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Fibromyalgia Action UK
40,598 members • 52,671 posts

My fibromyalgia

My fibromyalgia

Hi my name is Rachel I was diagnosed with fibromyalgia a few years ago my meds worked for a while now they are not lasting keeping my pain away I want to go to a pain management consultant but not going through my doctor because she gestured with her fingers saying while doing it she said if you want that label when I asked to see a rheumatologist to confirm it was fibromyalgia I had as she didn't have a clue I had to diagnose my self

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Well what's wrong with being labeled with fibro, so long as that is what you have?

Unless she is admitting that Dr's see that and then say everything that is bothering is just part of your fibro. Cause yea, why would anyone want that.

But if she has a better label for it then great, I've been waiting for that.

I'm sorry you have to deal with that. I wish I could find a dr that made sense. Hopefully you will find one soon.

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Yes if you think about it some doctors actually admit fibromyalgia is a mystery to them as its to complex as all who suffer from it we don't all have the same symptoms so we're all unique in are fibromyalgia we all don't fall under one category like other illnesses

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Hi there

Welcome to the forum 😊

It looks as though you could do with a new doctor to me!

You have come to the right place for lots of help, tips and advice. If there's anything at all you want to ask, don't hesitate to put up a post As you're new to the forum you may like to take a look at our mother site for more information on Fibro fmauk.org

If you look at the right of your screen you'll find simple steps on how to lock your post for the sake of internet safety. It's in blue under Pinned Posts. You may need to turn your tablet or phone sideways to be able to find it, or try clicking on "View 11 more".

Let me know if you have any trouble finding it.

If you need any help navigating the forum, let me know and I will be more than happy to help.

Wishing you less pain and more peace

Lu xx

Administrator

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Hi and welcome!!I read your post and self diagnosis is the name of the game when it comes to FM!! I think you will find the help you need here aping with some fun.Look forward ti chatting wiyh you.Peck🐤t

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Hi peck hope your fine at the Mimas good as you can be

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It's pot luck if you get a good GP or a bad one. Fortunately my GP is in his forties very clever and forward thinking. He is always happy to here what I think as well before making descions which is priceless. Your call but I would complain and change GP. My GP has referred me to Rhumetology, the pain clinic and physio plus he has prescribed me very strong pain meds. It is even within their power to diagnose Fibro but most prefer a Hospital Rhume Consultant to do it.

Best of luck

Patrick x

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Yes it was a rheumatologist who diagnosed me but I don't ever see him as he said there was no follow up appointment I will try another doctor at the surgery worth a go

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TBH my Rhume was so bad I'm glad there was no follow up appointment but I did get a diagnosis. The pain clinic offered three things the first was a CBT course of two hours over eight weeks with a lead physio and a psychologist who specialises in pain. Very informal take your own cushion and chats about pacing, overdoing it, the pain cycle and individual concerns. It was great to meet others with fibro, I'm not alone! They could then arrange physio, one to one CBT or a meds review. This is about six years ago when first diagnosed. My doctor referred me again last year but the system has changed. I didn't see a pain Dr but something between a physio/nurse practitioner but he couldn't prescribe plus both CBT psychologists are on maternity leave with no cover! I did get some very good physio on my neck and shoulders.

In my experience the pain clinics focus is to get you off painkillers, perhaps they are more hardened, whereas my GP has known me for twenty years and with that practice for 48! He seems more inclined to listen and at the end of the day it is the GP who prescribes the drugs not the clinic who make suggestions.

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Hiya and welcome shannon94 I was lucky with my gp but read a reward post on hear that are mot so lucky could you ask for 2nd opinion I am going to chronic pain clinic next month arranged by gp wishing you good luck and hope you enjoy this site as much as I do Carol xx

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Hi Shannon94

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read that you are suffering and struggling and I sincerely hope that you can find some relief to your pain issues.

I want to sincerely wish you all the best of luck and please take care of yourself.

All my hopes and dreams for you

Ken

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Welcome indeed. There are enough good replies here without my two penn'orth so I'll wish you success in your quest. :)

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