Bsr 2019 rheumatology conference - Fibromyalgia Acti...

Fibromyalgia Action UK

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Bsr 2019 rheumatology conference

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee
β€’13 Replies

We are at bsr 2019 rheumatology conference for the next couple of days. Looking forward to having good conversations with doctors, physios, and other health care professionals.

Took quite a bit of energy and planning to get here and will enjoy it but will need to raid caterings spoon box later 😁

Pic below shows Reece retweeting from this morning's fibromyalgia lecture. Plenty of conent with #bsr2019 hashtag if you are searching.

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desquinn profile image
desquinn
Partner
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13 Replies
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honeybug profile image
honeybug

Best wishes. Take care.

EJ πŸ˜ŠπŸ™πŸ€—πŸ’—πŸ˜˜πŸ˜‡πŸ•Š

YASMINTINA profile image
YASMINTINAFMA UK Volunteer

Will be very interesting for you both but pace yourself in between. Good luckπŸ˜€

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

stall looks good :)

desquinn profile image
desquinnPartnerVolunteerFMAUK Trusteeβ€’ in reply toHazel_Angelstar

Working out well but got more ideas for Glasgow next year

Mdaisy profile image
Mdaisy

Brilliant work by both of you two guys! :) Thank You for the work you do and I hope you do not get too much fatigue and the canteen there doesn't run out of extra spoons for you :)

Midori profile image
Midori

Is it just you two men holding the fort? Try for at least one lady, or it gives a biased appearance of the numbers relative to male and female sufferers.

Mdaisy profile image
Mdaisyβ€’ in reply toMidori

Hello Midori

As you know desquinn is the Chair of FMAUK and Reece is a fairly new addition to the team. Previously when they have done exhibition or awareness stalls (before Reece joined) Hazel_Angelstar would be alongside Des. It just happened that as the charity organised this that only certain people were available to help. It is not intentional it is just a case of circumstances and FMAUK are trying really hard to attend this. I believe they have travelled a long way and as Des mentions spoons are limited but trying hard to speak to doctors, physios, and other health care professionals.

I understand what you are saying but also wonder if you would say this if it was 2 females manning the stall (pardon the pun). In a way, as male diagnosis of Fibromyalgia are low in comparison (reports say figures may be much higher in males than previously expected) and they think it's because they don't go to the DRs or feel the same pain on the Tender Point Test and a variety of other reasons. So, in a way weird way I think it's good to have 2 men at the show to reiterate that it affects both men and women, of course the information the share will say this. Yeah so I think it's good to have male representation :)

Hope this makes sense

Emma :)

Midori profile image
Midori

Fair enough, It seemed that it was only the two men, so I sit corrected! I would love to be able to help out in some way, but am now in the far west of Wales, where we have a whole bunch of Medical problems with the Health Boards, including one Maternity Unit which has been placed in Special Measures! Scary stuff!

Mdaisy profile image
Mdaisyβ€’ in reply toMidori

No worries better to explain that it was just circumstantial :) and that also often male representation is lacking and they will definitely stick up for us ladies too ! :)

desquinn profile image
desquinnPartnerVolunteerFMAUK Trusteeβ€’ in reply toMidori

Actually there are 3 men as Simon one of our trustees is here as an exhibitor as well. But for events gender does not factor at all. It is availability and capability. It was going to be a female regional coordinator and a female member of staff but things changed and we were the lucky ones πŸ˜‚

Mdaisy profile image
Mdaisyβ€’ in reply todesquinn

Oh yes sorry brain not working properly today, of course I remember Simon and his input with last years International Awareness Day campaign! :)

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee

Thank you Emma, Would also add that Reece as our Comms apprentice does not have fibro either. This is a great bonus when I turn into a babbling idiot he can help.

Mdaisy profile image
Mdaisyβ€’ in reply todesquinn

Glad FMA_Reece Reece is available to support you and even better that he maybe helps when you are needing a well-deserved break :)

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