So tired and so much pain need a repreive ...

[Nemasi]

Hi all

Just a quick moan as the last week has been dreadful. I have been suffering with top of the spine pain so badly that my head feels like a bowling ball, my legs are so sore to touch in numerous areas as well as the stiffness and aching, also feels like I have lead weights attached to them. Taking the usual meds of amptriptyline , cipralex, tramadol and paracetemol which only comes out at times like these. At night I take up a hot water bottle up to bed, to help with pain, I drift off, but soon wake because of the severe pain and soreness of certain pressure points I lay on. Pins and needles down arm. The Alarm goes off at 7am and Im a nightmare to get up, luckily only have to manage to take son to school who 's school is only 5 mins walk away. Come back home then back to bed until at least midday. I then force myself to get up and do things as I feel so guilty. This seems like a constant cycle. On top of everything I have high blood pressure and have to take ramipril 5mg and they still cant get control of it, which makes me dizzy and nauseaus. The fatigue is so dreadful too like someone has sucked the entire life out of my body, yet no-one sees what we suffer. This diesease is taking control of my life , just want to be a bit normal if that makes sense! So sorry for moan, as I feel so alone just needed to get this of my chest, thank you for listening and my heart goes out to you all who are suffering this terrible illness.

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I feel for you Nemasi, off work myself at moment and today not a good day , I find this forum so good, others who understand.

I feel loved ones are busy with there own lives, last thing i want to do is off load my woos on to them, and as much as they love me, not sure they always understand. Often get well you slept all day, how can you still be tired. I force my self to do little things, but just do not have energy.

You are not alone, sending you gentle hugs Lou x