Understanding how much pain we really... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,957 members67,095 posts

Understanding how much pain we really do have

Emm-13 profile image
14 Replies

fibro would be easier if u could see it , this helped my family and friends realise how bad it is

Written by
Emm-13 profile image
Emm-13
To view profiles and participate in discussions please or .
14 Replies
Michdau1 profile image
Michdau1

So true!!!! X

Treewade profile image
Treewade

Its like so many other invisible diseases people don’t understand or accept it as real and you get tired of trying to explain this and the pic in previous post are great to show people to explain but some still don’t believe there’s owt wrong and call you names like mardy hypercondract etc I now avoid such people or ignore there comments it’s tiring trying to explain lol hugs n love xxxx

Emm-13 profile image
Emm-13 in reply toTreewade

Quite right , surround yourself with understanding people and the ones that don’t believe it’s not us that have a problem it’s them . X

YASMINTINA profile image
YASMINTINAFMA UK Volunteer

Agreed , I still think sometimes abit more empathy and showing kindness towards people with fibro would make us all feel alittle better.

Emm-13 profile image
Emm-13 in reply toYASMINTINA

Yes it would, I do understand how hard it is to comprehend, but that doesn’t mean that we’re lying, just because they think if the pain was that bad I would be in bed crying, been there done that and found it just made me worse .

Yes, we are bruised on the inside. I'm very lucky to have a great support network as well as all you lovely people on here. Love and hugs to you all Lynne y

Emm-13 profile image
Emm-13 in reply to

Ye me too my family, friends and docs have been amazing they have always believe me, but to actually see the pain helped a lot , it is hard to believe how bad it is but as I say I’m used to it , it’s all I’ve ever known I can’t remember a time with out pain , only one physio didn’t believe me , she made me feel like I was lying basically, but every one else said that was terrible behaviour x

That's terrible from a so called professional!! Love and hugs Lynne xxxx

Emm-13 profile image
Emm-13 in reply to

It is shocking, my gp said she would help me complain about it , but the usual too tired to take it further too much hassle x

in reply toEmm-13

That's what they hope for, that we are too tired!! Love and hugs Lynne xxxx

Emm-13 profile image
Emm-13 in reply to

Hi

Yes definitely and benefits system doesn’t help one single bit either x

Rai_Iwa profile image
Rai_Iwa

Dear Emm,

Well presented, this is such a great discussion point. My partner and I are artists and way back when I was first diagnosed it was an art therapy course (I had severe depression at the time) that helped me understand how I could show my hidden pain to those around me.

To all of you out there just grab a piece of paper and a pencil and just let that pain out, you might find a way to show your family just how bad FM is.

Wishing you well,

Rai xxx

Emm-13 profile image
Emm-13 in reply toRai_Iwa

Hi

What a good idea, showing the pain visually help people understand how bad it is , my family have always supported me and new I was in a lot of pain but wen I showed them this pic they’re reaction was wo new it was bad but omg not like that x

SusieJo1948 profile image
SusieJo1948

That's a good picture if only people could see what fibro looks like we would finally be believed. That's what it looks and feels like. If we looked like that than maybe. The world would believe us. Have a goodnight and sweet dreams Love susiejo1948

Not what you're looking for?

You may also like...

How much longer do we have to wait?

Would anyone be willing to share how long they waited for a Universal Credit Work Capability...
LadyJoro profile image

Do we ever really accept ?

Hello all , I've just gone back to work after the 6 wk holiday, followed by an operation and a...
larissa profile image

How do you really feel

Newly diagnosed still not exactly sure what fibromyalgia is! Can anyone describe what they actually...
TeeRee2 profile image

Do you really have "Fibromyalgia"?

As I am unable to create a POLL I will have attempt to do this in a post. In the year before...
RayB profile image

how do we know?

hi! I’m 66, have had a bad back for 20 years or more with other painful symptoms : swollen tight...
Eggcustard12 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.