I gave birth to my 3rd child October 2018 had a traumatic delivery and anyway ended in severe pain for a months afterwards putting down to me being an older mom this time my body in shock blah blah blah but pain had been getting worse and all over my body in different areas on different days and my partner insisted I go to GP as I wake him every night crying out in my sleep but I cam never remember myself, I get confused and overwhelmed often and always tired but struggle sleeping , so Gp has run bloods all of them said nothing wrong but u do have vitamin d and calcium deficiency so take a 6 week course things will be fine, no I'm still the same if not worse ,I went back and was seen by a locum GP who listened , I cried in total dispare as I felt like I was imagining my pains , she then suggested I may have fibromyalgia I never heard of it, she has sent me for all the blood again to double check nothing has been missed, has told me once their back she is expecting them to all come back normal I am to insist with my GP I be referred to a rheumatologist to get a confirmed diagnosis of fibromyalgia and get support , is this correct procedure and have you got any advice for coping I feel lost and alone I've had to reduce work to 2 days a week as not coping with pain and wipes me out of energy, my partner is doing most of the housework I just feel lost and feel like I'm losing my independence and sanity
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Fibro80
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I'm so sorry you feel so rotten. It does sound like fibromyalgia, a very debilitating condition. My GP sent me to a rheumatologist who diagnosed me with fibromyalgia , she then referred me back to my GP who I must say is brilliant. It took a long time to be diagnosed, I was fobbed off for a long time, I'm sure I had it well before I was diagnosed. I'm on many pain meds but these just take the edge off, if I didn't take them I would not be able to get out of bed in a morning. I do hope you get some relief soon. Take care Lynne
Thank you everyone, feel a bit better knowing I'm on the right track , still trying to prepare myself for a full diagnosis as I understand there no cure it's all about pain relief and change of lifestyle and support network around me to help manage the condition, I've started to keep a pain record which I brought so I don't forget things when I see GP as it's more detailed, been to work today just got home I work in a pub so feel pretty wiped out and sore all round but yeah staying positive and will enjoy a night of cuddles and films with my daughter, gentle cuddles everyone
Thank you really appreciate the advise, I intend to try as active as my body will allow without overdoing it as I need to keep my muscles as strong as I can with looking after the little one and sont really want to be dependant on strong meds as they will knock me about a bit , so while I can I will , fingers crossed I manage it this way but I know I cant guarantee anything so one day at a time, I'm sorry your going through withdrawal that must be very difficult
Fully get what your saying, as that's one thing I'm worried about , being spaced out and not as alert due to medication , I used to be a senior carer before my daughter was born but did not could not return to that job due to fatigue and pain , so opted for a part time job at my local while I repaired my body after having my daughter or so I thought at the time, I saw alot of people struggling to function due to medication and that worries me , I hope your withdrawals are not to hard on you ,
Well done that locum GP! Somebody who seems to be up on Fibro!
Yes, that is usually the way it is diagnosed, by eliminating the other possibilities first, leaving Fibro to the last possible diagnosis. (Called Diagnosis by Elimination).
Welcome to the Fibro Club.
Once you have seen the Rheumy, he will probably discharge you back to the GP, who will hopefully start to sort out your pain meds, and possibly Antidepressants, Don't worry too much about them, most of them have a muscle relaxing action, which will help a little.
Then you will need to learn about the Spoon Theory, which will help you realise how much even small tasks takes out of you. (google is your friend here).
It's going to take time to get accustomed to it all, Its a lot to take in all at once, Thats what we are here for, we support each other with the various things needing knowing about.
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