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Fibromyalgia Action UK
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leg weakness

does anyone else get really aching muscles in their legs?

like you have over worked your legs.

34 Replies
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Yes everyday. arms are the same. like lead weight. go to jelly when I do something and my hands shake. x

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I'd be more interested to know if anyone HASN'T had a pain in every single part of their body!

🥀

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Sadly no 😢

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Yes legs ache and lose their power - can only walk so far - some days better than others. Neese x

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This is one of my biggest problems, I often wake up feeling like I've run a marathon & I know how this feels as long before fibro I actually did run the London marathon! I find the heavy aching tired feeling is always worse in my legs.

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Yes this is my biggest problem. My calves regularly go into tight spasms and sometimes I can't walk for a few days or like a robot. The doctors just don't have a clue what it is. It must be a Fibro thing but none of them say that it is that. Frustrating indeed!

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I also found that I can't walk in a straight line,almost like I have been drinking alcohol. Any one else have this ?

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Yes, for sure.

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Yes I always have a wobble on

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Yes we call it the fibro walk in our house!

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Yes, but only when I first get up in the morning. Then it wears off quickly.

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Ive just come in here to search for anyone feeling likw thier legs stop working. I have just walked around asda with my daughter and judt wanted to stop and sit on the floor. This has only just really started this bad this week. It started with really bad muscle ache in front of my calves which id still there and now i feel like my legs dont want to work properly but i also have chiari malformation which is another neurological disease so not sure which one is causing it. Its pretty scary as i have 2 kids one of 6 and one of 18 who has literally just done all the shopping for me. Is fm a deteriorating disease ? Xx

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I sure believe so. My legs can freeze up in the cold weather. I try to walk up to the corner (3 houses away) and sometimes my legs will just freeze up. And then my hubby has to pull me home. It happens most in the cold weather but sometimes other times. And then there a lot of times I can barely walk around the house, much less to the corner. xxoo

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I feel fm is a progressive disorder I’ve suffered for 15 years and it’s definitely got worse not better. The pain sometimes is unbearable and the fatigue has got worse it really pulls you down some days. The only way I feel to deal with it is to learn to live with it. The days I feel good I cherish and just do what needs to get done because I know the next day could be a bad day for me. This is a very complex illness with so many layers with different symptoms it’s the hidden illness.

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My legs just stop working. I get really bad pain in them. Often experience wanting to just sit down on the floor because my legs are giving up. I use mobility shopping scooter and a scooter when I know my legs are bad.

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Hi. Yes currently experiencing these symptoms now whilst trying to sleep. My lower legs are throbbing like I have ran a marathon. X

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Hi

It’s due to lactic acid build up in your legs very similar to in ME one of the main symptomd

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I can tell you that leg weakness is one of the major signs of this illness. I struggled for years dragging myself around. My legs were always so painful and heavy and trying to walk was if I was in wellington boots filled with water! After 3 years confined to bed, I have been disabled since 1990. So sorry if you are going the same way. Love Roselil

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I wake up several times a night with this..

But i cant quite explain how they feel..

Its like as if i have had totally numb legs but the feeling is starting to come back to them, aches , heavy,pins and needles and sort of stiff . sometimes my arms too, can take most of the day for them to feel normal again, they feel weak at times like wading through water.

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I also have a lot of leg pain at the moment which is probably the fibro but it has got a lot worse since taking blood pressure tablets. its so frustrating because i want to try and be fitter and keep the weight down but its just impossible. i have had fibro for over 15 years and this is the first time I think it is making me feel depressed because I seem to have lost control over it. My daughter is always telling me I cant walk straight! I once had a problem with my feet which made it almost impossible to walk at all. Sorry to be a moan but I have to go back to work Monday; only a few hours but I cant see it happening.

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So sorry your through such a hard time. I totally understand how frustrating it must be for you. I've has fibro 20 yrs. Hope you manage to go back to work bug be kind to yourself if you can't manage it. sending you gentle hugs.

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Yes, everyday. Is worse the more active I am. Again, like others, some days are better than others.

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Yes sometimes it feels like my legs are being squeezed and I also get a lot of cramp and pins/needles. They also can feel very heavy if that makes sense like you just can’t lift them.

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Same here. Sometimes I have to drag myself upstairs at night. Can feel like my legs are on fire on the inside, other times it’s like the feeling that you worked too hard at the gym and it’s the day after, and sometimes, mainly of an evening, they just start jerking and twitching, and I often stumble as though drunk and my legs can give way. Someone recommended tonic water for when they do the old spontaneous jerking thing and it does seem to help a little. My legs are definitely the worst thing, and can lay in bed at night wanting to just cry. I’ve given in and bought myself a quad cane to help with my stability when out and about - hated doing it as it feels like I’m giving in to Fibro but after a couple of bad falls it seemed it was the sensible thing to do ☹️

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Yes my legs are constantly painful even the lightest pressure hurts and they feel like dead weight when I try to walk more than a few yards

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Warmth helps, leggings or long johns under trousers. My legs have been aching for days since the weather chilled. It's raining outside and probably about 11 degrees here on the east coast of the Scottish Bordes. Yesterday afternoon really sunny and warm in shelter from sea breeze and back and legs relaxed. Also try gentle stretching of leg muscles. I added a thicker mattress cover to the bed and another light covering on top. Important to make a thermal sandwich.

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I agree, I've already got my thermals on LOL , it's got much cooler already, I hate the thought of winter coming,. it seems by the answers leg pain is one of the biggest problems of fybro, I get RLS as well which is a nightmare when I go to bed, I do find if I can manage to walk a little it helps with the pain.

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yes i do and when cortisone wears off its worse .liked i walked 20 miles continually

.i get hip shots regularily and it helps my pain bursitis on hips

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Yes I know exactly what you mean. If my arms and legs are really bad even my what I wear against hurt me. Take care x

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Arms and legs are the worst part I find they just feel like lead and the fatigue drags you down. I've been getting worse since I slipped a disc in my back. Wasn't too bad with the sin but now the weather is changing I Can't do anything x

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Its constant. My legs have always felt like I've run up 10 flights of stairs and have flu. I walk with a stick and need a wheelchair outside the house. The thing that is helping the pain is CBD oil

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Yes all the time, they judder then give way. Sending gentle hugs 🤗

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Yes. I was told it was a result of years on strong painkillers. That said I have circulation issues as a result of my inactive lifestyle. I recommend leaving painkillers alone when you can. Don't take them automatically but only when you need them. Fight for your functionality as it is all that makes living worthwhile. I'm so very sorry someone else is suffering as I do

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My calf problems started about 6 years ago when suddenly one calf muscle tore when I was just walking down the stairs. Absolutely no warning and never had leg pains before that! Since then my legs have been a painful nightmare...rigid, tight calves making it impossible to walk very often and hip bursitis plus raging RLS! I now have massages, stretch daily and use magnesium oil spray...all helps but doesn't cure. Doctors are useless and have no idea so far....in fact they make me seem like an absolute nuisance when I'm only trying to find out what's wrong and how I can help myself. All very frustrating but it surely all must be because of Fibro I suppose........

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