Sleep deprivation

[Shenni]

Does anybody else have trouble getting to sleep?both my legs are restless 😬 I just keep tossing and turning I seem to be like this most nights,I usually take a Tramadol which helps but not tonight 😪

[Misslovely]

Oh aye!

I have RLS and it drives me crazy! Im on gabapentin at the moment for something else but have found that it has lessened the frequency of the RLS and also seems to help me gat about 4 -4.5 hours sleep now - big improvement on the 2-3 i was getting xx

[Shenni in reply to Misslovely]

Some nights it doesn’t bother me but lately it’s both legs every night I’m looking into changing my mattress to see if that helps I think mine is a bit to hard

[Hidden]

Yes, , I do every night. I’ve started on Amitriptyline which is helping but they unfortunately give me terrifying nightmares. Can’t win!

[Shenni in reply to Hidden]

I’m already on 50mg Amitriptyline plus Naproxen and Pregabalin I feel like a walking pharmacy 😪 hugs 🤗 xx

[Tomcat98]

I take Pramepexol prescribed by GP two hours before going to bed. Cured my restless legs. Been taking them for about three years now with no side effects. Ask your GP.

[Shenni]

Thank you Tomcat98 I will xx

[Horsesgalore]

I have similar problems and also suffer with restless arms, even if I do sleep I always wake up feeling unrefreshed. I take nortriptyline which does help, but I also find it gives me weird/vivid dreams.

[Shenni in reply to Horsesgalore]

I never wake up feeling refreshed even if I feel I’ve had a good night xx

[Hidden]

Hi Shenni - Try taking your wireless devices out of the range of the bedroom, and turn off your Wi-Fi if you have one. If I leave that on, it makes me dance for hours..

My doc also gives me clonidine, which is an 8 hour blood pressure medication, with a one off use for RLS, and it has been working really well..

[Shenni]

Thank you xx

[1499]

Hi Shenni, yes I get restless legs and get it down my arms too at times it's horrible you don't know where to put yourself. I am on tramadol also but I find it takes about an hour for them to kick in so if I feel them starting before bedtime I take tramadol right away. My pain clinic consultant advised he could give me meds for this but they aren't without side effects like all drugs and he knows due to high liver function levels/jaundice last year due to the cocodamol I was on for years that I am wary of taking anymore than I need to.

I found tramadol 50mg one four times daily was no good to me, so I asked him if I could take 2 in the morn and 2 at night and he was fine with this. I can take another 2 in the middle of the day he said but only at flare times so I try to avoid as much as possible. My friend is a Nursing Sister and she has seen me at my wits end with fibro flares plus I have knee/back problems which is chronic pain constantly ,she told me when I'm bad like that to take 2 paracetamols along with the tramadol. I told her paracetamol does absolutely nothing for me but she says along with tramadol it helps boost them and she has many patients using this.

You could always speak to your GP about this if you want. I didn't as I only use the paracetamols now and again. If you are only taking one tramadol it may be worth trying 2 paracetamols along with it for the restless legs. Someone said flight socks were the answer but they didn't help me unfortunately. Wouldn't it be lovely to get a full night's sleep? Good luck x

[Shenni in reply to 1499]

Hi 1499 thanks so much for that ,I usually take 2 Tramadol at night but like you said it takes at least an hour before they kick in so maybe a paracetamol would help I will certainly speak to my gp about it.

It seems to be one thing after another and no let up with the pain.Got my pain management course in October so hopefully that will help . Sending hugs 🤗 xx

[1499]

Your welcome! it's usually 2 paracetamols with the tramadol and might just let you get some relief. As if the fibro itself wasn't enough. I have been using CBD oil which I felt was really helping but last couple of weeks it has been flare after flare though I had overdone it and there were days I had forgotten to take the oil. It is something you may want to try? You leave 2 hrs or 4 depending on what meds you take. Pacing yourself is the key to avoiding flares we are told, but I know like so many, on reasonably good days I try catch up with things and suffer with flares afterwards. It does steal your life away and I get so fed up not getting out the way I used to, I was so active. My cupboard is like a chemist shop lol! as I think with Fibro you try anything that others say is helping them. Good luck at your pain management course hope your legs settle, hugs x

[Shenni in reply to 1499]

I haven’t tried CBD oil but have heard it helps a lot of people I will discuss it with my GP to be honest I think we will try anything 😂xx

[1499 in reply to Shenni]

Good luck!

[Matrix]

Oh yes that’s been my life since I was 11 years old and over the last forty years it’s got much worse. If I get an hour around 6 am then I’m lucky . I suffer with full body RLS and when it’s bad it’s very distressing . I have found it best to get up right away and walk , I walk up and down my hallway it’s nice and long so that’s good and that can and does go on for hours . I don’t know how I can cope with out sleep but still I carry on . I really hope you get some rest and sleep , love and hugs keep your chin up sweetie . Xx🤗🦋😇

[hazfor]

Hi Shenni,

I’ve recently started getting Restless leg syndrome after many years of being free from it. I first started getting it as a teenager,but never did anything about it. This time though, I’ve reported it to my GP as it drives me crazy. I’m on a shed load of tablets, Morphine patches and Sulphate but have been on these for years now. My GP wants a blood test first to rule out anything nasty, then it will be process of elimination. A sensible way to go, I think. It doesn’t happen every night, but when it does it drives me insane and the only way I get any comfort at all is to have one leg out of bed to allow it cold. I’m supposed to wear compression stockings,but they seem to have disappeared. Being bed bound doesn’t help, I’m sure, but identifying the cause is going to be a long hard haul at a guess. I notice that many people who have answered are on gabapentin, or tramadol. I used to take tramadol and found them to be a very good medicine to take, then I was put on codeine and paracetamol before attending hospital, who then decided I’d be better off on Morphine! Along with a lot of other meds, including sleeping pills, but more recently I’ve been asked why I was never put on Pregabalin for all the problems I have. It’s been suggested that this may of helped, along with physio.

Another care in the community statistic, it feels like no one really cares, but the new GP who has arrived seems to care a lot. I’ve been on so many drugs now for the past 7 years, I’ve even asked about the chances of coming off those I might not need as I’m currently taking about 20-30 pills a day plus my 72hour Morphine patch and Morphine Sulphate 4 times a day. I’ve cut the last one down to once or twice a day, more if I have to go out, and reduced other drugs from 40 a day. My psychiatrist then goes and increases them. It’s a wicked and cruel round . Best of luck to you and gentle hugs 🤗. And if anyone comes up with a concrete answer, then please share and let us all rid of RLS xxx

[Shenni in reply to hazfor]

Sending big hugs 🤗 back xx