I keep getting really tingling lips at times and on ther occasions my legs go like jelly and give way its really bugging me
Does anyone get really bad tingling l... - Fibromyalgia Acti...
Does anyone get really bad tingling lips and legs give way at times with fibro x
I see on your Profile you list under-active thyroid. Do you have Hashimotos - auto-immune thyroid ? Low thyroid can often mean low vitamins and minerals. Tingling can be linked to low B12. Is your thyroid well treated ? - weakness can be linked to poor levels - especially low T3 .
Hi Bird88, yes, mine do that too!
I have been known to have to ensure I have spun both legs out of the car before I dare put any weight on for fear of a leg giving way. (it is a really odd but definite sensation that is tricky to explain to anyone who doesn’t have it and I sometimes feel it stronger than at other times) and yes, I also have tingling lips.
I don’t know if these are fibro symptoms or something else as they are currently investigating what else is going on. If you come up with any answers please post and I will certainly do the same.
Good luck and take care x
Hi yes my legs give way all the time i have lost count of the number of times I have fallen because of it and it is so scary. I also lose the power in my arms and can't seem to hold things for long which isn't great when you have a 1 1/2 year old who wants lifted. Hope you get it sorted but from my experience nothing gets done I just have to keep notifying my doctor when I fall which is useless.
Hi I don’t get tingles in my lips unless I’m getting cold sores but my legs do collapse under me all the time I’m like a rag doll hitting the floor blood tests come back clear and doctors said it is linked to my fibromyalgia but hospital told him it has to be investigated but only when I dropped when trying to leave the specialist office 😂 whoops so still now the wiser and it has been going on for some 4 years
Tingling lips is a symptom of low Calcium.
I take calcium daily, low dose and do try top up with arms when the sun shines.
Are your calcium levels low ? Calcium shouldn't be taken unless tested and found to be deficient.
Yes, I was low so gp gave me a 6 week course but told me to take calcium daily, always asks me if still taking when I see her.
I hope you are getting regular tests and for parathyroid as well because the two have to be kept within a tight range and must work together, elevated calcium is to avoided.
Yes, I pretty much have constant tingles in legs, feet arms and hands and also feel it in my lips and my balance feels off and wobbly. X
For me, my GP is clueless, hence I never go. So I find it very reassuring to read that others have the same symptoms as me. Wishing everyone well.
Yes I get tingling in my lips and I also get weak belly legs.can be quite scary.
Yes Bird, I have had the tingling feeling in my lips for years. It doesn't happen as often as it used to do though? I remember trying to explain to one of the GP's in my old doctors before I moved house in a different area, I felt so stupid after the look they gave me? My lips used to gradually start with the tingling that went stronger until I found my lips slowly closing into an "0" and froze like this for between 5+15 mins each time it happened? (still tingling!) Although my lips closed to a very tight "0" (& I looked pretty weird,) it wasn't painful but felt scary as I didn't know why or what was happening? As I only got diagnosed with Fibromyalgia approx 4 years ago I never thought it could be this? Now I'm told by my present GP's that "could have been" part of my fibromyalgia!! Also in answer to legs turning to jelly, yes I have that too and it sometimes feels like a 'heavy' feeling comes from my lower back through my hips down to just above my knees, where from here to my ankles quickly turns to jelly? Very strange feeling that can be quite scary if there's no where to sit down quickly?!! ( & yes, this has also been put down to a part of Fibro?) I hope you find some answers from your doctors, if they say it's something else than what I've been told, please let me know? Regards Angie x
Hi
I've had the jelly legs, I had to get my friend to come for me the other week as felt like I was going to collapse. Horrible. Take care. Love and hugs Lynne xxxx
Don't have tingling in lips but do have it almost constantly in arms/hands and legs.
Check your B12 levels and thyroid blood tests and check the results yourself.
Karen
Omg I just asked about lips to and yes my legs go like that to you are not alone it's driving me made