Please let me know.: Does any one have... - Fibromyalgia Acti...

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Please let me know.

LiimaY profile image
15 Replies

Does any one have degenerative disc disease.And sciatica arthritis on top of your fibromyalgia if so please let me know how you dealing with disease.

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LiimaY profile image
LiimaY
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15 Replies
M0AL61 profile image
M0AL61ModeratorVolunteer

Hi, yes I have degenerative disc disease, also osteoarthritis and fibro, along with diabetes and also a very rare genetic syndrome, which also causes me a lot of pain.

I am on quite a hefty dose of medication, which helps to a certain degree, but I am always in pain and have just learned to live with it over the years.

I do find that for me a hot stone massage helps, as does reflexology, but because of Covid19 I obviously haven't been able to have any for a number of months. I think it's all about finding out what works best for you. xx

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff in reply to M0AL61

I've a hot stone massage booked for next Saturday .... It's not coming quick enough xxx

M0AL61 profile image
M0AL61ModeratorVolunteer in reply to Hazel_Angelstar

They are still not allowed to do them over here, as far as I know. xx

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff in reply to M0AL61

I was meant to have one last weekend because they initially said that remedial sports therapists could start back, then they said they couldn't - and apparently they have now been given the go ahead again.

Although beauty salons etc cannot offer massage yet. So I can have a massage from a sports therapists but not in a beauty salon - is it any wonder we're all confused

Dinkie profile image
Dinkie

Yes like Moal61 I have osteoarthritis, DDD, fibro and a couple of other problems thrown in for good measure. I have regular chiropractor sessions, use hot wraps,tens machine, occasionally hypnotherapy and pressure point injections and injections into spine to help with the pain. Injection wise the ones in the neck didn't work for me but the ones in the back of the head did. Case of trial and error to find out what works for you as it is never a case of one size fits all unfortunately.

Adaking profile image
Adaking

Hi LiimaY, I have osteoarthritis on my spine, sciatica on top of fibromyalgia. Today I have been diagnosed after 7 years in pain and several misdiagnostics, test after test like nurve conducting study. Now I'm waiting for an MRI scan. My symptoms are getting worse over time.

Adaking profile image
Adaking

Did you have to shield because of fibromyalgia? I forgat to ask my doctor and I'm working at the hospital

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff in reply to Adaking

You do not need to shield with fibromyalgia

Jasharper profile image
Jasharper

I have diabetes, osteoporosis, and other spinal problems

030973 profile image
030973

I have degenerative back disease which have resulted in 3 slip disc and l have had metal fusion operation done on two of the disc remaining one disc still slip, l am diagnosed with fibromyalgia also and have arthritis on both my knees and hands and am not yet 50years old

Spacereturn profile image
Spacereturn

Yes I’ve got ddd sciatica and arthritis all over I have bu tran patches amitriptyline and mirtazapine tablets but I’m in pain all the time I don’t know what else would work I just put up with the constant pain and fatigue I must admit it’s getting harder to cope with it I can’t even brush my hair

sherrisix profile image
sherrisix

Yes, I do as well. Sports therapist was the best help for me, but they are expensive, so can't afford it often. Sending hugs

Chrisbel profile image
Chrisbel

I deal with the arthritis by taking large amounts of hyaluronic acid, 300-600 mg per day.I have done this for ten years now and it works for me. It takes up to 4 months to build up in your system and if it's going to work for you the arthritic pain starts to ease and mine eventually went away. The sciatica I deal with by seeing a specialist spinal manipulator in my home town who basically pushes the 4th lumbar vertebrae off the nerve that causes my pain down the leg. I was told 30 years ago that I had a "fair amount of wear and tear in my spine and I have found that with exercise , physio, diet and supplements, I am managing quite well. it requires constant attention but I live a relatively normal life. Hope this is of some use.

TK256116E profile image
TK256116E

Hi LimaY. Yes, I do have disc degeneration along with Osteoarthritis, Fibromyalgia but I think there are many diagnosed with this from what I've gathered both reading posts, my experience in NHS and life. Just look after yourself & do what is best for you at times of pain. Having a said that, when my spine feels like it's twisted after doing something inocuous as using the carpet sweeper for less than 10mins, I don't know what to do with myself!

Benzie1234 profile image
Benzie1234

Yes l have all of those. Not alot of fun! And very painful especially during a flare up which l'm just coming out of! Sorry to hear about yours.

I'm not sure what is the best treatment but l have found strong Cocodamol from my GP very good for the pain over a few days and I get a few hours sleep at a time. I hate taking them and l don't drive because they knock me out. Ugh! But l rested for a few days indoors. And I think they helped me over the worst of it.

I am reducing them now as the flare up is reducing.

I'm looking for a good Specialist in my area, Suffolk Cambridge and Norfolk.

I suppose l should ask my GP but l don't really know them because l try to manage it myself. I hate taking strong medication/painkillers for it and that's all GPs seem to offer.

I think I will ask my GP for a referral.

Although l was going to go private, l was so desperate last week!

Sorry about rambling on!

I hope you are feeling better today 😘🥰😍. BernXxxx

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