Finally got a diagnoses: So as the... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Finally got a diagnoses

Gemmasilk profile image
3 Replies

So as the title suggests, ice had a long battle with my doctors trying to figure out what's going on.

But as of 3 days ago my doctor well the rumatologist sat me down and said we have an answer its fibromyalgia.

This was a suspicion of mine for a while as a have the following symptoms.

Aching all over located mainly in my back and knees.

Terrible hard to sleep and stay asleep.

Extremely painful cycles since I had my son who's 5 (his birth I hemoraged in)

Tired all the time.

Poor eye sight

Restless legs

Migraines

IBS like symptoms.

Anyways I have been taking amatripsaline (terrible spelling)

And malexicam for the past 8months and I'm note sure it's doing anything.

I feel just left and I dont know why to turn to for help.

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Gemmasilk profile image
Gemmasilk
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3 Replies
skit profile image
skit

Hi there is help and support at the forum! If you have diagnosis you need a treatment plan. Ask to see Rheumatolurgy again if they do forget you are their patient. Meanwhile get informed. Long term health needs different strategy from just trolling up to a medic and saying what can you do? fmauk.org has a patient booklet well worth a read. There are loads of books on the market about Fubro and if there is a support group near you I would trip along and meet others they have local knowledge of good treatment. Fibro is unpredictable but classed as a disability. If you need benefits keep all your medical appointment letters as evidence towards a claim. Gentle exercise is suggested to ease stiffness and help mood. Some people find Pilates or Yoga helpful. Just pace yourself and ask family and friends for support. If you are employed make sure they note your diagnosis as some work place adjustments maybe required. e.g. If in a shop moving away from draughts.

Gentle hugs

in reply to skit

Hi

I really feel for you.

My rheumatologist kicked me into touch once she had diagnosed me with fibromyalgia!! Think my Dr might have to refer me again. Love and hugs Lynne xxxx

Al10 profile image
Al10

Lots of us feel we are left to figure it out. N lots of us don't find meds helpful. For some they are even detrimental. Time to start your own research n figure what's best for you. Fibro has no effective treatment or cure, just things that MAY help some. Finding what helps is somewhat like kissing frogs to find your prince. Ew? Happy hunting.

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