support is what this site is all about but it needs to come at the right time for the person. Sometimes it is not the correct fit as in this case.

Lashing out at people trying to support you is not going to help you at all and will cause conflict with others which will increase stress. Also arguing with everyone else and saying they are all crooks, frauds or idiots should lead to a moment of realisation where you need to look at your own place in things.

Will lock the post as it has already wen where it needs to go.