Welcome

[Skykenzbale]

Hello to everyone

Would like to get to know about my condition

[YASMINTINA FMA UK Volunteer]

Hi there and welcome, you’ve come to the right place I’ve been on this very well forum for over a year learnt so much from members getting advice and tips along the way, also good to support each other through the ups and downs along the way. How long have you had fibro ? There is also this link if you wish to lock your posts as only our community can see and generates more privacy. healthunlocked.com/fibromya..., look forward to hearing back from you x

[Skykenzbale in reply to YASMINTINA]

Hi

About a year

[YASMINTINA FMA UK Volunteer in reply to Skykenzbale]

I’ve had mine about 7 years but got diagnosed last year by my gp, at long last one that was in tune and recognised what was going on I have cfs as well so not the best mixture. Give the helpline a ring during the week for some advice as you want to move forward soon, you might get some advice from members who can give you some help also , (not a road I’ve experienced) but I know many members have, sometimes weekends can be quieter on the forum but hope you get responses soon x

[Hidden]

Hi I was diagnosed couple of years ago, I'm still getting used to my body's rhythm as in ,now I know what I have I can change how I live in order to avoid more pain.what about yourself?what's going on with you pain ways and how'd you feel about the diagnosis? And any plans now that you know?.

[ruthiepooh]

Fibromyalgia is a central nevous system and brain condition with well over 200 symptoms. Fatigue and pain are usually the biggest symptoms but it different person to person. You have to learn what are your triggers for flare up. Learn how how to pace yourself and rest when you need to. Welcome to the forum I've only been on the forum a couple of months but I have been diagnosed 19 years but have had this illness a lot longer. Gentle Hugs

[Mdaisy]

Welcome to the FMAUK Community!

If you want to read all about Fibro please visit the Fibromyalgia Action UK (FMAUK) website fmauk.org and also they will send a medical pack to your GP Practice by completing the form below if you wish;

fmauk.org/information-packs...

Hope this helps

Emma

[Sarahvit]

Hello there, you came to the right place. I have been on this site maybe a about 6months now. I have had fibromyalgia and CFS/ME for 26yrs. My advice is to research it and get involved in any research studies on fibromyalgia that you run across and qualify for. The more research done the closer we are to finding a cure. Speaking of cure they are have a study fixed to get started January 1,2019. They have found that BCG tuberculosis vaccine that has been modified over the years has been approved by the FDA to treat fibromyalgia. The study is at Massachusetts Regional Hospital in Boston MA in the USA. Study will be over a 3yrs process where they will give the the vaccine once a year for 2yrs and their study will end after 1yr after the second vaccine is given. The vaccine has been modified from years ago to effect the part of the proteins that is damage by the fibromyalgia so they are looking that it will “reverse the biology of fibromyalgia”. There is a lot of info on this site that I posted intitaled “update” a few days ago. Others of posted more information regarding this same study links to sites I haven’t seen until their posts. This is that ray of hope that a cure will be coming soon. This is not a fun disease. I’ve had it for 26yrs now along with CFS/ME. I have found it to like to invite other diseases and illnesses into your body. I’m having a hard writing because I didn’t sleep to well last night. Hugs 🤗💕🦋🌻🌿🌸💜