recommendations

[Doglover122]

Hello, my mum was diagnosed with Fibromyalgia 4 years ago and has tried acupuncture, medication, alternative therapies and pain relief. Has anyone had any success not in controlling their symptoms but improving their quality of life and healing? We’re willing to try anything. I’ve heard that some people cured their fibromyalgia with diet, but can’t find the link now. Any help gratefully taken!

[Echoblue]

Hi, personally I found listening to my body to do as much gentle movement as possible, whilst resting when I need to has helped give me back a key element of control. I walk when possible and also do some gentle swimming.

I take regular turmeric (curcumin) and have found that pivotal in improving my ability for movement and therefore my quality of life.

Physio and acupuncture helps my muscle tension, whilst being gluten free and shedding over 5 stone in weight have also all helped me.

I am not advocating anything here as am conscious that we are all so different and what works for one person may not work for others, but you asked what works for others and these have certainly help me.

I have noted that I suffer when I have had reason to stop the turmeric before so that would be the biggest shout out!

I wish you and your Mum well and hope you can find aspects that can help improve her quality of life x

[Doglover122 in reply to Echoblue]

Thank you very much for taking the time to reply. I will suggest the turmeric to her, from a quick search it seems to have so many benefits. Can I ask if you take it straight in powder form or as a tablet?

She has just started attending physio for her hips so hopefully that will have an impact too and help her to enjoy walks again.

Thank you for your help xx

[RayB in reply to Doglover122]

I suggest buying organic tumeric powder,, I buy 500gms at a time at very reasonable cost at one of the online auction sites rather than buying those little jars of ion irrdiated rubbish herbs that cost a fourtune in your supermarket. Just store it in a jar in a dark place.

You do need a bit of fat for absorbtion and piperine will assist as well.

I make up enough to do for a few weeks of this!

Gently heat a few tablespoons of coconut oil ,,, grind about a tablespoon of black pepper,,,add in about three Tablespoons of the tumeric.

If you make it to thick just add a bit more oil but you don't need to over do it,, there will be enough heat in the mix to melt the oil.

It will go to a thick gritty paste,, the taste is fine and expect a yellow tounge.

I take a 1/2 a teaspoon of this mix daily I don't think any more necessary or advisable.

I also suggest a diet with all inflamatory foods ommited Basicaly Grains, Dairy Fried foods, Coffee, Tea, Sugar, Sweeteners, especialy if there is any digestive or gut issues.

If supplementing D3 make sure to have some K2 in there with it,, preferabley as MK7

I concider this a wise supplement for anyone today but don't get into the this for that supplement sales road!

It's great to see someone wanting to do it without those awful drugs.

You could also look into the Mucusless Diet and can download Prof. Arnold Ehret's books in PDF for free.

Best Wishes to you and your mum,, Ray

[Hidden]

I’ve found being strictly gluten free has helped. Sugar definitely makes me flare up in pain. At the moment I’m trying a low carb diet. It’s not easy, especially as I’m vegetarian but I’m going to try it for a few weeks.

Another vote for turmeric from me. I buy tablets from Sri Lanka.

Main thing is to just listen to your body—- some days are better than others, some days are for keeping warm, sleeping and resting with just some very gentle movement when possible. Other days are better and able to get out a bit. Overdoing it when you feel good is so easy to do but not a good idea.

The best thing is that your mum has you for support and you’re willing to listen and learn about fibro. It’s not an easy condition to understand and often family and friends dismiss it out of hand.

[johnsmith]

What is fibromyalgia? It is a medical name given to someone with a list of symptoms. The cause for the list of symptoms can be one out of a possible list of many. In regard to the treatment of long term conditions the medical system is broken.

The most important thing one can engage in is meditation and mindfulness. Meditation to quieten the mind. Mindfulness to observe with skill what takes place. One has to investigate ones own condition to determine what works and what does not.

See my post "Meditation and Mindfulness for person with long term health disability"

healthunlocked.com/painconc...

It is a long post. In the post i have attempted to lay down the foundations for someone to engage in developing skills needed to improve their quality of life. It is not easy and is full of possible pitfalls.

My Post "Mental state and the state of the fascia Part1"

healthunlocked.com/painconc...

It looks at fascia. This I believe is very much involved in fibromyalgia. It is also I believe very much involved in emotional well being.

I have been to a number of medical conferences. I have spoken to quite a few medical students as well as consultants. Fascia and movement skills is not something they had ever studied.

I am fortunate that I have been doing Alexander Technique for 40 years and have had McTimony chiropractic on the NHS for 25. I have also been doing T'ai Chi for 40 years.

One of my courses that I did on my HNC applied physics was instrumentation and control. A course on feedback mechanisms. I have yet to find a medical consultant who knows anything about feedback mechanisms. This subject is highly important for the handling of a long term condition.

One of the issues involved in fibromyalgia is the sticking together of fascia layers and the over contraction of muscle fibres. To unstick fascia layers and lengthen out over contracted muscle fibres requires manual manipulation. The manual manipulation is a painful process and takes a number of weeks if not months of the right sort of work both manipulative and exercising. Meditation and mindfulness is needed to observe so that one can determine if one is doing the right thing.

There are lots of theories which can be banded about. To determine if the theory has any rightness in ones situation requires observation (mindfulness techniques) and investigation.

I will stop at this point. What I have said requires time to digest and mull over.

[redmaple-5]

Hi, I would recommend mindfulness techniques. You can download apps which are a great way to start. 😊

[caico]

Hello, I would say from my own experience of being a fibromite for about 14 years that changing your diet does help. I am gluten and dairy free apart from eggs; no tea (apart from herbal), coffee or alcohol; no sugar except raw honey; no chocolate, lots of fruit and veg (especially in smoothies); limited processed food and at least 2 litres of water daily. I no longer take any medication apart from a couple of paracetamol every night - bad side effects from the meds. I still battle with this awful condition plus dreadful menopause symptoms but I take each day at a time. I also walk my dog twice a day and try to keep moving during the day to keep the insomnia at bay. Hope this will help your mum. Ps. Acupuncture and homeopathy can help to a certain degree.

[Midori]

I have found that living in the past didn't help; I used to wallow in self-pity, and bemoan the fact that I could no longer be my former sporty self. Now I have let go of the past and live for each new day. I remember the past; but I don't regret leaving it behind, as there are new things to find.

I found myself mildly gluten intolerant, so I switched away from Chorleywood processed bread (standard Supermarket stuff) to Sourdough, which has helped a lot with the IBS. I also use as little tinned and processed foods as possible, and my son (carer) cooks from scratch for us both. Although not diabetic, I use a cookbook on Mediterranean foods for diabetics, and I find it helps.

I have managed to cut my medication down to Ibuprofen for pain, with an occasional dose of Co-dydramol when it is intense. Even the Nortriptyline is gone.

It may not work for everyone, but it does for me.

[Scoo1961]

Hi

I think yoga is good for fibro ? I and going to have acupuncture then yoga lessons .

I find antripline helps me sleep but it’s a

Anti depressants as well as helping with the pain .

I hope you find a solution

Take care 😁

[Quirister]

Having spent a small fortune on various treatments over the past forty odd years I have learned to accept it and get on with life the best way that I can. You may find help at your local Spiritualist church. Wishing you well