Welcome to me

Hi, as you can see on my profile if it's out there I've got it or am on the way to getting it! When I got to 50 I said I wanted to grow old disgracefully, unfortunately my auto -immune system misunderstood and started attacking me. Not giving in without a fight though. I have a bit of a weird sense of humour. I'm on Facebook and I tweet. This is the year of the dragon and I'm adopting Dragon characteristics, breathing fire and being scary! Willing to help with questions if I've experienced something.

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  • Hey Cheryl, love the fact you won't give in to the fight!!!! Positivity and strength are great characteristics!!!

    I am only 34, growing old gracefully( with thanks to Botox)..hehehe and will not let this illness beat me.

    I was only diagnosed in June 2011 however suffered from chronic pain for the last 13 years after a car crash and receiving whiplash!!!

    I do everything possible to remain in control, such as Yoga and meditation.

    Good luck in being a Dragon!! x

  • Hi there, think my fibromyalgia may have been long standing too. I meditate but don't think the knees could take yoga any more. X

  • I'm trying to trend #breathing fire on twitter! Glad to be on board xx

  • I've shared the link on facebook.....we might get more followers!!!!

  • Fibrofog and weariness is on full strength at the moment only 20:45 but I am off to bed... will look in soon

    Love to all my new fibrofriends

  • Why is it that we FM sufferers are exhausted during the day but can't sleep the night through and wake up more tired than we went to bed?

  • Hi, I am new too. I am on facebook and that's where I found this forum.

    Be good to be able to ask questions from other sufferers - people I know don't understand it at all and basically tell me to pull myself together - if only .

  • Hi, I am new too. I am on facebook and that's where I found this forum.

    Be good to be able to ask questions from other sufferers - people I know don't understand it at all and basically tell me to pull myself together - if only .

  • Helo to you all I am new to this site, am also on facebook. Yes quiet agree that people that dont have FM donot understand.finding it harder to cope have moved to a new village and finding it a strain..

  • Hello fellow 'just joined' - cos me too.

    I didn't understand what life was like in a wheelchair, but now do, also didn't understand people with arthritus and bad backs, but now do - I cannot blame people who don't understand FM because they have not experienced it. Now I have had a bad back and have weakness there, have arthritus they think and use a wheelchair I can understand.

    I am part of a chat group who are mostly from the USA and they have exactly the same problems we do except they have to pay for everything! I have been saying how lucky I am as I was not experiencing flare ups and this week I have one! I think I have had others but choose to forget them. No point in looking back unless there is something to learn.

    My pains are odd and change their places a lot this week. My right hip is usually the problem but now my left has joined in. But the muscle on the front of my left thigh feels torn and keeps needing heat. The skin on my sides is very tender and reactive too.

    Going back to the general conversation, I turned 40 and became alive. I finally felt like a grown up who could make her own decisions [at work this is] and take control of her life. I turned 50 and became depressed. That was last November and I was already diagnosed and can only see problems in my future. I do become depressed easily so maybe that light for SAD may help me? I had not linked it to the winter.

    Have to go, soft hugs to you all.

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