where there's life there's hope - Fibromyalgia Acti...

Fibromyalgia Action UK

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where there's life there's hope

7 Replies

As a gay man I assure you men do iron ! I am blessed with having epilepsy & over the past several decades all the falls have damaged my lower spine in such a way that I have 3 prolapsed discs that impacting on my sciatic nerve , additionally my medication has caused psoriasis which when it flares up in the ear causes problems !! The skin flakes fall on the inner ear hairs that cause vertigo attacks causing giddiness and vomiting also falls. The three of these put together bad enough but then my parents both died within 16 weeks of each other . My cancer diagnosis last year was almost the last straw.

However for me personally was when travelling home from work on the train the combo of back pain and a small epileptic seizure caused me to loose bowel and bladder control in public.

I eventually got home changed clothes , showered poured myself a large J.D & coke was feeling sorry myself and switched on the radio. Out blasted yazz belting out " the only way is up " I laughed and shouted " too blooming right " ( I said something other than blooming btw ! ) I decided a lot had to change. Tweaked a lot of my lifestyle ad never been happier . I may need a frame but I walk tall. Good luck and best wishes to you all xx

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7 Replies
Spider395 profile image
Spider395

Sometimes a few changes and a positive mental attitude can make all the difference. Glad things are going well for you.

rosewine profile image
rosewine

It sounds as though you have been through a really torrid time. I can understand you relating to a song. Some time back I was going through a particularly bad patch when I was listening to the radio when the song came on "The climb" and the words resonated with me and I just thought I have climbed through difficult scenarios before so have no choice but to do it again.

Keep on walking tall.x

Fra22-57 profile image
Fra22-57

Oh bless you.what a lot to have to go through.We think we are bad but then read a post like yours..let music lift your mood and dance when you can

Love your GSOH hun- as a child I had very bad epilepsy,, maybe PM me I might be able to give you some pointers on avoiding seizures sometimes...as for the low spine pains maybe ask you gp if they would consider giving you a muscles injection of a steroid called Kenalog, its does releive pain, it gives you energy.. For your skin and ears I use DOUBLEBASE GEL I use it like a shower gel in the shower after showering, I twirl a bit on the end of a cotton bud in each ear (not deep in) and my nose as I have Sjorgrens, on my eyelids for dryness, infact Doublebase can be used anywhere. Your gp can give it you or you can buy it. I do believe all your Trauma has been caused by the shock of losing both parents, I lost my father and the Fibro started during that period, my son-in-law lost both parents to medical negligence and he also has Fibro. You will get a lot of support on here, and good luck getting the cancer treated.

Bettybright profile image
Bettybright

Loving your positivity ❤ ohhh that some could rub off 😂 maybe change your handle to pozziepingu 😜

in reply toBettybright

change of handle sounds good but not pozzie pingu as poz in the gay community has a totally alternative meaning than state of mind !! lol.

Good for you I am not going to say poorpingu, but pingu, you are so right the only way is up and I love your attitude. I try to do the best I can every day I won't lie down and let me health rule me, I need to be about for my beautiful grandchildren. You keep on keeping on lad. Hugs x

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