My fibromyalgia

Hi my name is Rachel I was diagnosed with fibromyalgia a few years ago my meds worked for a while now they are not lasting keeping my pain away I want to go to a pain management consultant but not going through my doctor because she gestured with her fingers saying while doing it she said if you want that label when I asked to see a rheumatologist to confirm it was fibromyalgia I had as she didn't have a clue I had to diagnose my self

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BlueMermaid3

3 years ago

Hi there

Welcome to the forum 😊

It looks as though you could do with a new doctor to me!

You have come to the right place for lots of help, tips and advice. If there's anything at all you want to ask, don't hesitate to put up a post As you're new to the forum you may like to take a look at our mother site for more information on Fibro fmauk.org

If you look at the right of your screen you'll find simple steps on how to lock your post for the sake of internet safety. It's in blue under Pinned Posts. You may need to turn your tablet or phone sideways to be able to find it, or try clicking on "View 11 more".

Let me know if you have any trouble finding it.

If you need any help navigating the forum, let me know and I will be more than happy to help.

Wishing you less pain and more peace

Lu xx

Administrator

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Hartleyhare2

in reply to Shannon94

3 years ago

TBH my Rhume was so bad I'm glad there was no follow up appointment but I did get a diagnosis. The pain clinic offered three things the first was a CBT course of two hours over eight weeks with a lead physio and a psychologist who specialises in pain. Very informal take your own cushion and chats about pacing, overdoing it, the pain cycle and individual concerns. It was great to meet others with fibro, I'm not alone! They could then arrange physio, one to one CBT or a meds review. This is about six years ago when first diagnosed. My doctor referred me again last year but the system has changed. I didn't see a pain Dr but something between a physio/nurse practitioner but he couldn't prescribe plus both CBT psychologists are on maternity leave with no cover! I did get some very good physio on my neck and shoulders.

In my experience the pain clinics focus is to get you off painkillers, perhaps they are more hardened, whereas my GP has known me for twenty years and with that practice for 48! He seems more inclined to listen and at the end of the day it is the GP who prescribes the drugs not the clinic who make suggestions.

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