How I try to cope.: Good Morning... - Fibromyalgia Acti...

Fibromyalgia Action UK

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How I try to cope.

7 Replies

Good Morning Lovelies, I think we are really special sensitive folk who FEEL everything, I had a good night, I took a Nytol and let my spaniel sleep on the bed, he started of under the bed, when he jumped up I told him to GET OFF a couple of times, so he must have sneaked up quietly in the night 'cause there he was next to me fast asleep this morning.

I woke only once with the dreaded all over pain but went straight back to sleep.

I now realise I have had F almost all my of life and I really feel for you if you have a family or a job to manage, or if friends and family are unsympathetic, it is a ghost condition in some ways......if you haven't had the experience you don't always believe.

I have taken fluoxetine on occasions when I can't stand it any longer but never until now have acknowledged I had F.

I really appreciate this group.

zxxx

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7 Replies
Painny profile image
Painny

I share your frustration with this debilitating condition. It has ruined every aspect of my life. The condition is real and I ignore people and doctors who frown upon me

Take care

in reply toPainny

Mine is worse in the winter, people think I hibernate, so I go along with that. To be honest I don’t suffer as much as most people who have it, summer is much better I have an old caravan on the coast it was the best thing I did when I bought it for £250 years ago x

Painny profile image
Painny in reply to

Wow ...a caravan for £250, Amazing

Touch wood, yours is not that bad and take care x

in reply toPainny

Just finding my way around these replies so late chatting, the caravan belonged to a family member who wanted to sell it ‘cause it’s so old was only offered scrap price, very basic, it’s my sanctuary and so pretty when I plant my pots and put the windbreakers up, being a short walk from the sea is so calming, following the long drive down and the long sleep afterwards interrupted by cramps I start to feel so much better, opens in March 🤗x

Painny profile image
Painny in reply to

We must enjoy the beauty of life whilst we can, nice 👍 way of putting it 🌟

Edenstar profile image
Edenstar

“Ghost condition” is one of the best ways of describing it in all fairness xx

You are right unless you have experienced it you don’t always believe xxx

in reply toEdenstar

Found your reply, people who have no empathy have much to learn. I put a post on Facebook a while ago, it was a big bird with one wing stretched out and lots of little birds underneath. It said something like “if u can b anything in this world BE KIND” don’t lose heart, they don’t understand x

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