I@m New To This

[sexto]

Hi I am Julia I am new on the site. I have had Fibromyalgia for several years now. I suffer quite badly when it occurs which at the moment I am suffering really badly. My whole body just aches and I am constantly tired. I thought the heat would help, but in fact it makes it worse. I never know how long this will last.

It will be lovely to chat to other people who suffer with it.

[Peder]

Welcome.. youre now among fellow sufferers, all suffering from different aspects of Fibro. There are a lot of people here with a lot of knowledge that may help from diet to meds. I know what youre going through.. this heat is unbearable. im working in an office with aircon, and i have a fan on fulll blast in front of me...however, when i walk out of the room, its like walking into a sauna. My heat regulation is all over the place as it is. cold one minute, hot the next.....

[sexto in reply to Peder]

Thanks for replying. I am constantly tired. I was put on medication but I unfortunately I did not get with the medication. So I try and work through the pain. I also do a lot of walking which helps for short periods.

It is lovely to hear other people’s stories.

[Peder in reply to sexto]

lol... im always tired..fibro, cfs, hashimotos, hypertension, reflux.. all on meds, all have side effects etc.. its like a constant war and battle..try to do what you can when you can and in small doses.. keep safe and cool.....x Peder

[sexto in reply to Peder]

And you x Julia

[YASMINTINA FMA UK Volunteer]

healthunlocked.com/fibromya..., hello there and welcome I think you will find the forum a good place to have a chat and read other peoples posts as well, gosh yes the heat I do like the Summer but this week has been a lot to cope with, it has definitely slowed me up I know but looking at others without the fibro they have too , constant tiredness is horrid I know , I got diagnosed with cfs as I was 100 percent sure I had this as well (was not easy as the two conditions are very similar) yes I have read here members are worse with the heat and our temperature control as I call it can be worse with extreme heat or cold. I have posted a link if you would like to lock your posts asconly our community can see, take care.

[sexto in reply to YASMINTINA]

Hi Yasmintina

Lovely to hear how you are coping with the condition. You would think the heat would help but unfortunately it seems to my situation worse.

I will look at the forum. Take care

[neesey1005]

Hi yes I have been having a tough few days - awful today because of the humid heat but hurray a storm is brewing so hopefully I will feel better tomorrow (and everyone else) - every bone in my body hurts today - but tomorrow should be better. ??? Neese. x