New to this site: Hi, I have been... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,448 members66,492 posts

New to this site

Charlie3019 profile image
12 Replies

Hi, I have been suffering in denial with fibromyalgia for some time now. At first I just thought it was a name given to something the doctors couldn't give an answer to! But reading more about it and other peoples experiences I now accept that I have got it. Just recently I tripped - didn't fall just tripped over a small branch and it made almost every part of me ache like mad and has taken four weeks so far to start to get back to feeling a little more comfortable. However I have also started with pain in my collar bone which seems to be getting worse. I have been to my doctor who is sending me for an x-ray to rule other sinister things out.

I have been doing the Alexander Technique for the past 10 weeks and feel like it is helping me - in fact I was feeling really good just before my 'trip' !!!! you can imaging how I felt after that - I got and still am a little depressed about it. My doctor says that the Alexander Technique is probably one of the best classes anyone with Fibromyalgia could go to so I will stick at it.

End of rant - I don't usually do anything like this, I tend to just keep everything to myself but sometimes you just have to let go !

Written by
Charlie3019 profile image
Charlie3019
To view profiles and participate in discussions please or .
12 Replies
Trikki profile image
Trikki

Let go all you like! We all have to at times to remain sane (well some of us!!) there are those who walk amongst us that may not be the full shilling!!! only kidding he he!! Never tried the Alexander technique so will look that up. Glad your dr. is sending you for x-ray to rule out anything else. I really don't think people can understand how painful a trip/knock can be with fibro and how long it takes to recover.

Go with care Trikki x

Charlie3019 profile image
Charlie3019 in reply to Trikki

Thanks Trikki

BlueMermaid3 profile image
BlueMermaid3

Hi Charlie3019

Welcome to the forum 😊

I think many of us can relate to being in denial as far as having a Fibromyalgia diagnosis goes.

If you have a look at our mother site you'll find lots of information about Fibro fmauk.org

I have had Fibro and CFS (Chronic Fatigue Syndrome) for 30 years, but am still learning about the conditon.

I completely understand what you are saying about having jolted your body and are still recovering.

Depression is very much a factor with Fibromyalgia but it sounds as though you have a good relationship with your GP which is key. I'm glad your doctor has agreed to an x ray.

We are very much an all inclusive group and welcome everyone, so please do jump in with any posts, jokes or anything else that is going on.

Wishing you less pain and more peace

Lu x

Administrator

Kitten-kat23 profile image
Kitten-kat23

Hello and welcome to the gang.

Charlie3019 profile image
Charlie3019

Thank you for the very warm welcome from all of you.

woopcushen profile image
woopcushen

hi charlie, welcome to our home from home

sorry to hear your suffering after a jolt, our bodies seem to take longer to heal with fibro. i also did alaexander technique years ago, it definitely helped. i should do the course again, as it was many years ago and i got lazy and cant remember most of it. i hope it helps you more. and you get that collar bone sorted.

hugs and have a good day

woo xx

Charlie3019 profile image
Charlie3019 in reply to woopcushen

Thanks Woo, yes do it again I'm sure you will get back into it quickly. I'm hoping that once learnt that I will keep going once a month to keep it up.

phlebo123 profile image
phlebo123

Hi Charlie,

It sounds like you are learning to handle fibromyalgia well, but it is amazing how a small setback (your tripping up) can really knock us for six!!!

I was interested to read about the Alexander technique, and wondered if you could tell us more about it. Were you referred to the classes by your doctor?, are they available on the NHS?

I too, am a bit like you, I keep everything bottled up inside, I try not to bother others by moaning about my aches and pains, I have decided that they would soon become Fed up of hearing about my numerous symptoms.

I am glad the Alexander technique is helping you....please let us know more xxxxxx

Charlie3019 profile image
Charlie3019 in reply to phlebo123

Hi, a physiotherapist recommended I should learn the Alexander technique and my trigger point injection doctor also said it would be good for me, unfortunately it isn't available on the NHS. I just punched it in on google and found a teacher near me. I have also finally found a GP at our practice who knows a lot about fibromyalgia and Alexander technique so feeling very lucky right now 😁

take care

xxx

rosewine profile image
rosewine

Welcome to the forum. They say a trouble shared is a trouble halved and we hope by joining us you will feel that way. I think there is only so much you can stand on your own and fibro is such a complex illness that I think at some time we all need the support of others. Yes we have also found that just a simple fall that before fibro we would have got over in a couple of days seems to ahve consequences for weeks but unfortunately that is just the nature of fibro. Let us know if there is any way we can help.x

Steve49 profile image
Steve49

Hi.

It's great to meet you !!!!

You are very welcome to rant lat's what we are here for.

It's very interesting to read about the Alexander Technicque.

Can you please keep us updated with it ???

Please let me know if I can help you ????

Steve.

TheAuthor profile image
TheAuthor

Hi Charlie3019

I sincerely hope that you are improving day by day from your fall? Welcome to the forum and it is wonderful to make your acquaintance. I am so sincerely sorry to read that you have been suffering and struggling and I want to genuinely wish you all the best of luck, and that your Alexander Technique continues to help you.

Al my hopes and dreams for you

Ken

You may also like...

New to site, new to blogging

I have been following site and feel I know some of you already. I am 51 diagnosed with hyper...

Hello im New to the site

11 minutes agoRow73 Hi I've just been told they think I have fibromyalgia too so I've tests and...

new to this site, but not new to fibro!

told I have been taking them for too long and have to stop, thus bringing on a lovely bout of...

New to the site but old to the complaint

I don't waste precious time). I have friends and family who have been incredibly supportive in the...

new to this condition and the site

needinghelp and i have to use a wheel chair if walking more than twenty feet. i feel so silly and...