BPPV (Benign Paroxysmal Positional Ve... - Fibromyalgia Acti...

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BPPV (Benign Paroxysmal Positional Vertigo)

Collie-Dog
Collie-Dog

Anyone suffer from 'BPPV (Benign Paroxysmal Positional Vertigo)'?

I suffered a car crash in 1998, with severe 'dizziness' on movement and changing position. I was told it was Post Traumatic Stress Disorder, caused by the shock!

This was obviously not the case, I knew it was not physiological and definitely a physical problem.

I found out about BPPV from Professor Bronstein at Charingcross hospital, London, received the 'Epely manoeuvre' which 'cured' the problem.

I was told amongst other advice by the specialist not to put anything in my ears and never have the irrigation syringing but the vacuum method at the hospital for cleaning etc. I have had one lot of this which was a total success but have had problems trying to have my GPs refer me for this treatment. This time lasps has caused packed wax in my ears and the hospital appointment was not long enough to complete both ears, resulting in one successfully cleaned and the other, half done. I have suffered serious ear pain and total right ear deafness. My GP prescribed ear drop antibiotics but I have been told not to use these, yet I cannot get any oral tablets instead. Pain is so intense but the Specialist is going to telephone me tomorrow. Anyone else had trouble, I don't want to suffer from BPPV again, when it can be avoided by doing what the specialist told me to do. Taking Ibuprophn 400 at the moment, I also suffer from Fibromyalgia and osteo atrthritis.

11 Replies
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Hi I've had BPPV for a few years, I don't take any medication because it makes me feel worse. I'm lucky it only happens now and again and mostly when I'm at home but due to health problems I'm hardly out, I'm going to the clinic on Tuesday because my balance is getting worse and I'm hoping it is due to to my vertigo and nothing else to worry about

I hope you manage to get it all sorted out as it makes you feel terrible

Rosie xx

Good luck with the clinic and thank you for your reply

I'm glad the epeley manoeuvre helped you, it helped me when I had it done at the ENT but it triggered my cervical spondylitis and I was frightened to go back when I had my next flare up, I try doing it myself but it still hurts my neck. Good luck with whatever treatment you get

Rosie xx

Hazel_Angelstar
Hazel_AngelstarAdministrator

I've had bppv for several years now. I get a flare up every couple of years, but can phone ent clinic direct fit an appt for the Epley xxx

Do you have to have the vacuum wax remover?

Hazel_Angelstar
Hazel_AngelstarAdministrator
in reply to danipatch

I've not had to have my ears syringed

Generally people don't need to have their ears cleaned.

Collie-Dog
Collie-Dog
in reply to moo196

Got another hospital appointment but not until March 5th, another fortnight of severe pain. Had one ear 'vacuumed' 3 weeks ago but appointment over ran so the other ear was only half sorted, had infection and pain since !

moo196
moo196
in reply to Collie-Dog

I never had ears syringed for any reason.

My gp diagnosed bppv and did the epelay manoeuvre for me a couple of times.

Can you see your gp urgently?

I was told that ears don't need cleaning......

Good luck

Collie-Dog
Collie-Dog
in reply to moo196

Thank you for taking the trouble to reply, not having much success with the GPs sadly, not telephoned me as promised up to date; so decided to keep taking ibuprophen where necessary and wait for the Specialist's appointment in March. Having been given instructions, I feel reluctant to unecessarily undo what the Specialists have done for me, as over the years I have not had a relapse. All the best

Bppv.... I get it occasionally. But never with pain.

I was shown the brandt daroff exercises which helped stave off theworst of the symptoms if you do them for half an hour 5 times a day. I even keep them pinned up in my bedroom so I know where they are in case I need them. Worth a try?

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