Jumping eyeballs: I had to find a new... - Fibromyalgia Acti...

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Jumping eyeballs

8 Replies

I had to find a new opticians, today I met a lovely optometrist who was genuinely interested in me. I finally felt I could tell her about my eyeballs jumping, I hadn't asked before because I didn't feel I could.

Jumping 👀 eyeballs are caused by the nerve endings misbehaving and this is caused by fibromyalgia! Does anyone else have this phenomenon

8 Replies
rosewine profile image
rosewine

I have what I call zaps when it feels like someone has given me an electric shock normally in my back but it can be hands or feet. Other times I swear someone is sticking a red hot knife in me. I know now like you it is the nerve endings playing upI just wished they would gland play elsewhere.

in reply torosewine

The older I get the more symptoms of fibromyalgia shows up. It's getting harder and harder to cope. I am a Christian and without my faith I don't know what I would do

LupieMani profile image
LupieMani in reply torosewine

This sounds like something called L'hermitte's sign. I've had a few of those but they seem to have calmed on pregabalin.

rosewine profile image
rosewine in reply toLupieMani

I had nevere heard of it so looked it up you learn something from this forum every day.x

LupieMani profile image
LupieMani

Is it your eyes themselves (nystagmus) or jumping vision (oscillopsia)? They both feature in people with neurological conditions. I had the latter during my last big flare, a few months ago. Started with floaters, then blurry vision, and finally, the dancing vision. GP increased pregabalin dose, which seems to have taken care of that for now.

in reply toLupieMani

It's my eyeballs, I also have lots of floaters.

Yes occasionally

honeybug profile image
honeybug

Hi milly 😊🌸🌿🦋

I have jumpy/darting eye movements and mine is nystagmus from Meneires disease and neuropathy. I hadn’t heard FM can cause this too. Interesting 🤔

I hope yours is manageable.

Take care. 😊🌸🌿🦋🙏

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